Determining Who Gets the Vaccine
Readers discuss equity issues in U.S. eligibility and the decision to send some of the U.S. stockpile to other countries. To the Editor: Re “U.S. Rushes to Expand Covid Vaccine Eligibility in a ‘Race Against Time’” (nytimes.com, March 19): It is encouraging to read...
Statement of Confirmation of Secretary Becerra and Calling for Swift Appointment of a Permanent FDA Commissioner
The Alpha-1 Foundation is proud to share this correspondence from our membership organization. Statement of Confirmation of Secretary Becerra and Calling for Swift Appointment of a Permanent FDA Commissioner March 18, 2021 The Honorable Xavier Becerra Secretary U.S....
Happy St. Patrick’s Day from The Alpha-1 Foundation
Happy St. Patrick’s Day from the Alpha-1 Foundation St. Patrick’s Day is celebrated annually on March 17, the anniversary of St. Patrick’s death in the fifth century. Saint Patrick was a fifth-century Romano-British Christian missionary and bishop in Ireland. Known as...
2021 Celtic Connection Shillelagh Award Presented to COVID-19 Researchers and Frontline Workers
Announcing the 2021 Celtic Connection Shillelagh Award: Dedicated to our COVID-19 Researchers and Frontline Workers The 13th Annual Celtic Connection took place on Saturday, March 13th as a completely virtual event. The event committee joined together to plan this...
What does the COVID relief bill mean for rare disease patients?
The Alpha-1 Foundation received the following correspondence from the National Organization for Rare Disorder's policy team on March 12th, 2021: President Biden signed the American Rescue Plan into law on Thursday, March 11th! This law contains many important...
The Alpha-1 Foundation Mourns the Loss of Veteran Coordinator Gayle Tipper
It is with great sadness that we share the news that veteran AlphaNet Coordinator Gayle Allison Tipper passed away on March 9, 2021. Gayle joined AlphaNet in 1999 and devoted more than 21 years to serving the Alpha-1 community. Gayle was deeply passionate about...
Congress Introduces STAT Act
The Alpha-1 Foundation has received the following correspondence from the EveryLife Foundation regarding the introduction of the STAT Act: I am excited to share that the Speeding Therapy Access Today (STAT) Act of 2021, H.R. 1730 / S. 670 was officially introduced...
Professor Gerry McElvaney wins HRB Impact Award 2021
Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact Award 2021 by the Health Research Board (HRB). The award recognizes the lasting impact Prof. McElvaney has had on people’s health and...
Join us for the 2021 Celtic Connection from home!
The annual Celtic Connection will take place virtually on ZOOM on Saturday, March 13, 2021. The evening will begin at 7:00 PM ET. Join us from the comfort and safety of your own home and enjoy an evening celebrating Irish Heritage. Hear from guest speakers,...
