Select Page
Advocacy Agenda

Advocacy/Public Policy Priorities

  • Increased research funding
  • Urgent need for new therapeutics
  • Targeted detection and family testing for Alpha-1
  • Access to care, including improving health insurance benefits and reducing restrictions to public programs
  • Blood product safety
  • Education, outreach, and awareness

Click for the Alpha-1 Foundation Public Policy Priorities.

Public Policy Strategies

The Alpha-1 Foundation has identified the following strategies to be employed in order to achieve the above objectives:

 

  • Federal Advisory Committee membership
  • Comments in response to proposed Federal Rule Making
  • Position statements on specific issues
  • Congressional testimony
  • Alpha-1 specific legislation
  • Strategic alliances in coalitions and membership organizations to reach out to legislators.
Grassroots Advocacy

The success of the Grassroots Advocacy Network has grown substantially through participation in efforts with other organizations, by holding Alpha-1 Congressional Briefings, bringing patients to Capitol Hill, in Washington DC, for specific Alpha-1 lobbying agendas and by building relationships with key legislators. We will continue to expand and strengthen the effectiveness of this grassroots program and address access to care barriers through the legislative and regulatory process. To be most effective, funding is needed to generate participation in state and federal lobby activities to inform elected officials and state and federal agencies about the critical needs of those with Alpha-1.

Accreditations

Alpha-1 Events Calendar

June

July 2020

August
S
M
T
W
T
F
S
28
29
30
1
2
3
4
Events for July

1st

No Events
Events for July

2nd

No Events
Events for July

3rd

No Events
Events for July

4th

No Events
5
6
7
8
9
10
11
Events for July

5th

No Events
Events for July

6th

No Events
Events for July

7th

No Events
Events for July

8th

No Events
Events for July

9th

No Events
Events for July

10th

No Events
Events for July

11th

12
13
14
15
16
17
18
Events for July

12th

No Events
Events for July

13th

No Events
Events for July

14th

No Events
Events for July

15th

Events for July

16th

No Events
Events for July

17th

No Events
Events for July

18th

No Events
19
20
21
22
23
24
25
Events for July

19th

No Events
Events for July

20th

No Events
Events for July

21st

No Events
Events for July

22nd

No Events
Events for July

23rd

No Events
Events for July

24th

No Events
Events for July

25th

No Events
26
27
28
29
30
31
1
Events for July

26th

No Events
Events for July

27th

No Events
Events for July

28th

No Events
Events for July

29th

No Events
Events for July

30th

No Events
Events for July

31st

No Events