Genetic Counseling Program

The Alpha-1 Association’s Genetic Counseling Program (1-800-785-3177) offers free phone-based confidential information and resources to Alphas, family members and medical professionals on the genetics of Alpha-1 and provides information on testing options. Specifically, the program:


  • Provides information about inheritance, testing, management, prevention, resources and research


  • Helps people understand and adapt to the medical, psychological and familial implications of genetic contributions to disease


  • Provides supportive counseling and referral to community or state support services


  • Promotes informed choices and adaptation to the risk or condition and review available testing options with the family


Online Scheduler


Want to schedule a time for our Genetic Counselor to call you directly? You can do that by visiting our online scheduler.


Genetic Counseling Program Brochures


Brochures for the Genetic Counseling Program can be downloaded in PDF format below. We encourage you to forward these brochures to anyone who might benefit from the information provided.


For Patients & Families      For Healthcare Providers 


Alpha-1 Presentations on Genetics


Alpha-1 Education Day and Annual National Education Conference presentations on genetics and other related topics can be viewed on our website here.



The Alpha-1 Association Genetic Counseling Program is made available by the support of

Baxter, CSL Behring, & Grifols

 under the direction of the Medical University of South Carolina.