Conference Program

2014 Conference Program Coming Soon!

 

Don't miss the exciting general sessions, afternoon breakout sessions and keynote speaker!  All speakers have the ability to motivate, teach and inspire you to lead a healthly life.  The sessions offer a large range of topics including Alpha-1 lung and liver, a research update, pulmonary rehab, advocacy and many more.

 View the 2013 National Conference Program below.

 

 


2013 Conference Agenda

Friday, June 7
   

 

1:00 pm – 4:45 pm  Registration 
Track 1 Track 2
2:00 – 2:45 pm

Community Forum: Learn How to Get Involved in the Alpha-1 Association & Building Friends for a Cure

2:50 – 3:35 pm

Conference Orientation 

 

Cathey Horsak, Director of Commuity Programs and Outreach, Alpha-1 Association

Public Policy Update

 

Miriam O'Day, Senior Director of Public Policy, Alpha-1 Association/Alpha-1 Foundation

3:40 – 4:25 pm

Alpha-1 101: Lung & Liver

 

Michael Krowka, MD, Professor of Medicine, Mayo Clinic

 

Ginger Clark, MD, MS, Associate Program Director, Transplant Hepatology Fellowship, Division of Gastroenterology, Hepatology, & Nutrition, University of Florida

Foreseeable Research:

Lung & Liver

 

Charlie Strange (Lung), MD, Professor of Pulmonary and Critical Care Medicine at the Medical University of South Carolina

 

Jeffrey Teckman (Liver), MD, Professor, Associate Chair of Pediatrics for Research, Director of Pediatric Gastroenterology & Hepatology, St. Louis University School of Medicine, Cardinal Glennon Children's Medical Center 

4:45 pm – 6:00 pm Town Hall Meeting
6:00 pm – 8:00 pm Corporate Hospitality Suites Dinner Reception
8:00 pm – 9:30 pm  Dessert Hour & Award Ceremony
9:30 pm – Midnight  Club Alpha

 

Saturday, June 8   

 

8:30 am – 9:00 am

Welcome and Opening Remarks

 

Marlene Erven, Executive Director, Alpha-1 Association

9:00 am – 9:45 am

Keynote: The Affordable Care Act and the Shifting Healthcare Landscape

 

Marc M. Boutin, JD, Executive Vice President & Chief Operating Officer, National Health  Council

9:45 am – 10:30 am

50 Years of Alpha-1 History and Into the Future

 

Robert Sandhaus, MD, Ph.D, FCCP, Clinical Director, Alpha-1 Foundation, Executive Vice President, AlphaNet, Professor of Medicine, National Jewish Health Council

 

Mark Brantly, MD, Professor of Medicine & Chief, Molecular Genetics and Microbiology, Alpha-1 Foundation Research Professor, University of Florida College of Medicine

10:30 am - 11:00 am Break
11:00 am – 12:00 pm

International Alpha-1 Patient Congress and Alpha-1 Foundation Update

 

John Walsh, President and CEO, Alpha-1 Foundation

12:00 – 1:00 pm Ask the Experts
1:00 pm – 2:00 pm Lunch
2:00 pm – 5:05 pm 4 Breakout Sessions
7:00 pm – 9:30 pm Dinner & Awards Ceremony
9:30 pm – Midnight Club Alpha

 

Sunday, June 9

 

8:15 am - 9:15 am    Memorial Service

**There is no general session on Sunday

 

Exhibit Hours


Friday, June 7: 1:00 pm – 4:30 pm

Saturday, June 8: 7:30 am – 5:00 pm


 Thank you to our Core Conference Sponsors:

BaxterBlue

dohmen 6color_pms

CSLBehring tagline below RGB lowres

Grifols Logo BlueText