CSL Behring’s Respreeza gains approval in Denmark
Blood products and vaccines specialist CSL Behring announced that the Danish Medicines Council has published its final decision, approving human Alpha-1 Antitrypsin (AAT) therapy and Respreeza as standard treatment for slowing the progression of emphysema arising from...
Jonathan Maidment goes for the Triple Crown of Hiking
Miami, Jan. 13, 2020 - Jonathan Maidment will return to the trails again in 2020! He is pleased to announce that he will be hiking the Continental Divide Trail, which consists of 3,100 miles between Mexico and Canada through the United States, along the Rocky...
Q&A: Alphas, seasonal flu and winter wellness
Cold weather conditions can worsen symptoms for lung affected Alphas and for patients with chronic obstructive pulmonary disease (COPD), as low temperatures can often lead to fatigue and windy days can cause shortness of breath. Also, the dry winter air can have an...
The Celtic Connection 2020
Celebrate Irish Heritage by observing St. Patrick's Day with friends and family to benefit Alpha-1 research and programs! Enjoy the traditional Irish dinner with live music by "Hogan's Goat", Irish step dancers and music. Join us in recognizing this year's recipients...
Are you in the Patient Notification System?
The Patient Notification System (PNS) is a free, confidential, 24-hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls, via email and soon with text messages. The system was created in 1998 to provide...
Virtual Walk 2019: 30 days of awareness
November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72 teams to total 970...
Alpha-1 Awareness Month 2019: Week 4 & Thanksgiving weekend
November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72 teams to total 970...
Alpha-1 Awareness Month 2019: Going strong after week 3
The temperature is getting lower around the country but it is not stopping the momentum of Alpha-1 Awareness Month. Week three joined Alphas, family, and friends for yet another incredibly successful campaign. It is so fun to see each team put their own unique touch...
Knowing is not enough: Act on your family health history
The Centers for Disease Control and Prevention (CDC) published an article about the importance of knowing your family health history and what you can do to prevent certain diseases. Alpha-1 Antitrypsin Deficiency (Alpha-1) is a genetic (inherited) condition that may...
