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Alpha-1 National Conference

The Alpha-1 National Conference is the largest annual gathering of Alphas, their families, leading healthcare professionals, and industry in the world. It is a multiple-day event with educational programs given by national experts and leaders in the Alpha-1 field. The conference provides a unique opportunity to increase your understanding of Alpha-1 and network with patients diagnosed with Alpha-1, their families, industry, and healthcare professionals such as respiratory therapists, nurse practitioners, physicians, and nurses.

The 2023 Alpha-1 National Conference will take place June 9-11, 2023 in Dallas, TX. The conference will take place in person and will be available for virtual participation as well.

Conference Information

About the 2023 Alpha-1 National Conference
The conference will take place June 9-11, 2023 at the Hyatt Regency DFW International Airport.

The conference features a full two-day agenda that will be held in person in Dallas, TX, and will also be available to attendees virtually. The conference includes:

  • Fun interactive events,
  • Engaging presentations,
  • Alpha-1 education including several timely topics of interest and patient testimonials,
  • Multiple open forum Q&A sessions with speakers and Alphas,
  • And dedicated time with the exhibitors in the Exhibit Hall
Conference-at-a-Glance

 *The times & details on this conference-at-a-glance are subject to change* 

 

T H U R S D A Y ,  J u n e  8 t h
1:00 pm – 4:00 pmEarly Conference Registration
F R I D A Y ,  J u n e  9 t h
8:00 am – 10:00 amBreakfast
10:00 am – 12:15 pmIntroduction to Alpha-1 Track: Conference Orientation for First Time Attendees, Alpha-1 101 Lung, and Alpha-1 101 Liver
10:00 am – 12:15 pmTherapeutic Innovation Track: The Foundation’s Research Agenda, Lung & Liver Imaging, and the Alpha-1 Biomarkers Consortium (A1BC)
12:30 pm – 2:00 pmLunch
2:00 pm – 4:10 pmIntroduction to Alpha-1 Track: Clinical Trials & How a Therapy Comes to Market
2:00 pm – 4:10 pmTherapeutic Innovation Track: Emerging Therapies in Alpha-1
4:30 pm – 5:30 pmAlpha-1 Research Registry Celebration
6:30 pm – 9:00 pmFriday Evening Reception – Western Party!
S A T U R D A Y ,  J u n e  10 t h
8:00 am – 9:00 amBreakfast
9:00 am – 12:00 pmGeneral Sessions including Alpha-1 Research Panel
12:00 pm – 1:00 pmMeet the Speakers
1:00 pm – 2:00 pmLunch
2:00 pm – 4:50 pmThree Afternoon Tracks: General Patient Care & Treatment as an Alpha – Questions to Ask Your Doctor, Regenerative Medicine: The State of the Science & Tissue Regeneration, Pre- and Post-Transplant, Current and Future Therapies in Liver Disease, Genetics, Family Testing, & Phenotypes, Long Term Health and Wellness for Alpha-1 Kids, & more!
7:00 pm – 9:00 pmDinner Reception
S U N D A Y ,  J u n e  11 t h
8:00 am – 9:30 amBreakfast
8:30 am – 9:30 amMemorial Service
Industry and Exhibitors
All persons who are employed by an industry company or consultants must register to attend as an exhibitor, even if they will not be participating in an exhibit booth, including MSLs and healthcare providers. For any questions or to register as an exhibitor, please contact Angela McBride at amcbride@alpha1.org
COVID-19 Safety Acknowledgment
The health and well-being of the Alpha-1 community are our top priority. For those planning to attend in person, please read the COVID-19 Safety Acknowledgment – Event Liability Waiver and Release of Claims.

Accommodations & Travel

Hyatt Regency DFW International Airport

2334 North International Parkway, DFW Airport, Texas, United States, 75261

(972) 453-1234

The Alpha-1 Foundation has secured a number of discounted hotel rooms at the venue for conference participants. Reservations are assigned on a first-come, first-served basis. As the hotel fills up very quickly, we strongly recommend that you complete your hotel reservation as soon as you register to attend the conference. Please be sure to do so within the Alpha-1 Foundation National Conference Room Block linked below.

