CDC Updated Post Vaccine Guidance
Summary of major changes: Beginning two weeks after the second dose of a two dose vaccine, it will not be necessary for a fully vaccinated individual to quarantine after exposure to a known COVID-19 individual unless symptoms develop or unless the exposure took place...
ZEMAIRA Alpha-1 Proteinase Inhibitor (Human) Update
January 21, 2021- We have become aware today of this voluntary Class II recall from CSL Behring. Please see full statement below issued from CSL Behring for additional information. A Class II recall by FDA definition is a situation in which use of or exposure to a...
Alpha-1 Foundation Joins Coalition of Patient Organizations in Congratulating Dr. Janet Woodcock, Acting Commissioner of the Food and Drug Administration
January 21, 2021 President Joseph Biden 1600 Pennsylvania Ave., NW Washington, DC 20500 Dear President Biden, We, the undersigned patient organizations, are writing to applaud your appointment of Dr. Janet Woodcock for the position of Acting Commissioner of the Food...
Vaccine Allocation Letter to the CDC Advisory Committee on Immunization Practices (ACIP)
January 22, 2021 CDC Advisory Committee on Immunization Practices [Docket No. CDC–2021–0002] Federal Register RE: Individuals with Alpha-1 Antitrypsin Deficiency (the leading genetic risk factor for developing COPD) need priority access to COVID-19 vaccine Dear...
The Alpha-1 Community Mourns the Loss of Darrell Nall
It is with great sadness that we share the news that long-time AlphaNet Coordinator Darrell Nall passed away on Sunday, January 17th at the age of 69. Darrell was a friend to many and was known for his generous spirit and his tireless commitment to helping his fellow...
Vaccine Letter for Alpha-1 Patients
The Alpha-1 Foundation has created a letter template for Alpha-1 patients to qualify for early immunization against COVID-19. The Centers for Disease Control and Prevention (CDC), the National Academy of Medicine, and state health authorities have worked hard to...
The Alpha-1 Community Mourns the loss of Karen L. Fraser
It is with great sadness that we share the news that Karen L. Fraser passed away on January 2, 2021. Karen was a beloved member of the Alpha-1 community and a cherished friend to many. Her life was devoted to helping and taking care of others and she will be greatly...
NBC Connecticut Coverage- Hiking for a Cure: Bolton’s Jonathan Maidment Completes the ‘Triple Crown’
https://www.nbcconnecticut.com/news/sports/hiking-for-a-cure-boltons-jonathan-maidment-completes-the-triple-crown/2393994/?fbclid=IwAR0xrMx0SXiasTaR2wig3psrNf__2ncTJBWHkE35tXb6_2DQwoStjBeBER4 Jonathan Maidment wasn't much of a hiker. “I was always the slow guy,” said...
Ad Hoc Group Statement on NIH Funding in Year-End Legislation
December 22, 2020 – The Ad Hoc Group for Medical Research issued the following statement in response to funding included for the National Institutes of Health (NIH) in the Consolidated Appropriations Act, 2021, passed by the House of Representatives and Senate on...
