Henry Moehring was diagnosed with Alpha-1 in February 1997 and has been an Alpha-1 Association member since that time. He has participated in research protocols at both the National Institutes of Health (NIH) and at the University of Florida. He has a Masters of Business Administration from John Hopkins University and has worked as a Healthcare Administration Professional for 30 years. He currently serves as Executive Director at the Asbury Methodist Village, a nonprofit retirement community with 1,300+ residents and 840 employees. He has been on the Association Board since 2010, most recently serving as Treasurer. Henry's interest is to raise awareness of Alpha-1, educate and support Alphas in the community, educate healthcare professionals and advocate at the state and national levels. He brings his education, experience and leadership to the Board to make a difference in the Alpha-1 Community.
Jennifer (Jen) Childress is the mother of two young daughters who have ZZ Alpha-1 Antitrypsin Deficiency. Four of her first cousins lost the battle with Alpha-1, as well. As a result, Jen very much wants a cure for Alpha-1 and likes to say, “Long live the Alphas!” Upon the diagnosis of her oldest daughter in 2002, Jen's quest for information brought her to the Alpha-1 Association. With information in hand, Jen got actively involved with her local Support Group in Wisconsin.
Jen now serves as the Vice Chair of the Association Board of Directors. Having graduated from the University of Wisconsin-Madison with a BS in Family & Consumer Journalism, Jen has written articles for her local Support Group as well as the Association's Alpha-1 News. With past experience in the field of technical writing, she uses her communication and instructional design skills to help those diagnosed with Alpha-1. Writing is a passion of Jen's, and she often documents life with the "Alpha Girls" on her personal blog, Unique But Not Alone. In her professional life, Jen is a Multimedia Instructional Designer for a financial services company, FIS, where she creates adult learning content for FIS’s clients.
Sandra (Sandi) Douglas has been involved with the Alpha-1 Association since 1993 when her daughter Julia was diagnosed with Alpha-1 shortly after being born. She has participated over the years in Michigan Support Group meetings and as a resource for "new" Alpha parents. Sandi has a special place in her heart for Alpha-1 Kids, and is proud her daughter now volunteers at National Education Conferences to create a fun and memorable experience for families. Sandi is passionate about ensuring that families have the information and support they need in difficult times through education, awareness, and advocacy.
Sandi is currently the Director of MBA Programs at Katz Graduate School of Business, University of Pittsburgh. She retired in 2012 as a Senior Program Manager from Hewlett Packard. She earned her Master's in Business Administration from Michigan State University in 2004 and has worked in the supply chain, manufacturing, and information technology industries for 30 years. Her professional skills are a valuable addition as she serves as Chair of the Audit, Finance and Oversight committee and the Development committee for the Board of Directors.
Vestavia Hill, AL
During three decades as a medical communications professional, Dell Witcher has written and produced news stories, marketing materials and videos about countless medical conditions, from the common to the uncommon. In 2008 she encountered a disease she had never heard of before, when elevated liver enzymes led to her diagnosis with Alpha-1 Antitrypsin Deficiency. Soon after her diagnosis, Dell was elected to the Alpha-1 Association Board of Directors where she has since been involved in numerous communications projects, including serving as writer/producer of the Alpha-1 Family Awareness Video Series, the Association's 20th Anniversary Video and the Advocacy Training Video. In 2011, Dell received the Association's Claude Baril Communications' Award. Dell began her career as a radio and television news reporter, then later served as Vice President of Communications for a chain of physical rehabilitation hospitals based in the Southeast. In 1991 she established Witcher Communications, a communications consulting business specializing in the medical and legal industries. Dell currently resides in Vestavia Hills, Alabama, with her husband, Brunson White, and their two sons.
Immediate Past Chair
West Hills, CA
Ken Benson was diagnosed with Alpha-1 Antitrypsin Deficiency in 1997 after 10 years of breathing problems. Since that time he has been a member of the Alpha-1 Association and has become active in the Alpha-1 community on many fronts. For more than four years he organized and led an Alpha-1 Support Group in the Los Angeles area. He is also very involved in advocacy efforts and is a member of the Association and Foundation's Public Policy Working Group. He regularly participates in lobby days in Washington, D.C. and meets with and contacts legislators regarding issues of importance to the Alpha-1 community on both a state and federal level. Mr. Benson has served on the Alpha-1 Association Board of Directors for four years and was elected its chair in 2011. He now serves as the Immediate Past Chairman and serves on the Executive, Nominating and Planning Committees. He also serves as a member of the Board of Directors for the COPD Coalition. Ken served in the US Army from 1962-1965 and is now retired from his position as a Financial Advisor at Morgan Stanley Smith Barney. He has served as a volunteer in many organizations such as Van Nuys Rotary Club, Mid Valley Chamber of Commerce and Mid Valley YMCA. He currently resides in West Hills, California.