National Conference Room Block Details

Discounted Rate – $129 plus tax
Discounted Rate Deadline – May 15, 2023
Rate Availability – The discounted rate is available to conference participants three (3) days pre and post the official dates of the program, based on availability.

Reservation Instructions

Reserve your hotel room online via the unique web link for the Alpha-1 Foundation National Conference Block.

Airport:

 

Dallas Fort Worth (DFW) International Airport

Hotel Airport Shuttles

Hyatt Regency DFW International Airport offers complimentary 24/7 shuttle service between the hotel and all DFW terminals.

To arrange a pick-up from DFW Airport terminals, call (972) 453-1234, text (972) 325-0899. Please include your name, terminal, gate number, and the number of people in your party. Access the Hyatt shuttle on the terminal’s lower level.

For transfers from Hyatt Regency DFW to DFW Airport terminals, hotel shuttles depart the main hotel lobby every 20 minutes beginning on the hour.

Driving Directions to Hotel:

You can enter the Airport from Highway 183 from the south or Highway 114/Highway 635 from the north.

The airport itself has one road, International Parkway, which runs the length of the airport, north to south.

Self-Parking is provided complimentary for attendees.

ALL guests, including those with a TOLLTAG:
Enter DFW Air-port Toll Plaza through lanes marked “TICKET OR QR CODEONLY.
Pull a ticket and provide it to a hotel attendant for validation.
DO NOT ENTER through lanes marked TollTag. Otherwise, your TollTag will be charged and you will be responsible for the daily parking rate.

Once inside the airport, all exits are on the LEFT.
Exit Terminal C/ Hyatt Regency DFW Hotel.
Follow signs for Terminal C, and Hyatt Regency DFW will be on your right.

Conference Hours & Details

The conference registration desk will be open the following hours for attendees, exhibitors and industry:

Thursday, June 8th
1 pm – 4 pm

Friday, June 9th
9:00 am – 5:00 pm

Saturday, June 10th
8:00 am – 2:00 pm

The Alpha-1 National Conference Exhibit Hall provides conference participants the opportunity to meet directly with exhibitors and learn about their products and services. It is the central conference location for networking; where valuable connections and friendships can be made.

Exhibit Hall Hours

Friday, June 9th
12:30 pm – 5:30 pm

Saturday, June 10th
8:00 am – 5:00 pm

Representatives of Alpha-1 research studies will be attending the conference and exhibiting to enroll those individuals interested in participating in Alpha-1 research.

The Alpha-1 Foundation will have official photographers and videographers at this event. Photos, videos, and audio taken may be used in the future by A1F in marketing, advertising, and publications. By registering for this event, you automatically agree to allow the A1F the possible use of your likeness – in all media formats worldwide. The 2023 Alpha-1 National Conference is held in a public space and, therefore, we cannot prohibit participants, exhibitors, sponsors, or news organizations from photographing or video-taping. Thus, you also agree to hold the Alpha-1 Foundation harmless if photos, video and audio are used that include your likeness on social media and/or future marketing materials.
More information to come.
More information to come.
More information to come.

Things to Know and FAQs

Dress is casual for all conference meetings, sessions and dinners.

You may want to bring a sweater or light jacket, as the meeting rooms in the hotel may be cold.

Please avoid wearing perfumes, colognes or other scented items. This can trigger a serious asthma attack for some Alphas.

We ask that you please silence your cell phones and other electronic communication devices during the general and breakout sessions.

All conference attendees must wear the official Alpha-1 National Conference name badge at all times in order to enter the exhibit hall and attend sessions and meals. Anyone not wearing an official conference name badge may be asked to leave the conference area.

Supplementing badges with business cards or altering, adding to or defacing the official conference badge is not permitted.

Company badges may also be worn, but will not be accepted as a replacement of the official conference badges.

