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Jonathan Maidment goes for the Triple Crown of Hiking

Jonathan Maidment goes for the Triple Crown of Hiking

Miami, Jan. 13, 2020 – Jonathan Maidment will return to the trails again in 2020! He is pleased to announce that he will be hiking the Continental Divide Trail, which consists of 3,100 miles between Mexico and Canada through the United States, along the Rocky...
Q&A: Alphas, seasonal flu and winter wellness

Q&A: Alphas, seasonal flu and winter wellness

Cold weather conditions can worsen symptoms for lung affected Alphas and for patients with chronic obstructive pulmonary disease (COPD), as low temperatures can often lead to fatigue and windy days can cause shortness of breath. Also, the dry winter air can have an...
The Celtic Connection 2020

The Celtic Connection 2020

Celebrate Irish Heritage by observing St. Patrick’s Day with friends and family to benefit Alpha-1 research and programs! Enjoy the traditional Irish dinner with live music by “Hogan’s Goat”, Irish step dancers and music. Join us in recognizing...
Are you in the Patient Notification System?

Are you in the Patient Notification System?

The Patient Notification System (PNS) is a free, confidential, 24-hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls, via email and soon with text messages. The system was created in 1998 to provide...
Virtual Walk 2019: 30 days of awareness

Virtual Walk 2019: 30 days of awareness

November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72 teams to total 970...
Alpha-1 Awareness Month 2019: Week 4 & Thanksgiving weekend

Alpha-1 Awareness Month 2019: Week 4 & Thanksgiving weekend

November has been a busy month for Alphas around the United States raising awareness about Alpha-1 Antitrypsin Deficiency (Alpha-1). For 30 days, in 34 states, friends and family supported one strong mission to find a cure. The community set up 72 teams to total 970...