On this web page are companies that provide Financial and Reimbursement assistance.If you are seeking Alpha-1 replacement therapies, please click here for a list of manufacturers.
The Ann Marie Benzinger Emergency Assistance Fund, established in 2013 through a collaboration agreement joining the Alpha-1 Association's program and the Alpha-1 Advocacy Alliance's program, is a fund designed to provide a valuable lifeline to those affected by Alpha-1 who find themselves in need of emergency financial assistance. This fund, named after Ann Marie Benzinger, an Alpha dedicated to helping others, will assist those in the Alpha-1 Community facing financial stress and those who are unable to pay for basic needs such as prescriptions, utilities, or expenses to travel to a transplant center. Funding is provided through unrestricted grants from our industry partners - Baxter Healthcare, CSL Behring and Grifols. All information is confidential. Individuals seeking assistance through this program should contact their local patient coordinator, patient advocate or support group leader for a referral or contact the Alpha-1 Association directly at 877.346-3212.
Patient Services Incorporated
Offers funding to Alphas and other groups to help cover insurance premium cost and co-pays for those on augmentation therapy.
A service provided by PSI that provides Social Security and disability representation to patients diagnosed with Alpha-1 and helps educate them on Social Security Disability, Supplemental Security Income, Medicare and Medicaid.
Contact the PSI A.C.C.E.S.S.® staff at 1-888-700-7010.
CSL Behring created CareZ—a community of people and services focused on providing the support you need to help you cope with your condition and help you live your life to the fullest. At CareZ, you'll find information on Financial support, including insurance assistance, cost-sharing programs, and the CSL Behring AssuranceSM program, emotional support, including Patient Support Specialists and Personal Mentors, physical fitness, including the My Steps for Healthy Living program and the causes, genetics, and treatment of Alpha-1.
Telephone: 888. 415-2167
Caring Voice Coalition
Empowers patients who live with a life threatening chronic disease through comprehensive outreach programs and services aimed at financial, emotional and educational support. With a steadfast dedication to the organization’s set of core values, their knowledgeable, caring staff maintains a solid reputation as a dependable, responsive organization with a unique approach to improving the lives of our patients.
The Voice for Healthcare Consumers is a nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans since 1982. Families USA has worked to promote high-quality, affordable health care for all Americans. Their program locator can assist in locating other types of consumer assistance.
Pre-Existing Condition Insurance Plan
Beginning February 16, 2013, the federally-run Pre-Existing Condition Insurance Plan (PCIP) is suspending acceptance of new enrollment applications until further notice. PCIP will continue providing coverage to more than 100,000 people currently enrolled nationwide. We encourage you to visit http://finder.healthcare.gov to explore your other health care options. Note: If you lost PCIP coverage during the past 6 months because you moved out of state, you may be eligible to re-enroll in PCIP in your new state of residence.
Please call 1-866-717-5826 (TTY: 1-866-561-1604), Monday-Friday, 8 a.m. to 11 p.m. EST, if you believe you are eligible.
Your therapy provider or the manufacture most likely has a division or third party group that is designed to assist you with insurance issues and appeals.
Each state has a bureau that could be contacted for assistance. They would have names such as: Insurance Commission office; Department of Insurance; Health Insurance Division Consumer Service; Department of Insurance Consumer Services; Office of Insurance Regulation, etc.
Offers resources designed to teach about patient assistance programs and other programs designed to help those who can't afford their medicines
The internet drug index
Includes information and application forms for Patient Assistance Programs Toll free: 1 (877) 267-0517
Partnership for Prescription Assistance
Toll free: 1 (888) 477-2669
Patient Medication Assistance Inc
Assists individuals receive free medications through Patient Assistance programs.
Toll free: 1 (866) 353-9377
Free Medicine Foundation
Assistance to pay for brand name FDA approved medications regardless of age or employment.
Call 1 (573) 996-3333
Free Medicine Program
Assists patients in obtaining prescription drugs and medications free of charge.
Walgreens offers access to infusion services while offering a consistent, high quality of care by clinicians who live in the communities they serve. Their teams partner with payers to transition patients to the most clinically appropriate, cost-effective site of care-delivering proven outcomes, high patient satisfaction and cost savings.
Volunteers in Health Care
Patient Advocate Foundation
Provides effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. This service pairs the patient with a case manager who will assist the patient with their needs.
Toll free: 1 (800) 532-5274
Advocacy for Patients with Chronic Illness
Assists patients with free information, advice and advocacy services in areas including but not limited to the following: getting your own medical records; health insurance; private disability insurance coverage; Social Security Disability Income; your rights under the Americans with Disabilities Act; rights under the Family and Medical Leave Act and how to ensure that schools accommodate students with chronic illnesses.
Toll free 1 (860) 674-1370
A federal government website managed by the U.S. Department of Health & Human Services with the initiative to educate Americans about the Affordable Care Act that was signed into law two years ago on March 23, 2010. The website has a tool to find individual state’s Consumer Assistance Programs, where they have been established and other help sources with health insurance problems.
Health Resources and Services
Center for Independent Living
Supports disabled people in their efforts toward independence. CIL encourages people with disabilities to make their own choices and works to open doors in the community to full participation and access for all.
Directory of Independent Living Centers http://www.ilru.org/
Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects.
AARP's End of Life Guide
Department of Health and Human Services' Guide to End of Life Planning
End-of-Life Decision Making
This guide from the Family Caregiver Alliance has helpful content for caregivers and patients alike