WHAT IS ALPHA-1?
Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition – it is passed from parents to their children through their genes. Alpha-1 may result in serious lung disease in adults and/or liver disease at any age.
TESTING FOR ALPHA-1
The Alpha-1 Foundation encourages testing for Alpha-1 among those at high risk for this genetic disorder. Anyone can ask their doctor to test them for Alpha-1 or they may choose to be tested confidentially.
TOP STORIES
Navigating the U.S. health insurance landscape for children with rare diseases: a qualitative study of parents’ experiences
Background: Parents of children with rare diseases often face uncertainty about diagnosis, treatment, and costs...
2022 State of the Union Address
As we look forward to a promising 2022, President and CEO of the Alpha-1 Foundation, Scott Santarella shares his...
Alpha-1 Foundation Unveils COVID-19 Event Grid for 2022 Events
The Alpha-1 Foundation has created a detailed guideline of criteria that will be used to determine Foundation event...
Our Number One Goal:
Find a cure for Alpha-1.
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