Vertex Advances Program Targeting Alpha-1 Antitrypsin Deficiency
- Initiates first-in-human trial of next-wave AAT corrector, VX-634 - Phase 2 study evaluating the impact of longer-term treatment with VX-864 to be initiated in the coming weeks - Additional AAT correctors to enter the clinic starting in 2023 “The Alpha-1 Foundation...
C-Path to Lead Pre-Consortium Aimed at Transforming, Accelerating Medical Product Development in Alpha-1 Antitrypsin Deficiency
TUCSON, Ariz., Oct. 6, 2022 — Critical Path Institute (C-Path) today announced that it has recently launched a pre-consortium collaboration with the U.S. Food and Drug Administration’s (FDA) Center for Biologics Evaluation and Research (CBER) and Center for Drug...
How to Make an Impact by Getting Involved in Alpha-1 Advocacy
Following a successful September Advocacy Workshop in Washington DC, the Alpha-1 Foundation has gained significant momentum on the advocacy front, doubling the number of co-sponsors for the John W. Walsh Alpha-1 Home Infusion Act to 12. As we enter the busy Fall...
Inhibrx Shares Jump Premarket After Talks With FDA on INBRX-101
“The Alpha-1 Foundation is pleased with the FDA’s indication of a potential for accelerated approval of INHBRX -101. A1F values our strong working relationship with FDA leadership on behalf of our patient community and we are grateful to all of our partners focused on...
Raising Alpha-1 Awareness at Drive-In Movie Night
FOR IMMEDIATE RELEASE In honor of their father’s 80th birthday, Donald Helms Jr. and Donna Flowers are determined to spread awareness and raise funds for Alpha-1 by organizing a Drive-In movie night. On Thursday, October 27th at 7:00 pm at Hulls Drive-In, The Helms...
Climbing for a Cure #Alpha1ClimbingforaCure
FOR IMMEDIATE RELEASE September 30, 2022- Paul Kosak will be climbing Mount Kilimanjaro an epic adventure starting October 15th with his close friends, Walk Kelleher and Tony Shahl to raise awareness and funds for Alpha-1 Antitrypsin Deficiency. Mount Kilimanjaro is...
2022 Escape to the Cape is here!
FOR IMMEDIATE RELEASE September 23, 2002- The Alphas are headed to the Cape Cod, Massachusetts this weekend for the annual Escape to the Cape Bike Trek after a 3-year hiatus due to the pandemic. In its 26th year, Team Alpha-1 is ready for a great weekend of riding for...
Alphas Taking Action in Washington D.C.
Alpha-1 patient advocates, Foundation staff, and industry representatives ascended to Capitol Hill to partake in the 2022 Alpha-1 Advocacy Workshop from September 12-13, 2022. This marks the first in-person Alpha-1 advocacy event in several years. An Alpha-1 Hill Day...
Remembering Laura Pearson
The Alpha-1 Foundation is sad to announce that Laura Pearson passed away on September 11, 2022. Laura was a part of the Alpha-1 Foundation office family and served as the Florida Detection Coordinator for the State of Florida Detection Program. Laura retired from her...
