National Pulmonary Rehabilitation Wellness Day on Wednesday, April 7th
Over 16 million people in the US have COPD1 and up to 60% of COPD cases go undiagnosed. According to the World Health Organization, COPD is the third leading cause of death globally. COPD continues to be a leading cause of disabling symptoms and suffering. Pulmonary...
Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462
The Alpha-1 Foundation has received the following correspondence from Grifols on March 26, 2021: March 26, 2021 RE: Voluntary Withdrawal of Gamunex-C Lot No. A3GLE01462 As part of our ongoing commitment to patient safety and product quality, Grifols recently...
Sign-On Letter to President Biden on the RISE Act
March 24, 2021 President Joe Biden The White House 1600 Pennsylvania Avenue, N.W. Washington, D.C. 20500 Dear President Biden: On behalf of Research!America and the organizations below, we are writing to respectfully request that you champion the Research Investment...
“Building on the ACA: Legislation to Expand Health Coverage and Lower Costs
March 22, 2021 The Honorable Frank Pallone Chairman Committee on Energy and Commerce 2125 Rayburn House Office Building Washington, DC 20515 The Honorable Anna Eshoo Chairwoman, Health Subcommittee Committee on Energy and Commerce 272 Cannon House Office Building...
Determining Who Gets the Vaccine
Readers discuss equity issues in U.S. eligibility and the decision to send some of the U.S. stockpile to other countries. To the Editor: Re “U.S. Rushes to Expand Covid Vaccine Eligibility in a ‘Race Against Time’” (nytimes.com, March 19): It is encouraging to read...
Statement of Confirmation of Secretary Becerra and Calling for Swift Appointment of a Permanent FDA Commissioner
The Alpha-1 Foundation is proud to share this correspondence from our membership organization. Statement of Confirmation of Secretary Becerra and Calling for Swift Appointment of a Permanent FDA Commissioner March 18, 2021 The Honorable Xavier Becerra Secretary U.S....
Happy St. Patrick’s Day from The Alpha-1 Foundation
Happy St. Patrick’s Day from the Alpha-1 Foundation St. Patrick’s Day is celebrated annually on March 17, the anniversary of St. Patrick’s death in the fifth century. Saint Patrick was a fifth-century Romano-British Christian missionary and bishop in Ireland. Known as...
2021 Celtic Connection Shillelagh Award Presented to COVID-19 Researchers and Frontline Workers
Announcing the 2021 Celtic Connection Shillelagh Award: Dedicated to our COVID-19 Researchers and Frontline Workers The 13th Annual Celtic Connection took place on Saturday, March 13th as a completely virtual event. The event committee joined together to plan this...
What does the COVID relief bill mean for rare disease patients?
The Alpha-1 Foundation received the following correspondence from the National Organization for Rare Disorder's policy team on March 12th, 2021: President Biden signed the American Rescue Plan into law on Thursday, March 11th! This law contains many important...
