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Support Groups

Support Group Leaders

The Alpha-1 Foundation Support Group Network is a collective of more than 80 affiliated support groups including four Virtual Support Groups (Alpha-1 Families, Caregivers, Pre and Post Transplants & Timely Topics). These groups are committed to improving the quality of life of people and their families affected by Alpha-1 and to extending the mission of the Alpha-1 Foundation.

Support groups help people develop an enhanced, healthier sense of personal identity and a connection with the larger Alpha-1 Community. Support group guidelines were established by the former Support Group Leader Advisory Committee, consisting of seasoned support group leaders. They are continually monitored by the Community Engagement Advisory Committee. These operating guidelines ensure the consistency of support groups related to educational opportunities, principles of emotional support, confidentiality, and unbiased relationships with industry.

Support group leaders listed on this website are for the sole purpose of assisting newly diagnosed Alphas and/or their caregivers in their local areas. Please contact the Alpha-1 Foundation for any marketing activities at (800) 521-3025 or by email at: info@alpha1.org. We are happy to discuss all inquiries.

The Alpha-1 Foundation Support Group Network is a collective of more than 80 affiliated support groups including four Virtual Support Groups (Alpha-1 Families, Caregivers, Pre and Post Transplants & Timely Topics). These groups are committed to improving the quality of life of people and their families affected by Alpha-1 and to extending the mission of the Alpha-1 Foundation.

Support groups help people develop an enhanced, healthier sense of personal identity and a connection with the larger Alpha-1 Community. Our support groups abide by guidelines established by a Support Group

If there is no support group in your area and you are interested in organizing one, please contact Barbee Bennington, support group coordinator, at 1-855-351-6610 or bbennington@alpha1.org.

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Support Group Locations