Alpha-1: 50 Years of Discovery

50 years LOGO2013 will mark the 50th anniversary of the discovery of Alpha-1 by scientists Carl-Bertil Laurell and Sten Erikson. To commemorate the milestones made since then and to encourage more progress, the Association and Foundation are organizing a year-long campaign for awareness from January to December 2013. We are asking the community to participate in as many awareness activities as possible throughout the year. If each person does one meaningful and impactful thing, imagine what a difference it could make in the diagnosis of the more than 90,000 people estimated to be undiagnosed in the U.S. alone.

To commemorate the 50th anniversary of the discovery, the 4th International Alpha-1 Patient Congress and an international Research Conference on Alpha-1 Antitrypsin will be held in Barcelona, Spain, April 11-13, 2013. Alphas from all over the world are welcome to attend the Congress, and Alpha-1 patient associations from many countries are expected to send delegates to the Congress April 12-13. The Research Conference will be held April 11-12, and there will be a joint session of patients and scientists on the afternoon of Friday, April 12 .Click here for more information.



Below are some of the awareness activities that you and your family can do together. The goal is for a minimum of 50 people to do each activity and, for each activity completed, your name will be entered in a drawing for some great prizes at the end of the year. Please feel free to share an awareness activity you have done! We encourage you to take pictures and notify the Alpha-1 Association of any awareness activities that you've participated in. Please contact Jonathan Welsh, Advocacy Manager, at

  1. Present your Alpha-1 story to students at a local medical, nursing or respiratory therapy school.
  2. Obtain a local and/or state proclamation declaring Alpha-1 Awareness Month in November.
  3. Participate as an exhibitor at your local respiratory or health fair event throughout the country.
  4. Have an article in a newspaper and/or magazine or be interviewed on a TV or radio show.
  5. Become an Alpha Advocate and meet with your state representatives face-to-face to discuss key issues related to Alpha-1.
  6. Share your story on a YouTube video.
  7. Submit a quilt patch/square for the Alpha-1 Hope Quilt.
  8. Speak at a club or event (Better Breathers, respiratory events, rotary, Elks, etc.) about Alpha-1.
  9. Artistically describe what Alpha-1 means to you – the top winners will be displayed at the National Conference.


 Click here for instructions on how to complete some of these activities. 


Be on the lookout for the launch of the NEW Alpha-1 50th Anniversary Website at

We encourage you to take pictures and notify the Alpha-1 Association of any awareness activities that you’ve participated in.  Please contact Jonathan Welsh, Advocacy Manager, at