
What is an Alpha-1 Advocate?
An Alpha-1 advocate is someone who works to raise awareness for Alpha-1 and help change public policy to improve the lives of all Alphas.
Most Americans, including our elected leaders, are not aware of Alpha-1 and the risk factors so we are depending on individuals like you to raise your voice and help us fight for positive policy change for all Alphas. Changes in public policy could result in better treatments, improved access to care and even a cure.
There are lots of ways to be an effective and successful Alpha-1 advocate. Some examples of advocacy activities are:
- You can raise awareness by posting about Alpha-1 on your Facebook.
- Visit your representative in their district office.
- Write to the editor of your local paper about Alpha-1 and COPD.
- To become an Alpha-1 Advocate, contact Jeanne Kushner, Director of Communications & Public Affairs at jkushner@alpha1.org, or call (877) 228-7321, ext. 204..
The easiest way to advocate for Alpha-1 is to visit the Action Center. The Action Center provides advocates with information on currect legislative campaigns and offers simple ways to make your voice heard.