NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA)
The Fiscal Years 2023–2027 NIH-Wide Strategic Plan for Diversity, Equity, Inclusion, and Accessibility (DEIA) (the Plan) articulates NIH’s commitment to embracing, strengthening, and integrating DEIA across all NIH activities to achieve the agency’s mission. It...
Celtic Connection honors Dr. James K. Stoller with Shillelagh Award
On this St. Patrick’s Day, we are lucky and grateful for the outstanding commitment of the Alpha-1 community. Over 235 people joined together on Saturday, March 11th for the 14th Annual Celtic Connection in Boston, Massachusetts. This outstanding Building Friends for...
Nationwide Albuterol Shortage: What you need to know
We are writing to let you know that there is a nationwide shortage of albuterol. Albuterol is used to treat asthma symptoms, which could potentially heighten with more pollen in the air triggering allergies. The resources listed below can help you make the...
Get ready for the 2023 Celtic Connection- Saturday, March 11th
The 14th Annual Celtic Connection will take place this weekend on Saturday, March 11th in Boston, Massachusetts. For the first time since 2019 the event will take place in person! The event committee has joined together this year to plan another outstanding Building...
Today is Rare Disease Day!
Today, the Alpha-1 Foundation - along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry- will come together in solidarity to raise awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1) as one of these rare...
CHEST publication: The Challenges of Rare Diseases by James K. Stoller, MD
Rare diseases pose particular challenges to patients who are affected, to the clinicians who care for them, and to the investigators who study their conditions. Although individually uncommon, rare diseases are common in the aggregate, with approximately 7,000...
Increase Alpha-1 Awareness on Rare Disease Day 2023
Rare Disease Day takes place on the last day of February each year. The goal of this day is to increase and generate positive action for the rare disease community. On February 28, 2023, the Alpha-1 Foundation--along with Alphas, patient organizations, politicians,...
Patient Community Healthcare Priorities for the 118th Congress
February 13, 2021 The Honorable Charles Schumer The Honorable Mitch McConnell U.S. Senate U.S. Senate Washington, DC...
Department of Health & Human Services Releases Initial Guidance for Medicare Prescription Drug Inflation Rebate Program
Under President Biden’s prescription drug law, drug companies will pay rebates to the federal government for raising prescription drug prices faster than the rate of inflation As part of President Biden’s historic Inflation Reduction Act, the nation’s new prescription...
