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Happy St. Patrick’s Day from The Alpha-1 Foundation

Happy St. Patrick’s Day from The Alpha-1 Foundation

Happy St. Patrick’s Day from the Alpha-1 Foundation St. Patrick’s Day is celebrated annually on March 17, the anniversary of St. Patrick’s death in the fifth century. Saint Patrick was a fifth-century Romano-British Christian missionary and bishop in Ireland. Known as...
What does the COVID relief bill mean for rare disease patients?

What does the COVID relief bill mean for rare disease patients?

The Alpha-1 Foundation received the following correspondence from the National Organization for Rare Disorder’s policy team on March 12th, 2021:  President Biden signed the American Rescue Plan into law on Thursday, March 11th! This law contains many important...
Congress Introduces STAT Act

Congress Introduces STAT Act

The Alpha-1 Foundation has received the following correspondence from the EveryLife Foundation regarding the introduction of the STAT Act: I am excited to share that the Speeding Therapy Access Today (STAT) Act of 2021, H.R. 1730 / S. 670 was officially introduced...
Professor Gerry McElvaney wins HRB Impact Award 2021

Professor Gerry McElvaney wins HRB Impact Award 2021

Professor Gerry McElvaney, Professor of Medicine at RCSI University of Medicine and Health Sciences, has been awarded the HRB Impact Award 2021 by the Health Research Board (HRB). The award recognizes the lasting impact Prof. McElvaney has had on people’s health and...