Many conference sessions will be available to view virtually. The link to enter the conference virtually will be distributed by email when the conference begins.

Please note: continuous internet access is required to watch the conference online.

For the best virtual experience:

Use Chrome or Firefox (not Safari) as your browser to ensure compatibility with the platform.

Make sure to disable any popup blockers.

It is best to use a laptop or desktop computer to view the videos and presentations.

Participants unable to attend the 2023 Alpha-1 National Conference will receive a refund equivalent to 100% of their paid registration fee, provided that the Alpha-1 Foundation registration department is advised of the cancellation in writing prior to May 31, 2023.

All cancellation requests must be submitted via email to kcaraballo@alpha1.org by May 31, 2023 to receive a full refund.

Registration or Cancellation Questions?
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
kcaraballo@alpha1.org

I noted a special dietary request on my registration. How do I let the hotel know?

Participants who have made a special dietary request will have it noted on their name badge in the bottom right hand corner with the following letters: VN = vegan; G = gluten free; VEG = vegetarian. Please make sure to let your server know that you need a special meal and show them your name badge.

 I am industry and/or an exhibitor. Where do I pick up my registration materials?

Exhibitors and members of industry should pick up their registration materials at the main conference registration desk labeled during normal onsite conference registration hours.

 I am a first-time conference attendee. What should I attend?

Be sure to attend:

  • The Conference Orientation on Friday where the speaker will give a detailed overview of the conference and agenda.
  • The Alpha-1 101 sessions on Friday will provide introductory patient-oriented talks about Alpha-1 in the lungs and liver.

 Have a question not answered above? Contact us.

General Questions and Registration:
Kim Caraballo, Community Outreach Coordinator
(877) 228-7321, Ext. 323
kcaraballo@alpha1.org

Sponsorship and Exhibit Opportunities:
Alexis Artiles Ojeda, Director of Marketing and Events
aartiles@alpha1.org

We can’t wait to see you at the Alpha-1 community event of the year! If you have any additional questions, please contact Cathey Henderson at chenderson@alpha1.org.
Platinum Sponsors
Silver Sponsors
Past Alpha-1 National Conference Highlights
The 27th National Education Conference opens with a panel on the latest Alpha-1 findings

The 27th Annual National Education Conference will be streaming online

Margaret Anderson will deliver keynote speech at the Alpha-1 Annual National Education Conference in San Francisco

View the 2018 conference agenda as a pdf.

All of the 2018 conference presentations will be available to view online at your convenience by August 24th.

The Alpha-1 Foundation would like to thank all of the sponsors for participating in this year’s conference.

Thank you to our 2018 Platinum Sponsors:

  • AlphaNet
  • CSL Behring
  • Grifols
  • Shire

Thank you to our 2018 Gold Sponsor:

  • Dohmen Life Science Services

Thank you to our 2018 Silver Sponsors:

  • Accredo
  • Coram
  • Diplomat Specialty Infusion Group

Thank you to our 2018 Bronze Sponsors:

  • Advanced Aeromedical
  • Arrowhead Pharmaceuticals
  • Adverum Biotechnologies
  • Insmed
  • Philips RespirTech

Thank you to our 2018 Non-profit Sponsors:

  • COPD Foundation
  • National Organization for Rare Disorders (NORD)
  • Patient Services, Inc (PSI)
  • Plasma Protein Therapeutics Association (PPTA)
  • University of Florida Alpha-1 Antitrypsin Research Program
The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 26th annual conference in Chicago, IL was no exception. After final review, 652 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2017 Conference Agenda as a PDF here.

All of the 2017 conference presentations are available to view online at your convenience.

