Select Page
Advocacy Agenda

Advocacy/Public Policy Priorities

  • Increased research funding
  • Urgent need for new therapeutics
  • Targeted detection and family testing for Alpha-1
  • Access to care, including improving health insurance benefits and reducing restrictions to public programs
  • Blood product safety
  • Education, outreach, and awareness

Click for the Alpha-1 Foundation Public Policy Priorities.

Public Policy Strategies

The Alpha-1 Foundation has identified the following strategies to be employed in order to achieve the above objectives:

 

  • Federal Advisory Committee membership
  • Comments in response to proposed Federal Rule Making
  • Position statements on specific issues
  • Congressional testimony
  • Alpha-1 specific legislation
  • Strategic alliances in coalitions and membership organizations to reach out to legislators.
Grassroots Advocacy

The success of the Grassroots Advocacy Network has grown substantially through participation in efforts with other organizations, by holding Alpha-1 Congressional Briefings, bringing patients to Capitol Hill, in Washington DC, for specific Alpha-1 lobbying agendas and by building relationships with key legislators. We will continue to expand and strengthen the effectiveness of this grassroots program and address access to care barriers through the legislative and regulatory process. To be most effective, funding is needed to generate participation in state and federal lobby activities to inform elected officials and state and federal agencies about the critical needs of those with Alpha-1.

Accreditations

Alpha-1 Events Calendar

August

September 2020

October
S
M
T
W
T
F
S
30
31
1
2
3
4
5
Events for September

1st

Events for September

2nd

Events for September

3rd

Events for September

4th

Events for September

5th

6
7
8
9
10
11
12
Events for September

6th

Events for September

7th

Events for September

8th

Events for September

9th

Events for September

10th

Events for September

11th

Events for September

12th

13
14
15
16
17
18
19
Events for September

13th

Events for September

14th

Events for September

15th

Events for September

16th

Events for September

17th

Events for September

18th

Events for September

19th

20
21
22
23
24
25
26
Events for September

20th

Events for September

21st

Events for September

22nd

Events for September

23rd

Events for September

24th

Events for September

25th

Events for September

26th

27
28
29
30
1
2
3
Events for September

27th

Events for September

28th

Events for September

29th

Events for September

30th