More than 100 to hear about rarely-diagnosed condition in San Antonio, TX

David Terry SAN ANTONIO, TX, February 8, 2013 – David Terry was in his mid-60s when he began to experience unusual breathing problems. He had frequent episodes of bronchitis and recurrent boughts of pneumonia. He soon sought a medical explanation and went to a pulmonologist who quickly identified him using a simple blood test as having a type of hereditary lung disease known as Alpha-1 Antitrypsin Deficiency (Alpha-1), a rare genetic condition that can cause life-threatening liver disease in children, and can also lead to severe liver and lung disease in adults.

 

 According to Terry, "Once I was diagnosed, I found out that my lung function was only thirty-percent. Soon afterward, I was put on augmentation therapy, which are weekly IV infusions of alpha-1 antitrypsin derived from human plasma. This prevents my lung function from getting worse. I think Alpha-1 awareness and education are important as an early diagnosis can keep complications at bay. Early diagnosis can also help one live longer with a better quality of life. For those that are newly diagnosed, it is important to recognize your disease, attend an Education day, become involved in the greater Alpha-1 Community and encourage testing. It will improve your life. At an Alpha-1 Education day, one can meet others with Alpha-1, researchers, doctors and more."

 

Terry will be among more than 100 people attending an Alpha-1 Education Day at the Sheraton Gunter San Antonio on 205 East Houston Street in San Antonio, TX on March 23, 2013.

 

Attendees will hear James Stocks, MD, Professor of Medicine, University of Texas Health Center at Tyler. He will speak about Alpha-1 Lung Disease & Clinical Trial Participation. Nasir Sultan Syed, MD, from the North East Methodist Hospital in San Antonio will also be speaking about exercise. During the breaks, patients have a chance to view exhibitor's displays and enjoy a complimentary lunch.

 

To make reservations for the program, contact the Alpha-1 Association at 800-521-3025 ext. 308. Reservations for a free patient dinner held on Friday, March 22nd at 7:00 pm can also be made by contacting the Association. The deadline to register is Monday, March 18th.

 

About the Alpha-1 Association:

The mission of the Alpha-1 Association is to identify those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy, and to encourage participation in research. For information, visit www.alpha1.org.

 

About the Alpha-1 Foundation:

The mission of the Alpha-1 Foundation is to provide the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. For information, visit www.alpha-1foundation.org.

 

For more information about Alpha-1, contact:

Jonathan Welsh, Alpha-1 Association, jwelsh@alpha1.org, 305-648-0088, Ext. 301

Bob Campbell, Alpha-1 Foundation, rcampbell@alpha-1foundation.org, 305-567-9888 ext. 230

 

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