The Ad Hoc Group Fiscal Year 2023 Recommendation
The Alpha-1 Foundation signed on with nearly 400 organizations and institutions that signed on to the Ad Hoc Group’s FY 2023 funding recommendation for the National Institutes of Health (NIH)! The 369 undersigned members of the Ad Hoc Group for Medical Research, which...
ATS Patient Education: Information Series- MZ Alpha-1 Antitrypsin Deficiency
The American Thoracic Society produces the ATS Patient Education Series as a resource for patients, families and caregivers. The attached recent article titled” MZ Alpha-1 Antitrypsin Deficiency” was co-authored by leading Alpha-1 physicians experts including Oliver...
COVID-19 Therapies, Treatment & Prevention
It is hard to imagine that it has been two years since our lives changed completely due to the onset of SARS-CoV-2, COVID-19. The pandemic has halted our lives for over two years. At different times, we have witnessed surges in all parts of the world and in all cities...
2022 Improving Care for Alpha-1 Patients Global Webinar
In anticipation of the 2022 European Alpha-1 Awareness Day on Monday, 25 April 2022, Alpha-1 Global hosted the Improving Care for Alpha-1 Patients webinar. This marks the 5th year that Alpha-1 Global has hosted an event to commemorate Awareness Day. In lieu of the...
The Alpha- 1 Community Mourns the Loss of Ab Rees
It is with great sadness that we share the news that Ab Rees passed away on April 14, 2022. Ab was a valuable member of the Alpha-1 community and was an active AlphaNet Board member. Ab’s contributions to the Alpha-1 community were innumerable. He joined the AlphaNet...
HEART Act introduced in the Senate
April 12, 2022- The Alpha-1 Foundation congratulates the Haystack Project on the Senate introduction of H.R. 6888- Helping Experts Accelerate Rare Treatments Act of 2022 by Senators Casey (PA) and Scott (SC). The HEART Act enjoys a broad coalition of rare and...
Updated COVID Guidance & Recommendations for Alphas
April 8, 2022- Important COVID-19 Omicron Variant Update At the beginning of 2022 an Omicron variant caused a surge in cases. Patients infected with this variant development mild illness. Most recently, a second variant has taken over which is another form of Omicron....
Alphas in Action Advocacy Week
On Monday, April 4, 2022, the Alpha-1 community came together on a Zoom reception call to kick-off the Spring 2022 Advocacy campaign. Titled “Alphas in Action” this week-long campaign was aimed to gain additional co-sponsors for HR 7346: John W. Walsh Alpha-1 Home...
The Floridian: Elvira Salazar, Pingree Tackle Alpha-1 Home Infusion Act
THE FLORIDIAN April 1, 2022- Florida Rep. Maria Elvira Salazar (R), working alongside Minnesota Rep. Chellie Pingree (D), has introduced the John W. Walsh Alpha-1 Home Infusion act. The bipartisan effort “would allow Medicare beneficiaries struggling with the...
