Webinar recordings will be available here one week after the webinar has taken place.
2022 Webinars
Upcoming Webinars
Stay tuned for upcoming webinars!
2021 Webinars
2020 Webinars
2019 Webinars
- January 29th - State of the Union Address
- March 26th - Current Clinical Trials & Research Registry Update
Click here to watch the webinar.Speaker: Gordon Cadwgan, PhD, Immediate Past Chair of the Board of Directors, Alpha-1 Foundation
Click here to watch the webinar.Speaker: Charlie Strange, MD, Professor of Pulmonary Medicine, Medical University of South Carolina (MUSC); Medical Director, AlphaNet
- March 13th - Current Clinical Trials and Research Registry Update
- October 18th - Medicare Open Enrollment for 2019
Click here to watch the webinar.Speaker: Charlie Strange, MD, Professor of Pulmonary Medicine, Medical University of South Carolina (MUSC)
Click here to watch the webinar.Speaker: Tim Boyd, MPH, Director of State Policy with National Organization for Rare Disorders (NORD)
2017 Webinars
Click here to watch the webinar.
Click here to download a PDF of the powerpoint.
Speaker: Barbara Tucciarone, Operations Specialist, National Organization for Rare Disorders (NORD)
It is that time of year again to review your Medicare plans and make sure they meet your needs. This year the Medicare Open Enrollment Period is from October 15th through to December 7th, so you don’t have very much time to waste. You should take time and review your “Evidence of Coverage” (EOC) and “Annual Notice of Change” (ANOC) to see if any changes have been made to your coverage. Some key areas to review are cost, coverage, and what providers and pharmacies will be included in their networks the following year. If you have more questions or would like to learn more about your options and compare plans, feel free to call 1-800-MEDICARE or visit www.medicare.gov.
Click here to watch the webinar.Speaker: Kristin Shifflett, Program Manager, Patient Services, Inc. (PSI)
