NBCNews.com Article: As Coronavirus Spreads, Immunocompromised Young People Ask Peers to Keep Them In Mind
For many immunocompromised people, social distancing isn’t a new endeavor. Alpha-1 Antitrypsin Deficiency is sometimes called an “invisible disability”. This is one of these times where is so important for society to help “flatten the curve” and protect those that are...
THURSDAY, MARCH 12 COVID-19 Update from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 12, 2020 Please note, this statement is specific to the United States. If you are an individual with Alpha-1 Antitrypsin Deficiency (Alpha-1) living outside the U.S., please see the specific statements from the health agencies and Alpha-1...
COVID-19 Update from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 9, 2020 Please note, this statement is specific to the United States. If you are an individual with Alpha-1 Antitrypsin Deficiency (Alpha-1) living outside the U.S., please see the specific statements from the health agencies and Alpha-1...
Grifols Update Regarding the Novel Coronavirus
As the situation with the novel coronavirus rapidly evolves, we wanted to inform you that Grifols is taking measures in line with recommendations from the World Health Organization (WHO) to help ensure the safety of our employees, donors, products, and the patient...
Don’t be green with envy… Join us this Saturday for the 2020 Celtic Connection
March 4, 2020- The 2020 Celtic Connection will take place this Saturday, March 7th at the Boston Marriott Newton to raise awareness and funds for Alpha-1 Antitrypsin Deficiency. Come out to support the 12th annual Building Friends for a Cure event while celebrating...
Update on 2019 novel coronavirus from the Alpha-1 Foundation & AlphaNet
STATEMENT UPDATED: March 2, 2020 The current outbreak of 2019 novel coronavirus (COVID-19) was first identified in China but has now spread internationally, impacting an increasing number of countries. In the upcoming days and weeks, the Center for Disease Control has...
Rare Disease Day 2020
WHO: The Alpha-1 Community! Every Alpha, family member, caregiver, friend, healthcare professional researcher and industry member can participate. The Alpha-1 Foundation in conjunction with the National Organization for Rare Disorders (NORD) will spread awareness...
Are You Informed: Clinical Trials
A clinical trial is a research study in which one or more human subjects are prospectively assigned to one or more interventions to evaluate the effects on health-related biomedical or behavioral outcomes. When you volunteer to take part in clinical research, you help...
2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies
Recent international reports have highlighted the emergence of a new coronavirus in Wuhan, Hubei Province, China. The 2019 Novel Coronavirus (2019-nCoV) was first identified by Chinese authorities in December 2019 and since then has been associated with pneumonia in...
