Alpha1 Events

Step Forward for Alpha-1 Colorado

Event date:
Aug 10 2014,09:00am
Event End Date:
Aug 10 2014,02:00pm
Capacity:
Unlimited

Step Forward for Alpha-1 Colorado

Join Dr. Sandhaus and John Walsh on a leisurely stroll or volunteer

to cheer on 100 Alpha friends and family to raise funds

in support of the Alpha-1 Foundation.

Sandy & Dot's
5005 West King Crest Lane
Bow Mar, Colorado 80123

Registration: $25

To register, go to
http://denverwalk2014.kintera.org

For more information,

contact Angela McBride

Download the flyer

Step Forward for Alpha-1 - Myrtle Beach

Event date:
Nov 08 2014,04:00am
Event End Date:
Nov 08 2014,05:00pm
Capacity:
Unlimited

The Step Forward for Alpha-1 Walk


Myrtle Beach, SC

 

REGISTER

 

For more information, contact

Angela McBride

Nashville Alpha-1 Education Day

Event date:
Apr 18 2015,09:00am
Event End Date:
Apr 18 2015,05:00pm
Cut off date:
Apr 13 2015,12:00am
Capacity:
Unlimited

April 18, 2015

 

Click here to view the agenda and invitation for the Nashville Alpha-1 Education Day. Reservations must be made by April 13, 2015.

 

Hotel Reservations

To make hotel reservations, please contact the Nashville Airport Marriott at 1 (615) 889-9300. Group rate is $135 plus tax. Reservations must be made by April 3, 2015 to guarantee rate. The booking code is Alpha-1 Foundation.


AARC Accreditation

This learning activity has been approved by the American Association for Respiratory Care (AARC) for 6 hours of Continuing Respiratory Care Education (CRCE).

 

Oxygen Travel Fund

The Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, please call 877-228-7321 ext 251 with at least 30 days notice.

Fort Wayne Alpha-1 & COPD Support Group Meeting

Event date:
Apr 21 2015,05:30pm
Event End Date:
Apr 21 2015,07:00pm
Capacity:
Unlimited

Fort Wayne Alpha-1 & COPD Support Group Meeting


will be held on Tuesday, April 21st from 5:30 pm to 7:00 pm at Allen County Public Library – Main Branch, Room C - 900 Library Plaza, Fort Wayne IN 46802, (260) 421-1200

 

Speaker will be Jesse Strickland, AlphaNet Coordinator who will discuss:
 

 ‘AlphaNet Programs & Services’

How we can help improve your quality of life


Dinner will be provided


Feel free to bring your family and caregivers to join in


For more information or to RSVP by April 20th contact Support Group Leader,

Tom Corron at (260) 245-0199 or email: tcorron@live.com

Timely Topic & Alpha Kids Virtual Support Group Telecall

Event date:
Apr 22 2015,09:00pm
Event End Date:
Apr 22 2015,10:00pm
Capacity:
Unlimited

Timely Topics & Alpha Kids Virtual Support Group Telecall


on Wednesday, April 22 at 9:00 pm ET.


The topic is 'Research Registry, Current Clinical Trials & Research Update'


The Speaker is Charlie Strange, MD, Alpha-1 Foundation Research Registry, Medical University of South Carolina (MUSC)


To participate on the call, follow these directions:

1. At the specified time [9:00 P.M. ET], dial the Access Number: 1-800-920-7487

2. When prompted, enter your Participant Code followed by #.

3. Your Participant Code is 9335 9985#


Participant Star Commands

*4 - Volume - Pressing *4 will increase/decrease the volume

*6 - Mute - Participants can mute/unmute their own lines by pressing *6

Alpha- 1 5K Hero Walk

Event date:
Apr 25 2015,10:00am
Event End Date:
Apr 25 2015,02:00pm
Capacity:
Unlimited

Alpha- 1 5K Hero Walk


will be held in Deep Run Park , Henrico, Virginia

on April 25, 2015 beginning at 10:00 am and ending around 2:00 pm.


