2013 will mark the 50th anniversary of the discovery of Alpha-1 by scientists Carl-Bertil Laurell and Sten Erikson. To commemorate the milestones made since then and to encourage more progress, the Association and Foundation are organizing a year-long campaign for awareness from January to December 2013. We are asking the community to participate in as many awareness activities as possible throughout the year. If each person does one meaningful and impactful thing, imagine what a difference it could make in the diagnosis of the more than 90,000 people estimated to be undiagnosed in the U.S. alone.
To commemorate the 50th anniversary of the discovery, the 4th International Alpha-1 Patient Congress and an international Research Conference on Alpha-1 Antitrypsin will be held in Barcelona, Spain, April 11-13, 2013. Alphas from all over the world are welcome to attend the Congress, and Alpha-1 patient associations from many countries are expected to send delegates to the Congress April 12-13. The Research Conference will be held April 11-12, and there will be a joint session of patients and scientists on the afternoon of Friday, April 12 .Click here for more information.
Below are some of the awareness activities that you and your family can do together. The goal is for a minimum of 50 people to do each activity and, for each activity completed, your name will be entered in a drawing for some great prizes at the end of the year. Please feel free to share an awareness activity you have done! We encourage you to take pictures and notify the Alpha-1 Association of any awareness activities that you've participated in. Please contact Jonathan Welsh, Advocacy Manager, at firstname.lastname@example.org.
Be on the lookout for the launch of the NEW Alpha-1 50th Anniversary Website at http://www.alpha1-50yearsofdiscovery.org