Alpha-1 News Newsletter

Karen coverAlpha-1 Association's Quarterly Alpha-1 News Newsletter serves as a vehicle to educate, encourage and inform the Alpha-1 community on a wide array of Alpha-1 related topics. Please feel free to print or share the newsletters displayed below:

 

February 2014 - Volume 26 - Issue 1

Contents include:

  • Karen Erickson: "Life is a Gift" by Cathy Carlomagno
  • Message from the Executive Director by Marlene Erven
  • Public Policy Update by Miriam O'Day
  • In Their Own Words by Nora Roy
  • Alpha-1 Kids Artfully Drive Awareness at NASCAR by Jen Childress
  • The 2013 Alpha-1 Awareness Campaign by Jonathan Welsh
  • Support Group Update by Barbee Bennington
  • Research Corner: A promising initial set of experiments in the field of Alpha-1 liver by Alpha-1 Foundation
  • Ask An Alpha Doc by Dr. Ginger Clark
  • In the Know: Food that Loves You Back - Digestion, Health and COPD by Alina Zhukovskaya
  • 2014 Calendar

 


August 2013 - Volume 23 Issue 3

The contents include:

  • The Shifting Landscape of Health Care by Cathy Carlomagno
  • Message from the Executive Director by Marlene Erven
  • Public Policy Update by Miriam O’Day
  • In Their Own Words by Cathy Gould
  • Alpha-1 Through the Years: A Patient Perspective by Dell Witcher
  • Support Group Update by Barbee Bennington
  • Talking to Kids about Alpha-1 by Jen Childress
  • In Memory/In Honor/Patrons Donors
  • Intimacy and Alpha-1 by Bonnie Chakravorty
  • Ask An Alpha Doc by Dr. Mark L. Brantly and Dr. Robert Sandhaus
  • Research Corner: Announcing the Results of the RAPID Trial by Alpha-1 Foundation
  • 2013 Calendar of Upcoming Events

 

April 2013 - Volume 23 Issue 2

The contents include:

  • The Alpha-1 Experience in the International Community
  • Message from the Executive Director
  • Public Policy Update
  • In Their Own Words
  • Facebook as a Global Community for Alphas
  • Support Group Update
  • Promoting a Healthy Lifestyle in Youth with Alpha-1
  • In Memory/In Honor/Patrons Donors
  • Research Corner: ChiLDREN Study Needs Volunteers for Liver Research
  • Ask An Alpha Doc
  • In the Know: Successful, Effective Support Group Leaders
  • 2013 Calendar of Upcoming Events

 

January 2013 - Volume 25 Issue 1

The contents include:

  • Battling Depression
  • Message from the Executive Director
  • Public Policy Update
  • In Their Own Words
  • Alpha-1: 50 Years of Discovery
  • Support Group News
  • Statement of Financial Position
  • In Grateful Recognition: Donor Gallery
  • Alpha-1 Takes The Baton From Alpha-1 Kids
  • Research Corner: Alpha Doctors Meet To Discuss CRC partnership
  • Ask An Alpha-Doc
  • In the Know: Aerosol Delivery
  • 2013 Calendar of Upcoming Events

 

September 2012 - Volume 24 Issue 2

The contents include:

  • "Three Paths to a Possible Cure"
  • "Message from the Executive Director"
  • "Public Policy Update: Health Reform Passes, What Now?"
  • "Education Days Report"
  • "New Genetic Counselor"
  • "Support Group News"
  • National Conference Summary
  • In Memory/Honor &Patron/Donors
  • "Research Corner"
  • "Ask-A-Doc"
  • "In the Know: Having Difficult Conversations with Family Members"
  • 2012 Calendar of Upcoming Events

 

April 2012 - Volume 24 Issue 1

The contents include:

  • "Preparing for a Transplant"
  • "National Conference Info: Message from the Executive Director"
  • "Public Policy Update: Affordable Care Act"
  • "In Their Own Words"
  • "Education Days Report"
  • "Support Group Update"
  • Annual Report
  • In Memory/Honor & Patron/Donors
  • Research Corner: The Alpha-1 model is now helping other rare disease patients
  • "Ask-A-Doc" 
  • "In the Know: Medicare Appeals"

 

December 2011 - Volume 23 Issue 2

 The contents include:

  • Celebrating Alpha-1 Awareness Superstars
  • Message from the Executive Director
  • Meet our New Board Members
  • Public Policy Update - The Orphan Drug Act
  • Advocates in Action
  • The First National Education Conference
  • Support Group Update
  • Educational Scholarship Recipients
  • Research Corner - Repaired Alpha-1 Stem Cells Grow New
  • Ask An Alpha Doc - Panniculitis
  • In the Know - Traveling with oxygen