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Below is the official letter addressed to key leaders in the U.S. Senate and House of Representatives urging support for […]
Read More… from A1F Joins Advocacy Groups in Signing Congressional Letter on Rare Pediatric Program
On September 1, the wheels start turning across the nation as hundreds of riders, families, and supporters join together for […]
The Alpha-1 Foundation (A1F) is excited to announce the formation of AlphaDetect, a new non-profit subsidiary of A1F, to lead a […]
Read More… from Alpha-1 Foundation Launches Innovative New Model for Centralized Detection
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
The Alpha-1 Foundation’s annual Bettina B. Irvine Golf Invitational returned to Greenwich on May 28th, raising critical funds and awareness […]
Read More… from Alpha-1 Foundation Honors Kenneth and Bettina Irvine at Annual Golf Invitational
Monday, July 21st, 2025- Betsy Scher and The Highland Park, Illinois community came together in the sweetest way—at Ice Cream […]
Read More… from Alpha, Betsy Scher Shares Sweet Support for Alpha-1
It is with great sadness that we share the news that AlphaNet Coordinator Kathie Sivesind passed away on July 17, […]
The Alpha-1 Foundation had the pleasure of meeting Richie Ramirez at the Alpha-1 National Conference, where his passion and story left a […]
Read More… from Richie Ramirez’s Alpha Story Featured on CBS Mornings
At just two years old, Richard “Richie” Ramirez was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that […]
Read More… from Richie’s Ice Cream for Alpha-1 Raises Over $2,100
More than 1.5 million Americans rely on supplemental oxygen to breathe. But right now, outdated Medicare rules and poor reimbursement […]
Read More… from Tell Congress: Support the SOAR Act and Fix Supplemental Oxygen Access
Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic condition that can lead to serious lung and liver disease, is featured in the […]
Read More… from Medical Stories Season Premiere Spotlights Alpha-1
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Natasha Durant, Alpha Mom and Co-Leader of the Oregon Alpha-1 Foundation (A1F) Support Group, is helping lead the charge in […]
Read More… from Community Parade in Oregon Drives Awareness for Alpha-1
The Alpha-1 Foundation (A1F) hosted the 2025 A1F National Conference from June 6th through June 8th in Miami, Florida. This year, A1F […]
Read More… from View Photos from 2025 A1F National Conference
We need your voice, now more than ever, to protect the Alpha-1 Community. Congress is actively debating legislation that may […]
Read More… from Alphas, Take Action Today! June 2025 Advocacy Action Alerts
OMAHA, NE — On June 28th, the Big Red Alphas hosted their second annual Ice Cream for Alpha-1 fundraiser at […]
The Alpha-1 Foundation is proud to provide a monthly list of articles from researchers that have been funded by the […]
Stand Up for Science is circulating a letter aimed at collecting individual signatures to support the need for NIH funding. […]
The medical leadership team at the Alpha-1 Foundation has provided an updated Statement for the Alpha-1 Antitrypsin Deficiency Community: Understanding the […]
On Wednesday, May 28th, Ken Irvine, Alpha-1 Foundation Board of Director and his son, Bill Irvine hosted the annual Bettina B. Irvine Invitational Classic […]
Read More… from A1F Honors Kenneth Irvine at the 2025 Bettina B. Irvine Golf Invitational
The Alpha-1 Foundation (A1F) is proud to host the 2025 A1f National Conference from June 6th thru June 8th in Miami, Florida. […]
Read More… from The 2025 A1F National Conference Celebrates 30 Years
On Monday, May 19th, 2025, the Alpha-1 Foundation (A1F) hosted its annual A1F Grants Award Reception at the San Francisco […]
Read More… from A1F recognizes 2025 Grant Award Recipients during ATS
On Sunday, May 18, 2025, more than 100 participants gathered at the Red Devils Softball Field in Brooklyn, New York […]
Read More… from Post-Event Recap: 2nd Annual Walk in Memory of Lorraine Cimino
An exciting national effort is making it easier for patients and caregivers to participate in clinical research. The Champions for Change […]
