Resources for Caregivers

Alpha-1 Caregivers Virtual Support Group

  • The Alpha-1 Caregivers Virtual Support Group is dedicated to providing support, education and information for Alpha-1 caregivers



  • The official Web site of AARP, a membership organization dedicated to enhancing the experience of aging through advocacy, information and services.


Alpha-1 CARE

  • An email list for caregivers to meet to find support, and share ideas and needs with other caregivers who understand. This group was started primarily for caregivers of Alpha-1 patients, but is open to all caregivers.


Administration on Aging

  • The Administration on Aging is a valuable resource for information on aging, providing information on local services for older Americans.


AgeNet Eldercare Network

  • Find Problem Solving Eldercare Products, locate organizations and services and use caregiver tools.



  • CareGivers-USA is a nationwide, non-commercial directory of community-based caregiver support services -- intended to help individuals who are providing care for a family member or friend. All services are free and completely confidential.



  • This website contains information about what every caregiver needs to know, what Medicare covers, caring for someone with a chronic illness, planning for the future, what caregiver support is available in your area, tools for taking care of yourself and a caregiver resource kit.


Department of Health and Human Services

  • The Department of Health and Human Services is responsible for public health in the United States and provides support and protection to older Americans.


Eldercare Locator

  • Eldercare Locator is a public service of the U.S. Administration on Aging. This site connects older Americans and their caregivers with sources of information on senior services. The service links those who need assistance with state and local area agencies on aging and community-based organization that serve older adults and their caregivers.


Family Caregiver Alliance

  • FCA is a public voice for caregivers. FCA pioneers programs in information, education, services, research and advocacy to support and sustain the important work of families nationwide who are caring for loved ones with chronic, disabling health conditions.



  • Find more resources from a list of links from Medline Plus


National Alliance for Caregiving (NAC)

  • NAC educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.


National Family Caregivers Association

  • Strives to educate, support, empower and advocate for caregivers


Partnership for Prescription Assistance

  • Caregivers can help patients determine which programs may be available and assist patients in answering questions and filling out forms with the online applications wizard.  This site lists programs that are helpful to people without insurance and less than 200% poverty income level. Although none of the three Alpha-1 augmentation therapies are availible in any of these programs. It would be helpful to those Alpha's not on augmentation therapy that fall within the income parameters with no insurance coverage.

  • is an informative, comprehensive guide helping both retirees and their loved ones navigate the years of retirement, with a specific section dedicated to Medicare information ( that is continuously being updated.


Social Security

  • The official Web site of Social Security provides useful benefit information on retirement, disability and survivor's benefits, and other online services


Third Age

  • An all-encompassing website on health, wellness, relationships and more for thirdagers


Today’s Caregiver Magazine

  • Provider of information, support and guidance for family and professional caregivers


US Department of Health & Human Services

  • Access the National Family Caregiver Support Program


Well Spouse Association

  • The Well Spouse Association is the only national organization focusing exclusively on the needs of all spouses caring for a chronically ill and/or disabled husband, wife, or partner. Let others who have "been there and done that" help you face the challenges of long-term caregiving.