Rare Disease Day takes place on the last day of February each year. The goal of this day is to increase and generate positive action for the rare disease community. On February 28, 2023, the Alpha-1 Foundation–along with Alphas, patient organizations, politicians, caregivers, medical professionals, researchers, and industry–will come together in solidarity to raise awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1) as one of these rare diseases. The yearly theme for Worldwide Rare Disease Day is “Sharing Your Colours”, highlighting the various different types of rare diseases in the world. Alpha-1 is 1 of 7,000 rare diseases and is symbolized by the color purple.
Get Involved Today!
- Spread awareness by downloading our digital online toolkit and sharing official Alpha-1 Foundation content on your social medial accounts during the month of February. Use the hashtags #Alpha1Awareness and #RareDiseaseDay and tag the Alpha-1 Foundation on Facebook, Twitter and Instagram!
- Purchase your Alpha-1 Rare Disease Day Walk T-Shirt. Join us for the official Alpha-1 Foundation Rare Disease Day Walk in Orlando, Florida on Saturday, February 25th or walk virtually with your friends and family locally!
- Attend our upcoming Alpha-1 Education Day on February 25th in-person or virtually.
- Register for the Rare Disease Day at NIH on Tuesday, February 28th. The event aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments.
- Share your Alpha story with us. Whether your loved one has been diagnosed or you yourself are an Alpha, we want to hear your Alpha Story of living with a rare disease. Connect with others who may be going through a similar experience by sharing your story in the comments section of the Alpha-1 Foundation Rare Disease Day page.
