Virtual Alpha-1 National Conference: Day 3 Recap
From the Desk of Miriam O'Day: Day three of the conference kicked off with an incredible presentation from keynote speaker, Dr. Scott Gottlieb, Former Commissioner of the Food and Drug Administration (FDA) on the Perspective on Pressing Public Health Matters Facing...
Virtual Alpha-1 National Conference: Day 2 Recap
Day 2 Recap "I have enjoyed all of the sessions and presentations. Such excellent questions from the community!" - An attendee from the...
Virtual Alpha-1 National Conference: Day 1 Recap
"All of our experts have been so generous with their genius." - Richard Lovrich, Alpha-1 patient. Thank you for registering and joining us for the first Virtual Alpha-1 National Conference. Today was exciting! I loved opening my laptop and chatting with Alphas from...
Be Part of the First Ever Virtual Alpha-1 National Conference…. Here’s Why
The Alpha-1 Foundation is excited to launch the first ever Virtual National Conference. In 2020, we have provided the entire Alpha-1 Community a new way to be a part of this annual event. For 29 years, Alphas have been able to attend this conference in person and...
Publication in “Gastroenterology”: Study on Liver Involvement in mild Alpha-1 Antitrypsin Deficiency
Study on liver involvement in mild alpha-1-antitrypsin deficiency published in "Gastroenterology” The Alpha1-Liver Team from Aachen, Germany, which coordinates the European study group for alpha1-antitrypsin deficiency-related liver disease, has published the latest...
MEDICARE AND MEDICAID PROGRAMS; POLICY AND REGULATORY REVISIONS IN RESPONSE TO THE COVID-19 PUBLIC HEALTH EMERGENCY
The 26 undersigned organizations are pleased to submit our comments on the Centers for Medicare & Medicaid Services’ (CMS’) continuing action to protect the health and safety of patients during the COVID-19 disease public health emergency (PHE). We believe that...
COVID Survivors’ Blood Plasma Is A Sought-After New Commodity
Diana Berrent learned she had tested positive for COVID-19 on a Wednesday in mid-March. Within a day, she had received 30 emails from people urging her to donate blood. Friends and acquaintances, aware of her diagnosis, passed along a pressing request from New York’s...
Compassion is a Key Weapon Helping Us Defeat the Coronavirus: James K. Stoller, Peter J. Rea and Alan Kolp
Co-authored by Alpha-1 Foundation Board of Director James Stoller, MD, MS CLEVELAND -- Tips to avoid becoming infected with COVID-19 are straightforward – social distancing, wash your hands thoroughly, don’t touch your face. These are all helpful...
2020 European Alpha-1 Awareness Day
25 April 2020 marked the third annual European Alpha-1 Awareness Day, a date in which those afflicted with the genetic condition Alpha-1 Antitrypsin Deficiency (AATD) come together as one community to share their stories, experiences and hardships. The goal of this...