Thank you to our 2017 Platinum Sponsors:
AlphaNet
CSL Behring
Grifols
Shire

Thank you to our 2017 Gold Sponsor:
Dohmen Life Science Services

Thank you to our 2017 Silver Sponsors:
Accredo
Coram
Diplomat

Thank you to our 2017 Bronze Sponsors:
Advanced Aeromedical
Arrowhead Pharmaceuticals

Thank you to our 2017 Non-profit Sponsors:
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc
Plasma Protein Therapeutics Association (PPTA)

The Alpha-1 Foundation’s Annual National Education Conference is a unique opportunity for many newly diagnosed Alphas and their families to receive answers to their questions and meet others like them. The 25th annual conference in Miami, FL was no exception. After final review, 610 attendees from 45 states and 5 countries gathered on June 24 – 26 to speak to leading experts on Alpha-1, network with peers, and get involved in the Alpha-1 community through local support groups, research, awareness activities and fundraising.

View the 2016 Conference Agenda as a PDF here.

All of the 2016 conference presentations are available to view online at your convenience.

One of the highlights Friday afternoon was the Community Forum, which offered attendees an opportunity to meet with community leaders and discuss ways they can participate in shaping the future of Alpha-1. This was especially fitting with this year’s theme “Without YOU There Is No Solution.” Further weaving the theme throughout the weekend was the Foundation’s exhibit booth, which featured a quiz entitled “What is Your Alpha-1 Personality?” Over 40 percent of attendees took the quiz and were given one of four results: advocacy, fundraising, research or support. Take the Alpha-1 quiz and share your results with the Foundation on social media!

Read more about “helping ordinary people do extraordinary things” and the rest of Friday’s conference program.

For the second year, the conference offered Meet the Experts, an opportunity for Alphas, their caregivers and families to have “15-minute conversations” with Alpha-1 Clinical Resource Center physicians and ask their questions face-to-face. Over 45 Alphas and their guests took advantage of this opportunity and met with six doctors and the Alpha-1 Genetic Counselor.

The Foundation took time over the weekend to honor the many contributions and achievements that members of the Alpha-1 community have made. Friday evening at the Building Friends for a Cure (BFC) awards, attendees heard the Starfish Story about helping to save one beach-stranded starfish at a time, to make the point that “regardless of how insignificant it may seem to the eyes of others, we can all make a difference.” Read about this year’s many creative and inspired fundraisers.

Presented jointly by the Foundation and AlphaNet, the Advancement of Research Award was given to Mark Brantly, MD on Saturday evening for his dedication and determination to finding a cure for Alpha-1. The Foundation presented six more honorees with awards including the Dennis Pollock Spirit of Advocacy Award and the Inspirational Award. Read more.

THANK YOU to our 2016 Presenting Sponsors:

    • AlphaNet

 

    • Baxalta

 

    • CSL Behring

 

  • Grifols

Thank you to our 2016 Lead Sponsor:

Dohmen Life Science Services

Thank you to our 2016 Exhibitors:

    • Accredo

 

    • BioRx

 

  • Coram

Thank you to our 2016 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Adult Liver Study
Advanced Aeromedical
Arrowhead Pharmaceuticals, Inc.
COPD Foundation
Heritage Biologics
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
State of Florida Detection Program
University of Florida

View the full 2015 Conference Agenda here.

2015 Alpha-1 National Conference opens with inspirational Appalachian Trail story, meetings with experts and session on community engagement.

Building Friends for a Cure honors community fundraisers; BFC program has raised more than $5 million over 10 years.

Thank you to our 2015 Presenting Sponsors:

AlphaNet     Baxalta    CSL Behring     Grifols

 

Thank you to our 2015 Lead Sponsor:

Dohmen Life Science Services

 

Thank you to our 2015 Exhibitors:

Accredo      BioRx      Coram

 

Thank you to our 2015 Partners, Exhibitors, Non-profit Partners, and Research Studies:

Advanced Aeromedical
COPD Foundation
National Organization for Rare Disorders (NORD)
Patient Services, Inc.
Plasma Protein Therapeutics Association (PPTA)
REACH
University of Florida Clinical Trials
Alpha-1 Antitrypsin Deficiency Adult Clinical and Genetic Linkage Study
Arrowhead Research Corporation

Accreditations

Alpha-1 Events Calendar

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