This is a fundraiser that will benefit the Alpha-1 Foundation. We expect to have approximately 100 participants, members from the local Alpha-1 medical community and Alpha-1 patients to cheer you on. Our goal is to increase awareness of Alpha-1 in Virginia and raise much needed dollars for research and related programs. With your support, we will accomplish our mission of finding a cure.


To register, visit http://www.kintera.org/faf/home/default.asp?ievent=1128590


For more information, contact Pam Vanscoy at vaalpha1herowalk@yahoo.com

Florida Gulf Coast Alpha-1 Support Group Meeting

Event date:
Apr 25 2015,12:30pm
Event End Date:
Apr 25 2015,03:00am
Capacity:
Unlimited

Florida Gulf Coast Alpha-1 Support Group Meeting


will be held on Saturday, April 25th from 12:30 pm to 3:00 pm at Olde World Restaurant

14415 Tamiami Trail, North Port, FL 34287, (941) 426-1155


Speaker will be Joanna Nolte, ARNP, MSN, ANP-BC, Division of Pulmonary, Critical Care and Sleep Medicine, University of Florida, Gainesville, FL. She will discuss:

'Treatment of Alpha-1 Patients'

Including explanation of pulmonary function testing and the medications we use


Lunch will be provided


For more information or to RSVP by April 18th contact Support Group Leaders,

Carol Logan at (269) 649-5563 or Glynn Armitage at: flgulfcoastalpha@outlook.com

Central Nebraska Alpha-1 Support Group Meeting

Event date:
Apr 27 2015,06:00pm
Event End Date:
Apr 27 2015,08:30pm
Capacity:
Unlimited

Central Nebraska Alpha-1 Support Group Meeting


will be held Monday, April 27th from 6:00 pm to 8:30 pm at the Central Community College in Room 212, 3134 W Highway 34, Grand Island, NE 68802, (308) 398-7440


The 2014 San Francisco Education Day video presentation featuring speaker, Sara Wienke, MS, CGC, Genetic Counselor, Alpha-1 Association Genetic Counseling Program will be shown.

‘Family Testing & Confidentiality’

 

This will be followed by ‘Question and Answer Session’ with

Kim Brown, MS, CGC, Genetic Counselor, Alpha-1 Foundation Genetic Counseling Program via SKYPE


Dinner will be provided


For more information or to RSVP by April 22nd contact Charlie Gregory,

Support Group Leader,

at (308) 398-7440 (day); (308) 381-0646 (evening) or email: Charlie.Gregory@live.com

Lexington, VA Alpha-1 Support Group Meeting

Event date:
Apr 29 2015,11:30am
Event End Date:
Apr 29 2015,01:30pm
Capacity:
Unlimited

Lexington, VA Alpha-1 Support Group Meeting


will be held on Wednesday, April 29th from 11:30 am to 1:30 pm at LewisGale Medical Center, Physicians REC Center, 1900 Electric Road, Salem, VA 24153, (540) 776-4000


Our speaker will be Dr. David Killeen, DO, Vice-President Medical Staff, Pulmonary Critical Care Medicine at Lewis-Gale Medical Center and Alpha-1 Foundation Clinical Resource Center Physician. He will present:

'Insights about Alpha-1'


Lunch will be provided


For more information, directions and to RSVP by April 24th contact

Support Group Leader,

Luci Majikas at (540) 570-3131 or email: lkmstar13@gmail.com

Northwest Indiana Alpha-1 & COPD Education Event

Event date:
Apr 30 2015,05:00pm
Event End Date:
Apr 30 2015,08:00pm
Capacity:
Unlimited

Northwest Indiana Alpha-1 and COPD Support Group Meeting


will be held on Thursday, April 30th from 5:00 pm to 8:00 pm at Community Hospital in the Cafeteria Conference Room, 901 MacArthur Blvd, Munster, IN 46321, (219) 836-1600

(Enter through entrance 'A' of the hospital)


Our speaker will be Support Group Leader, Sarah Volk, BS, RRT, Cpft, AE-CPulmonary Diagnostics. She will discuss:

'Pulmonary Rehabilitation'


Dinner will be provided


Please bring your family, caregivers and/or medical professionals


For more information or to RSVP by April 29th contact

Support Group Leader,

Sarah Volk (219) 765-7801 or email at nwibreathers@live.com