Rare Disease Day 2021
On February 28th, 2021, people living with rare diseases – along with patient organizations, politicians, caregivers, medical professionals, researchers and industry – come together in solidarity to raise awareness of rare diseases, including Alpha-1 Antitrypsin Deficiency (Alpha-1).
This year’s theme for Rare Disease Day (2021) is “Redefining the Word Rare,” focusing on the rare disease community and highlighting individual stories of people living with a rare disease. In light of the current global pandemic, this will be the first-ever all-digital Rare Disease Day.
Rare is Many
Rare is Strong
Rare is Proud
Rare Disease Day at NIH
Join us on Monday, March 1, 2021 for Rare Disease Day at NIH, which will be held virtually from 10:30 a.m. to 5:30 p.m. EST. The agenda will be full of informative and timely presentations, including from Robert A. Sandhaus, MD, PhD, Clinical Director of the Alpha-1 Foundation, and Alpha-1 patient Lisa Kosak.
Share Your #AlphaStory of Living with a Rare Disease Below!
Days until Rare Disease Day