Select Page
Other Research Programs
Testing

Additional research programs and resources supported by the Alpha-1 Foundation:

The Alpha-1 Coded Testing (ACT) Study

The goal of the ACT Study is to provide free, confidential testing and facilitate research on genetic testing. The test is administered through a research study which evaluates perceived risks and benefits of genetic testing. Anyone can ask to be tested. The ACT Study provides a way for family members of Alphas and others at risk to learn their Alpha-1 genotype. Enrollment in the study may end at any time.

For test kits or for more information, please call the Alpha-1 Foundation at (877) 228-7321 ext. 245, or email at gettested@alpha1.org.

The Alpha-1 Detection Laboratory for the ACT Study
The Alpha-1 Detection Laboratory for the ACT Study, based at the University of Florida, performs the testing on blood samples submitted for the ACT Study at the Medical University of South Carolina. The laboratory determines the genotype and alpha-1 antitrypsin level of each sample. In addition, where appropriate, the sample’s phenotype is determined as well. The Alpha-1 Detection Laboratory is under the direction of Mark Brantly, MD.

For more information about the Alpha-1 Detection Laboratory for the ACT Study, call toll free, (866) 284-2708, or visit the Alpha-1 Research Program, at the University of Florida.

Alpha-1 Foundation Clinical Resource Centers

There are Clinical Resource Centers throughout North America that specialize in patient care and education for those with Alpha-1. Some centers treat lung disease and others liver disease. The centers have other resources for Alphas such as support groups, transplant centers and pulmonary rehabilitation. Contact the center nearest you for information. See Clinical Resource Centers.

Alpha-1 International Reference Laboratory

This laboratory, located at the University of Florida College of Medicine, provides Alpha-1 Antitrypsin genotyping, phenotyping and serum levels for common rare alleles. The laboratory also serves as a training site for Alpha-1 testing. For information, visit the Alpha-1 Research Program.

Accreditations

Alpha-1 Events Calendar

January

February 2020

March
S
M
T
W
T
F
S
26
27
28
29
30
31
1
Events for February

1st

2
3
4
5
6
7
8
Events for February

2nd

No Events
Events for February

3rd

No Events
Events for February

4th

Events for February

5th

No Events
Events for February

6th

No Events
Events for February

7th

No Events
Events for February

8th

9
10
11
12
13
14
15
Events for February

9th

No Events
Events for February

10th

No Events
Events for February

11th

No Events
Events for February

12th

Events for February

13th

No Events
Events for February

14th

No Events
Events for February

15th

16
17
18
19
20
21
22
Events for February

16th

No Events
Events for February

17th

No Events
Events for February

18th

No Events
Events for February

19th

No Events
Events for February

20th

No Events
Events for February

21st

No Events
Events for February

22nd

23
24
25
26
27
28
29
Events for February

23rd

No Events
Events for February

24th

No Events
Events for February

25th

No Events
Events for February

26th

No Events
Events for February

27th

Events for February

28th

Events for February

29th

1
2
3
4
5
6
7