fbpx
Select Page
Alpha-1 Foundation Data Sharing Plan
Doctor

The Alpha–1 Foundation seeks to promote the exchange of data among investigators with the hope and expectation that this will expedite the translation of research findings into scientific knowledge and improved patient care.

Therefore, the Alpha–1 Foundation has established a policy on research data sharing by investigators supported by Alpha–1 Foundation-sponsored grants and contracts. Under this policy, investigators are expected to make their research data available to the scientific community in accordance with applicable privacy and confidentiality guidelines for subsequent analyses and use.

Grant and contract applications must include a data sharing plan that addresses the following questions:

  • What data will be shared?
  • Who will have access to the data?
  • How, where and when can the data be accessed?
  • If there is no plan to share data, what is the justification?

It is up to the investigator to decide how his/her data will be shared. However, the Alpha–1 Foundation recommends the use of its Biomaterials Exchange service as a resource. Sharing of materials and data is not limited to agents, experimental animals, vectors, cell lines, tissues and genomic data, but also includes phenotypic information on human subjects. All data should be de-identified, that is, free of identifiers that would link samples or data to individual research participants.

Sharing data may not always be feasible, appropriate or useful. For example, studies with very small samples or those collecting particularly sensitive data should be shared only if stringent safeguards exist to ensure confidentiality and protect the identity of subjects. Similarly, there might be a need to protect intellectual property and there might be restrictions on data sharing imposed under agreements with third parties. If such or another reason for not sharing data applies, the application must include an explanation.

 

Accreditations

Alpha-1 Events Calendar

May 2021

S
M
T
W
T
F
S
25
26
27
28
29
30
1
Events for May

1st

No Events
2
3
4
5
6
7
8
Events for May

2nd

No Events
Events for May

3rd

No Events
Events for May

4th

No Events
Events for May

5th

No Events
Events for May

6th

Events for May

7th

No Events
Events for May

8th

9
10
11
12
13
14
15
Events for May

9th

No Events
Events for May

10th

No Events
Events for May

11th

No Events
Events for May

12th

Events for May

13th

No Events
Events for May

14th

No Events
Events for May

15th

No Events
16
17
18
19
20
21
22
Events for May

16th

No Events
Events for May

17th

No Events
Events for May

18th

No Events
Events for May

19th

Events for May

20th

Events for May

21st

Events for May

22nd

No Events
23
24
25
26
27
28
29
Events for May

23rd

No Events
Events for May

24th

No Events
Events for May

25th

No Events
Events for May

26th

Events for May

27th

No Events
Events for May

28th

No Events
Events for May

29th

30
31
1
2
3
4
5
Events for May

30th

No Events
Events for May

31st

No Events