Alpha-1 Kids

The Alpha-1 Kids Program provides information and resources for families of Alpha infants, children, and teens, as well as young adults transitioning to independent care. 

  • Alpha-1 Foundation Patient Information Line is available Monday–Friday, from 9 AM to 5 PM ET, to help parents find Alpha-1 experts, locate resources, and answer Alpha-1-related questions. Call 1-800-245-6809

Alpha-1 Children’s Books

For children 8 and under: Alpha-1 Alphabet: From A, to ZZ

For children 8-11: Not the Only Alpha-1: A Kid’s Guide to Alpha-1

For tweens and teens: Not the Only Alpha-1: A Teenager’s Guide to Alpha-1