Are You Informed: Clinical Trials
A clinical trial is a research study in which one or more human subjects are prospectively assigned to one or more interventions to evaluate the effects on health-related biomedical or behavioral outcomes. When you volunteer to take part in clinical research, you help...
2019 Novel Coronavirus (2019-nCoV) and Plasma Protein Therapies
Recent international reports have highlighted the emergence of a new coronavirus in Wuhan, Hubei Province, China. The 2019 Novel Coronavirus (2019-nCoV) was first identified by Chinese authorities in December 2019 and since then has been associated with pneumonia in...
The Alpha-1 Foundation celebrates its 25th anniversary
Miami, January 31, 2020 - The Alpha-1 Foundation is proud to celebrate its 25th Anniversary. On January 31, 1995, the Alpha-1 Foundation was incorporated as a not-for-profit organization by its three co-founders, John W. Walsh, Sandy Lindsey, and Susan Stanley. The...
Grifols’s Prolastina approved for use in Denmark
The Alpha-1 Foundation is proud to report that multinational pharmaceutical manufacturer Grifols also received approval by the Danish Medicines Council for Prolastina, a plasma-derived drug used for augmentation therapy. The Danish Medicines Council, citing a...
CSL Behring’s Respreeza gains approval in Denmark
Blood products and vaccines specialist CSL Behring announced that the Danish Medicines Council has published its final decision, approving human Alpha-1 Antitrypsin (AAT) therapy and Respreeza as standard treatment for slowing the progression of emphysema arising from...
Jonathan Maidment goes for the Triple Crown of Hiking
Miami, Jan. 13, 2020 - Jonathan Maidment will return to the trails again in 2020! He is pleased to announce that he will be hiking the Continental Divide Trail, which consists of 3,100 miles between Mexico and Canada through the United States, along the Rocky...
Q&A: Alphas, seasonal flu and winter wellness
Cold weather conditions can worsen symptoms for lung affected Alphas and for patients with chronic obstructive pulmonary disease (COPD), as low temperatures can often lead to fatigue and windy days can cause shortness of breath. Also, the dry winter air can have an...
The Celtic Connection 2020
Celebrate Irish Heritage by observing St. Patrick's Day with friends and family to benefit Alpha-1 research and programs! Enjoy the traditional Irish dinner with live music by "Hogan's Goat", Irish step dancers and music. Join us in recognizing this year's recipients...
Are you in the Patient Notification System?
The Patient Notification System (PNS) is a free, confidential, 24-hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls, via email and soon with text messages. The system was created in 1998 to provide...
