The Alpha-1 community has a long history of impacting policy that touches the lives of Alphas. Your voice has been heard by local, state, and federal policy makers and has led to increased research funding, improved care for Alphas, innovative clinical trial design and access to critical therapies. The Alpha-1 Action Center is your platform to learn about pressing policy issues and to call, write, or contact your elected officials through social media. Be sure to sign up using the “Quick Sign Up” button below. Your voices are stronger together.
TAKE ACTION: I Am Essential has partnered with National Health Law Program (NHeLP) to amplify patients’ voices on important changes being recommended by the Department of Health and Human Services. It is crucial that they hear from as many people who would be hurt by these policy proposals as possible. Click here for the I Am Essential/National Health Law Program Comment Portal. We only have a few days until the comment period closes
To learn more or learn how you can become an Alpha-1 Ambassador, please contact Jeanne Kushner, Director of Communications & Public Affairs at firstname.lastname@example.org, or call (877) 228-7321, ext. 204.