Alpha-1-To-One magazine is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.
In the Winter 2021 issue:
In this issue of the Alpha-1-to-One Magazine, we reflect back on how the community has managed to stay connected virtually during COVID-19, cover the history of vaccines and their impact on society, look back on the International Research Conference and Global Congress, appreciate the amazing effort shown during Riding for a Reason, and more!
All of our educational and research brochures are available for download. You can also request printed brochures. To start your download, click on any of the links below.
To request publications, please contact Joy Collins at email@example.com or 305-648-9533. Please specify publication title and quantity needed. Allow 5-7 business days for delivery.
Watch recordings from our past Educational Events at your leisure anywhere and anytime! Our E-Education has more than 400 presentations that cover important Alpha-1 related topics.
You can also search for more presentations on Vimeo at https://vimeo.com/a1f
This program provides the Alpha-1 Community with access to educational programs from our National Conference and National Education Series.
We gratefully acknowledge all our speakers who volunteered their time and gave permission to record and disseminate their presentations.
Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.
Life Choices includes a Five Wishes Living Will which “helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person’s needs: medical, personal, emotional and spiritual.”
The resources found in Life Choices can be downloaded below as PDFs:
Tom Petty’s Advice on End of Life