Private Health Insurance Toolkit

Private Health Insurance Toolkit Cover

Having the tools you need to select the right health care plan for you and your family is very important. As the U.S. health care system undergoes changes, one important change is that individuals and small businesses will shop for and purchase health insurance through a state insurance exchange. Those affected by Alpha-1, as well as other rare disorders, need to make educated decisions on their coverage options. The Alpha-1 Association's Private Health Insurance Toolkit is to provide you with the information and resources to help you make the best possible choices in selecting a private health insurance plan.


It is essential to understand your family's current utilization of healthcare and learn to evaluate and compare medical insurance plans available in your area. The selection of an appropriate insurance plan can affect the health and finances of both the Alpha-1 patient and their family. This toolkit contains information, facts, resources and worksheets to compare the plans available to you.


For questions about the Toolkit, contact Barbee Bennington at 1-855-351-6610 or email:


  1. If you would like to request a copy, please click here.
  2. If you would like to print out a soft copy, please click here.


The Alpha-1 Association gratefully recognizes the following sponsors that made this publication possible. Baxter Healthcare Corporation, CSL Behring, Grifols Therapeutics Inc.


Content for this Private Health Insurance Toolkit was collected in collaboration with the Georgetown Health Policy Institute's and the American Plasma Users Coalition's (A-PLUS) State Exchange Project.

Special Thanks goes to: Accredo Health Group, Inc., Baxter Healthcare Corporation, Caring Voice Coalition, Dohmen Life Science Services, Coram Specialty Infusion Services, National Hemophilia Foundation, Patient Services, Inc.

The framework for this Private Health Insurance Toolkit was graciously provided by the National Hemophilia Foundation ©