Breaking News: Jonathan Maidment, first person with a rare disease to achieve the Triple Crown of Hiking
FOR IMMEDIATE RELEASE November 19, 2020- After hiking the Continental Divide for the past five months, Jonathan Maidment completes his third hiking journey and achieves the Triple Crown! Maidment adds this last hike of the Continental Divide Trail to complete this...
Medicare: Open Enrollment for 2021
Medicare Open Enrollment begins on October 15, 2020 and ends on December 7, 2020. During this time, Medicare beneficiaries can compare coverage options like Original Medicare and Medicare Advantage and choose health and drug plans for 2021. Medicare health and drug...
AlphaNet Honors Joe Zuraw with Donation to John W. Walsh Translational Research Fund and Annual National Conference Travel Fund for Alphas
"Joe Zuraw has been a friend to the Alpha-1 Community for more than 20 years, he has worked tirelessly on behalf of patients his entire career. This honor could not be a better tribute to both Joe and also towards the John W. Walsh Translational Research Award. These...
Plasma Protein Therapeutics Association (PPTA) Statement on the Urgent Need for Plasma Donation
COVID-19 continues to present a prolonged, global public health emergency, but PPTA remains steadfastly committed to its mission to promote the availability of — and access to — safe and effective plasma protein therapies for all patients. PPTA member companies...
Announcing the Establishment of the Alpha-1 Foundation Therapeutic Development Network (TDN)
FOR IMMEDIATE RELEASE November 2, 2020- The Alpha-1 Foundation is proud to announce the establishment of the Alpha-1 Foundation Therapeutic Development Network (TDN). The Alpha-1 TDN is a collaborative group comprised of the top specialists, researchers and our...
Get excited for November Alpha-1 Awareness Month!
Miami, October 30, 2020 – Each year, the Alpha-1 Foundation recognizes November as Alpha-1 Awareness Month in order to raise awareness for Alpha-1 Antitrypsin Deficiency (Alpha-1) around the United States. This special month is commemorated by the wide variety of...
Vertex Provides Update on its Clinical Programs Targeting Alpha-1 Antitrypsin Deficiency
“We are grateful for Vertex’s expedited and direct communication with the Alpha-1 Community in releasing the attached statement about discontinuing their clinical trial of VX-814 targeting the small molecule correction of alpha-1 antitrypsin deficiency (AATD). Vertex...
Takeda and Arrowhead Collaborate to Co-Develop and Co-Commercialize ARO-AAT for Alpha-1 Antitrypsin-Associated Liver Disease
“The announcement today of the collaboration between Takeda and Arrowhead for a licensure deal for ARO-AAT, a phase 2 investigational RNA interference (RNAi) therapy for Alpha-1 liver disease is met with great excitement. Both companies are long standing partners...
Former Tigers coach rides for Alpha-1
To look at him, Don Davis seems fine. He has been a part of the Tunkhannock Area School District landscape for as long as people can remember, as a student, athlete, teacher, coach, scorekeeper, and fan. But in 1988, Davis, 71, was diagnosed with Alpha-1. Alpha-1, or...
