Alpha-1-To-One magazine is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.
In the Spring 2022 issue:
In this issue of the Alpha-1-to-One Magazine, we look forward to 2022 and all the opportunities that await us! Scott Santarella, President & CEO of the Alpha-1 Foundation, outlines his vision for the Foundation and the Alpha-1 community. Dr. Robert A. Sandhaus gives an in-depth explanation of COVID-19 therapies, treatments, and preventative measures, while Dr. Nooralam Rai gives an update on pediatric COVID-19 vaccines. The Foundation is also excited to announce the 2022 Hybrid Alpha-1 National Conference in this issue!
All of our educational and research brochures are available for download. You can also request printed brochures. To start your download, click on any of the links below.
To request publications, please contact Joy Collins at jcollins@alpha1.org or 305-648-9533. Please specify publication title and quantity needed. Allow 5-7 business days for delivery.
E-Education
Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.
This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.
Alpha-1 Kids Publications
For more Alpha-1 Kids information and to view the Alpha-1 Kids page, click here.
Life Choices
Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.
Life Choices includes a Five Wishes Living Will which “helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person’s needs: medical, personal, emotional and spiritual.”
