The Alpha-1 Caregivers Virtual Support Group is dedicated to providing support, education and information for Alpha-1 caregivers. This is accomplished by:
Centralizing educational and informational resources
Facilitating peer connections
Providing links to resource
Facilitating an online Discussion Forum
Conducting Telecalls with Physicians/Experts/Parents
A committee of Alpha-1 caregivers help to identify needs and resources for this Virtual Support Group as well as recommend support and educational programs and plan periodic telecalls. Committee members inlcude: Nancy Cropper, Carol Hosley, Barb Speers and Larry Tipper.
Were you unable to attend a Caregivers Virtual Support Group telecall? This page allows you to listen to the recordings of each call to ensure that you have all the information and support you need.
Click on one of the topics below to listen:
November 5, 2013
Speaker: Participant Participation
March 5, 2012
Speaker: Sara Wienke, MS, Genetic Counselor, Alpha-1 Association Genetic Counseling Program
May 24, 2011
January 27, 2011
Resources for Caregivers