Alpha-1 National Conference
The 2023 Alpha-1 National Conference will take place June 9-11, 2023 in Dallas, TX. The conference will take place in person and will be available for virtual participation as well.
Conference Information
About the 2023 Alpha-1 National Conference
The conference features a full two-day agenda that will be held in person in Dallas, TX, and will also be available to attendees virtually. The conference includes:
- Fun interactive events,
- Engaging presentations,
- Alpha-1 education including several timely topics of interest and patient testimonials,
- Multiple open forum Q&A sessions with speakers and Alphas,
- And dedicated time with the exhibitors in the Exhibit Hall
Conference-at-a-Glance
*The times & details on this conference-at-a-glance are subject to change*
| T H U R S D A Y , J u n e 8 t h | |
| 1:00 pm – 4:00 pm | Early Conference Registration |
| F R I D A Y , J u n e 9 t h | |
| 8:00 am – 10:00 am | Breakfast |
| 10:00 am – 12:15 pm | Introduction to Alpha-1 Track: Conference Orientation for First Time Attendees, Alpha-1 101 Lung, and Alpha-1 101 Liver |
| 10:00 am – 12:15 pm | Therapeutic Innovation Track: The Foundation’s Research Agenda, Lung & Liver Imaging, and the Alpha-1 Biomarkers Consortium (A1BC) |
| 12:30 pm – 2:00 pm | Lunch |
| 2:00 pm – 4:10 pm | Introduction to Alpha-1 Track: Clinical Trials & How a Therapy Comes to Market |
| 2:00 pm – 4:10 pm | Therapeutic Innovation Track: Emerging Therapies in Alpha-1 |
| 4:30 pm – 5:30 pm | Alpha-1 Research Registry Celebration |
| 6:30 pm – 9:00 pm | Friday Evening Reception – Western Party! |
| S A T U R D A Y , J u n e 10 t h | |
| 8:00 am – 9:00 am | Breakfast |
| 9:00 am – 12:00 pm | General Sessions including Alpha-1 Research Panel |
| 12:00 pm – 1:00 pm | Meet the Speakers |
| 1:00 pm – 2:00 pm | Lunch |
| 2:00 pm – 4:50 pm | Three Afternoon Tracks: General Patient Care & Treatment as an Alpha – Questions to Ask Your Doctor, Regenerative Medicine: The State of the Science & Tissue Regeneration, Pre- and Post-Transplant, Current and Future Therapies in Liver Disease, Genetics, Family Testing, & Phenotypes, Long Term Health and Wellness for Alpha-1 Kids, & more! |
| 7:00 pm – 9:00 pm | Dinner Reception |
| S U N D A Y , J u n e 11 t h | |
| 8:00 am – 9:30 am | Breakfast |
| 8:30 am – 9:30 am | Memorial Service |
Industry and Exhibitors
COVID-19 Safety Acknowledgment
Accommodations & Travel
2334 North International Parkway, DFW Airport, Texas, United States, 75261
(972) 453-1234
National Conference Room Block Details
Discounted Rate – $129 plus tax
Discounted Rate Deadline – May 15, 2023
Rate Availability – The discounted rate is available to conference participants three (3) days pre and post the official dates of the program, based on availability.
Reservation Instructions
Reserve your hotel room online via the unique web link for the Alpha-1 Foundation National Conference Block.
Airport:
Dallas Fort Worth (DFW) International Airport
Hotel Airport Shuttles
Hyatt Regency DFW International Airport offers complimentary 24/7 shuttle service between the hotel and all DFW terminals.
To arrange a pick-up from DFW Airport terminals, call (972) 453-1234, text (972) 325-0899. Please include your name, terminal, gate number, and the number of people in your party. Access the Hyatt shuttle on the terminal’s lower level.
For transfers from Hyatt Regency DFW to DFW Airport terminals, hotel shuttles depart the main hotel lobby every 20 minutes beginning on the hour.
Driving Directions to Hotel:
You can enter the Airport from Highway 183 from the south or Highway 114/Highway 635 from the north.
The airport itself has one road, International Parkway, which runs the length of the airport, north to south.
Self-Parking is provided complimentary for attendees.
ALL guests, including those with a TOLLTAG:
Enter DFW Air-port Toll Plaza through lanes marked “TICKET OR QR CODE” ONLY.
Pull a ticket and provide it to a hotel attendant for validation.
DO NOT ENTER through lanes marked TollTag. Otherwise, your TollTag will be charged and you will be responsible for the daily parking rate.
Once inside the airport, all exits are on the LEFT.
Exit Terminal C/ Hyatt Regency DFW Hotel.
Follow signs for Terminal C, and Hyatt Regency DFW will be on your right.
Conference Hours & Details
- Registration Hours
- Exhibit Hall
- Participate in Research
- Photography/Video/Audio Release
- Nurses
- Kids & Teens
- Oxygen
Thursday, June 8th
1 pm – 4 pm
Friday, June 9th
9:00 am – 5:00 pm
Saturday, June 10th
8:00 am – 2:00 pm
Exhibit Hall Hours
Friday, June 9th
12:30 pm – 5:30 pm
Saturday, June 10th
8:00 am – 5:00 pm
Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.
