There are many organizations that offer private and public patient assistance programs for individuals who are in need.
- Patient Assistance Programs
- Prescription Assistance Programs
- Oxygen Travel Fund
- Alpha-1 Foundation Clinical Resource Center Access Program
- Patient Assistance for Lab Services
- State Medicaid Health Insurance Premium Payment (HIPP)
- State Children’s Health Insurance Program (CHIP)
- Medicare State Health Insurance Plan (SHIP) Website
- Federal Poverty Income Level Calculations
- State Department of Insurance Website
There are many organizations that offer private and public patient assistance programs for individuals who are in need.
National Organization for Rare Disorders (NORD) Patient Assistance Program
Premium and Co-Pay Assistance Program,
Both the insured and under insured may find themselves unable to pay for their prescriptions. The Prescription Assistance Matrix will link you to Needy Meds and Manufacturer’s assistance programs.
Needy Meds provide the patient with an excellent and easy to use Drug Pricing Tool, which compares prices with quantity and frequency at local pharmacies using a zip code or city/state.
To learn more about how to apply for support from this fund, please email jcollins@alpha1.org or call 1-877-228-7321 ext. 251.
A minimum of 30 days notice is needed to arrange travel with supplemental oxygen utilizing this program. This fund was made possible by the generosity of CSL Behring and Grifols.
Finding a doctor who is knowledgeable about Alpha-1 can be a challenge sometimes.
That’s why the Alpha-1 Foundation is offering a travel stipend of up to $500 to help Alphas around the country to visit a Clinical Resource Center (CRC).
At these centers, Alphas can see a physician familiar with Alpha-1 and get answers about their condition. They can also find out more about how Alpha-1 affects their families. And they can learn about the testing choices available to family members.
More than 80 Clinical Resource Centers are located throughout the United States. A CRC specializes in patient care and education for those with Alpha-1. Some centers treat lung disease and others liver disease.
Centers often have other resources for Alphas such as transplant centers, support groups and pulmonary rehabilitation. Each center must meet certain criteria in order to be listed as a CRC through the Alpha-1 Foundation.
For information or to request a travel stipend, contact the Alpha-1 Foundation CRC Access Program at accesscrc@alpha-1foundation.org or call (877) 228-7321, ext. 251.
See our map of CRCs
Find your state’s AlphaNet coordinator
To learn more about how to apply for support from this fund, please email jcollins@alpha1.org or call 1-877-228-7321, ext. 251.
The Patience Assistance for Lab Services is a possible source of assistance with lab costs for the uninsured and under insured.
HIPP is a voluntary program for qualified individuals who have Medicaid and purchase private medical insurance coverage. The HIPP program will pay monthly medical insurance premiums and co-payments for confirmed medical conditions that are determined and meet criteria that being in this program is more cost-effective for the state compared to having individuals on State Medicaid Coverage. Many states offer this program and each state has their own specific criteria.
State Children’s Health Insurance Program (CHIP)
CHIP provides health coverage to eligible children through both Medicaid and separate CHIP program. This program is funded by both the state and federal government.
Medicare State Health Insurance Plan (SHIP) Website
Each state has a Medicare SHIP Program available to provide free, one on one insurance counseling and assistance to Medicare beneficiaries.
Federal Poverty Income Level Calculations
U.S. Federal Poverty Guidelines that are used to determine financial eligibility for certain federal programs. Other assistance programs use these guidelines to determine need based on income criteria.
State Department of Insurance Website
Each state has a State Department of Insurance that provides information on Medicare Supplemental Insurance Plans (Medigap) and Private Insurance Plans. This department also handles consumer insurance complaints.
