Conference Program

2014 Conference Program Coming Soon!


Don't miss the exciting general sessions, afternoon breakout sessions and keynote speaker!  All speakers have the ability to motivate, teach and inspire you to lead a healthly life.  The sessions offer a large range of topics including Alpha-1 lung and liver, a research update, pulmonary rehab, advocacy and many more.

 View the 2013 National Conference Program below.



2013 Conference Agenda

Friday, June 7


1:00 pm – 4:45 pm  Registration 
Track 1 Track 2
2:00 – 2:45 pm

Community Forum: Learn How to Get Involved in the Alpha-1 Association & Building Friends for a Cure

2:50 – 3:35 pm

Conference Orientation 


Cathey Horsak, Director of Commuity Programs and Outreach, Alpha-1 Association

Public Policy Update


Miriam O'Day, Senior Director of Public Policy, Alpha-1 Association/Alpha-1 Foundation

3:40 – 4:25 pm

Alpha-1 101: Lung & Liver


Michael Krowka, MD, Professor of Medicine, Mayo Clinic


Ginger Clark, MD, MS, Associate Program Director, Transplant Hepatology Fellowship, Division of Gastroenterology, Hepatology, & Nutrition, University of Florida

Foreseeable Research:

Lung & Liver


Charlie Strange (Lung), MD, Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina


Jeffrey Teckman (Liver), MD, Professor, Associate Chair of Pediatrics for Research, Director of Pediatric Gastroenterology & Hepatology, St. Louis University School of Medicine, Cardinal Glennon Children's Medical Center 

4:45 pm – 6:00 pm Town Hall Meeting
6:00 pm – 8:00 pm Corporate Hospitality Suites Dinner Reception
8:00 pm – 9:30 pm  Dessert Hour & Award Ceremony
9:30 pm – Midnight  Club Alpha


Saturday, June 8   


8:30 am – 9:00 am

Welcome and Opening Remarks


Marlene Erven, Executive Director, Alpha-1 Association

9:00 am – 9:45 am

Keynote: The Affordable Care Act and the Shifting Healthcare Landscape


Marc M. Boutin, JD, Executive Vice President & Chief Operating Officer, National Health  Council

9:45 am – 10:30 am

50 Years of Alpha-1 History and Into the Future


Robert Sandhaus, MD, Ph.D, FCCP, Clinical Director, Alpha-1 Foundation, Executive Vice President, AlphaNet, Professor of Medicine, National Jewish Health Council


Mark Brantly, MD, Professor of Medicine & Chief, Molecular Genetics and Microbiology, Alpha-1 Foundation Research Professor, University of Florida College of Medicine

10:30 am - 11:00 am Break
11:00 am – 12:00 pm

International Alpha-1 Patient Congress and Alpha-1 Foundation Update


John Walsh, President and CEO, Alpha-1 Foundation

12:00 – 1:00 pm Ask the Experts
1:00 pm – 2:00 pm Lunch
2:00 pm – 5:05 pm 4 Breakout Sessions
7:00 pm – 9:30 pm Dinner & Awards Ceremony
9:30 pm – Midnight Club Alpha


Sunday, June 9


8:15 am - 9:15 am    Memorial Service

**There is no general session on Sunday


Exhibit Hours

Friday, June 7: 1:00 pm – 4:30 pm

Saturday, June 8: 7:30 am – 5:00 pm

 Thank you to our Core Conference Sponsors:


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