Proper communication and education is important when helping patients and family members understand Alpha-1 Antitrypsin Deficiency. This section is for healthcare professionals looking for information about Alpha-1. We encourage all physicians, nurses, respiratory therapists and others to learn more about Alpha-1 by attending a local Alpha-1 Education Day near or finding a local Alpha-1 Clinical Resource Center.
The Genetic Counseling Program can provide healthcare professionals with information on inheritance and family risk, testing options, information on the pathogenesis of Alpha-1 in lung and liver, treatment options, referrals to Alpha-1 Clinical Resource Centers, referrals to social services for patients and how to talk to your patient and family members about Alpha-1. The Program can be reached at 1-800-785-3177.
The Alpha-1 Foundation provides information and resources for healthcare providers. Through their website, you can find information on standards for diagnosis and treatment, clinical resource center locations, research programs, publications, educational opportunities, and scientific conferences and workshops. The Foundation has more than 70 Clincial Resource Center locations across the country that specialize in patient care, education and research for those with Alpha-1 Antitrypsin Deficiency (Alpha-1).
Continuing Respiratory Care Education
The Association provides CRCE credits for respiratory therapists who attend an Education Day or National Education Conference. These learning activities have been provided by the American Association for Respiratory Care (AARC). Click here to find an event nearest you.
This course was developed at the request of our membership and is presented by a group of physicians who are internationally recognized in the identification and management of Alpha-1 Antitrypsin Deficiency. This course is presented by the American Association for Respiratory Care and sponsored in part by an unrestricted educational grant from the Alpha-1 Foundation.
Join the Association and become a professional member! As a member, you will receive e-newsletters, publications, invitations to events near you and a discount for the registration fee for the National Education Conference. To sign up, click here.