Things to Know and FAQs
- Dress Code
- Cell Phones and Electronic Devices
- Name Badges
- Online Viewing and Participation
- Cancellation Policy
- FAQs Frequently Asked Questions
You may want to bring a sweater or light jacket, as the meeting rooms in the hotel may be cold.
Please avoid wearing perfumes, colognes or other scented items. This can trigger a serious asthma attack for some Alphas.
We ask that you please silence your cell phones and other electronic communication devices during the general and breakout sessions.
Supplementing badges with business cards or altering, adding to or defacing the official conference badge is not permitted.
Company badges may also be worn, but will not be accepted as a replacement of the official conference badges.
Many conference sessions will be available to view virtually. The link to enter the conference virtually will be distributed by email when the conference begins.
Please note: continuous internet access is required to watch the conference online.
For the best virtual experience:
Use Chrome or Firefox (not Safari) as your browser to ensure compatibility with the platform.
Make sure to disable any popup blockers.
It is best to use a laptop or desktop computer to view the videos and presentations.
All cancellation requests must be submitted via email to kcaraballo@alpha1.org by May 31, 2023 to receive a full refund.
Registration or Cancellation Questions?
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
kcaraballo@alpha1.org
I noted a special dietary request on my registration. How do I let the hotel know?
Participants who have made a special dietary request will have it noted on their name badge in the bottom right hand corner with the following letters: VN = vegan; G = gluten free; VEG = vegetarian. Please make sure to let your server know that you need a special meal and show them your name badge.
I am industry and/or an exhibitor. Where do I pick up my registration materials?
Exhibitors and members of industry should pick up their registration materials at the main conference registration desk labeled during normal onsite conference registration hours.
I am a first-time conference attendee. What should I attend?
Be sure to attend:
- The Conference Orientation on Friday where the speaker will give a detailed overview of the conference and agenda.
- The Alpha-1 101 sessions on Friday will provide introductory patient-oriented talks about Alpha-1 in the lungs and liver.
Have a question not answered above? Contact us.
General Questions and Registration:
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
kcaraballo@alpha1.org
Sponsorship and Exhibit Opportunities:
Alexis Artiles Ojeda, Director of Marketing and Events
aartiles@alpha1.org
- 2022 Alpha-1 National Conference Highlights
- 2021 Alpha-1 National Conference Highlights
- 2020 Alpha-1 National Conference Recap Video
- 2018 National Education Conference Highlights
- 2017 National Education Conference Highlights
- 2016 National Education Conference Highlights
- 2015 National Education Conference Highlights
View the 2021 Alpha-1 National Conference Presentations Here
The Alpha-1 Foundation Launches the 2021 Virtual Alpha-1 National Conference
DAY 1 Recap: 2021 Virtual Alpha-1 National Conference
Day 2 Recap: 2021 Virtual Alpha-1 National Conference
Day 3 Recap: 2021 Virtual Alpha-1 National Conference
The 2021 Emerging Therapies session was supported by:
Arrowhead | Dicerna | INHIBRX | Kamada | Mereo Biopharma
The 27th Annual National Education Conference will be streaming online
View the 2018 conference agenda as a pdf.
All of the 2018 conference presentations will be available to view online at your convenience by August 24th.
The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year’s conference.
Thank you to our 2018 Platinum Sponsors:
- AlphaNet
- CSL Behring
- Grifols
- Shire
Thank you to our 2018 Gold Sponsor:
- Dohmen Life Science Services
Thank you to our 2018 Silver Sponsors:
- Accredo
- Coram
- Diplomat Specialty Infusion Group
Thank you to our 2018 Bronze Sponsors:
- Advanced Aeromedical
- Arrowhead Pharmaceuticals
- Adverum Biotechnologies
- Insmed
- Philips RespirTech
Thank you to our 2018 Non-profit Sponsors:
- COPD Foundation
- National Organization for Rare Disorders (NORD)
- Patient Services, Inc (PSI)
- Plasma Protein Therapeutics Association (PPTA)
- University of Florida Alpha-1 Antitrypsin Research Program
View the 2017 Conference Agenda as a PDF here.
All of the 2017 conference presentations are available to view online at your convenience.
Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire
Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services
Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat
Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals
Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)
View the 2016 Conference Agenda as a PDF here.
All of the 2016 conference presentations are available to view online at your convenience.
One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!
For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.
The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that “regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.
Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.
THANK YOU to our 2016 Presenting Sponsors:
- AlphaNet
- Baxalta
- CSL Behring
- Grifols
Thank you to our 2016 Lead Sponsor:
Dohmen Life Science Services
Thank you to our 2016 Exhibitors:
- Accredo
- BioRx
- Coram
Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:
Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida
Thank you to our 2015 Presenting Sponsors:
AlphaNet Baxalta CSL Behring Grifols
Thank you to our 2015 Lead Sponsor:
Dohmen Life Science Services
Thank you to our 2015 Exhibitors:
Accredo BioRx Coram
Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:
Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation
