Alpha-1 Timely Topics Virtual Support Group

TelephoneThe Alpha-1 Association’s Timely Topics Forum is a Virtual Support Group designed to provide information and resources to those individuals who do not have access to a local support group in their area or who would like to gain access to more information about Alpha-1 related topics.


Telecalls are held at least quarterly and cover a broad range of topics that help Alphas improve the quality of their life such as ways to access more information, live healthier lives and gain access to important programs and services available to them.


Join our mailing list to recieve invitations to Timely Topics Forum telecalls.



Were you unable to attend a Timely Topics Forum Virtual Support Group telecall?

This page allows you to listen to the recordings of previous calls to ensure that you have all the information and support you need.

Click on one of the topics below to listen: 


May 6, 2014

Family Testing and Basic Genetics of Alpha-1

Speaker: Sara Wienke, MS CGC, Certified Genetic Counselor, Alpha-1 Association Genetic Counselor Program, Medical University of South Carolina


April 8, 2014

Research Registry, Current Clinical Trials & Research Update

Speaker: Charlie Strange, MD, Alpha-1 Foundation Research Registry, Medical University of South Carolina (MUSC)


November 19, 2013

What is a Carrier?

Speaker: Robert Sandhaus, MD, PhD, FCCP, Professor of Medicine, National Jewish Health, Clinical Director, Alpha-1 Foundation, Executive Vice President, AlphaNet


March 26, 2013 

Research Registry, Clinical Trials and Latest Research Update

Charlie Strange, MD, Alpha-1 Foundation Research Registry, Medical University of South Carolina (MUSC) 


November 27, 2012

O2/Oxygen Options

Mike Clark, BA, RRT, CPFT


July 24, 2012

Guide to Selecting Private Health Insurance & Making Life Choices Decisions

Cathey Horsak, Director of Community Outreach and Programs, and Barbee Bennington, Support Group Leader Corrdinator, Alpha-1 Association


July 17, 2012

The Affordable Care Act and Q & A

Miriam O'Day, Senior Director of Public Advocacy/Alpha-1 Association and Alpha-1 Foundation


November 16, 2011

Latest Liver Research

John Walsh, President and CEO, Alpha-1 Foundation


August 31, 2011

Nutrition and Q & A Session


May 31, 2011

Medical Insurance Denials - Open Forum



August 21, 2010

Traveling with Oxygen

Patti Brown, AlphaNet Coordinator