Fort Wayne, IN
Tom Corron is a 1977 graduate of Drake University in Des Moines, Iowa, and worked his entire career in leadership and management roles in a number of companies in the Property Casualty Insurance Industry. He also served as the Insurance Industry Chairperson for the Property Casualty Insurers Association of America Committee on Motorcycle Insurance. Tom earned his Masters of Public Administration from Drake in May 2004, where he was awarded the Drake College of Business and Public Administration "Outstanding MPA" Award in 2003.
In 2005, after several years of respiratory infections and numerous doctor visits, he was diagnosed with Alpha-1. After moving to Fort Wayne in 2010, Tom organized and led the Fort Wayne Alpha-1 and COPD Support Group. He currently serves on the Support Group Leader Advisory Committee and in 2012 he received the Association's Board of Directors' Service Award. His passion for Alpha-1 Awareness is evident through his community involvement with the COPD Foundation, American Lung Association, Respiratory Health Association of Chicago, and American Association for Respiratory Care. Tom also serves on the Respiratory Therapist Advisory Board Member for Ivy Tech Community College, served on the planning committee of the Healthy Lung Expos in Indianapolis, and works with the Better Breathers groups in Indiana.
In 2011, he helped form a local non-profit historical preservation society in Kane County Illinois and currently serves as their President. Prior to his appointment to the Board of Directors for the Association in 2009, Tom volunteered with the Child Abuse Prevention Council in Des Moines, Iowa as their Public Relations Director. He also served on their Board of Directors and was a recipient of their Volunteer Service Award.
East Bethel, Minnesota
Jennifer (Jen) Jopp was diagnosed with Alpha-1 in 2005 as a lung-affected ZZ. She has close to 20 years of Healthcare Administration Management experience and currently works for Allina Health at Abbott Northwestern Hospital in Minneapolis, MN in the Minneapolis Heart Institute cardiovascular department. Jen serves as a Support Group Leader for the Twin Cities Alpha-1 Support Group. She has participated in grassroots advocacy efforts on behalf of the Alpha-1 Community in state and national arenas, and at both the legislative and regulatory levels.
In addition to her experience in organizing fundraising events, Jen has promoted advocacy and educational issues through networking efforts and writing letters to various publications. Since joining the Board of Directors of the Alpha-1 Association her focus remains to help find a cure through research and to promote support, education and advocacy for the entire international Alpha-1 community.
Pleasant Hill, Iowa
Karen Voss recently retired as Vice President for Finance and Treasurer of Grinnell College, a private liberal arts college located in Grinnell, Iowa. As CFO she was responsible for monitoring and managing the College's overall financial operations as well as the development and administration of the College's operating and capital budgets and strategic planning processes. Karen was with the college for more than 25 years. She received a B. B. A. in Accounting from the University of Iowa in 1990.
Karen came to the Association with high recommendations and strong leadership skills as well as excellent communications and analytical skills. Her involvement with the Alpha-1 community began in December of 2002 when Karen and her family members discovered first-hand the genetic disorder called Alpha-1 Antitrypsin Deficiency. Her brother was diagnosed with Alpha-1 and even though tests showed Karen did not have the disease, she joined with her brother and became involved in what she calls the "Alpha family." Soon after that she became a member of the Association and has been a Director on the Association board since June 2011.
DC Young is a lung-affected Alpha diagnosed in 2003. He attended Brigham Young University where he graduated with both a Bachelor of Engineering and Masters of Mechanical Engineering degree in 1970. His career was spent at a multinational heavy equipment company working in research, product development & purchasing. During his employment he studied and became a Licensed Professional Engineer, Certified Purchasing Manger and a Certified 6 Sigma Black Belt. He volunteers at his church as executive secretary to local church leaders. One of his hobbies is to help Cub Scouts build and race Pinewood Derby Cars and provides a race track to test their cars. In 2003, he attended his first Alpha-1 Association National Education Conference in Chicago. That meeting changed his outlook on life. Since then he has attended all but one National Conference and learned new, important things at every meeting. To help promote Alpha-1 awareness he initiated a campaign to educate his extended family about the disease, getting other family members positioned to manage their own and their children's well being. He now serves as an Association Board member and as a Support Group Leader in Utah.
Virginia Clark, MD serves as the Associate Program Director of the Transplant Hepatology Fellowship and as an Assistant Professor of Medicine at the University of Florida's Division of Gastroenterology, Hepatology, and Nutrition. She has been the recipient of the Fellowship Award from the American Association for the Study of Liver Diseases Advanced Hepatology. Her research interests are focused on Alpha-1 Antitrypsin Deficiency and Fatty Liver Disease.