Alpha-1 Education Days
The Alpha-1 National Education Day Series provides access to current medical information and resources for Alphas and their families and are held in a variety of regions in the US. All Education Days are free for patients and attendees.
2021 Alpha-1 Education Days
Click on the date below for more information and to register to attend.
Saturday, February 27th
Agenda
9:00 – 10:00 am PT
ZOOM Coffee Meet & Greet
10:00 – 10:30 am PT
Visit the Exhibit Hall, Networking Lounge & Resource Center
10:30 – 10:45 am PT
2021 Alpha-1 Foundation Plans
Miriam O’Day, President & CEO, Alpha-1 Foundation
10:45 am – 11:00 am PT
Alpha-1 Research Registry Update
Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation
11:00 – 11:30 am PT
Lung & Liver Exacerbations
Alan Barker, MD, Professor of Medicine, Division of Pulmonary and Critical Care Medicine, School of Medicine
11:30 – 12:00 pm PT
Alpha-1 Pediatric Liver Disease
Philip Rosenthal, MD, Professor of Pediatrics and Surgery, Director of Pediatric Hepatology Research, University of California, San Francisco
12:00 – 12:30 pm PT
Visit the Exhibit Hall, Networking Lounge & Resource Center
12:30 – 1:00 pm PT
Rare Disease Presentation
1:00 – 1:10 pm PT
Patient Perspective
Judy Simon
1:10 – 1:25 pm PT
COVID-19 & Vaccine Update: Recommendations for Alphas
Robert A. Sandhaus, MD, PhD, FCCP, Clinical Director, Alpha-1 Foundation
1:25 – 1:40 pm PT
Advocacy & Political Updates
Miriam O’Day, President & CEO, Alpha-1 Foundation
1:40 – 2:00 pm PT
Vaccine Development – What is Happening Now?
Gregory M. Holt, MD, PhD, Critical Care Medicine, Pulmonology, University of Miami
2:00 – 2:15 pm PT
Question and Answers
2:15 – 2:30 pm PT
Chat with an Alpha Doc!
Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation
Saturday, March 20, 2021
Agenda
9:00 – 10:00 am ET
ZOOM Coffee Meet & Greet
10:00 – 10:30 am ET
Visit the Exhibit Hall, Networking Lounge & Resource Center
10:30 – 10:50 am ET
Welcome & Alpha-1 Foundation Update
Miriam O’Day, President & CEO, Alpha-1 Foundation
10:50 – 11:10 am ET
Alpha-1 Liver 101
Alyson Fox, MD, Associate Professor of Medicine,Columbia University Medical Center
11:10 am – 11:30 am ET
Alpha-1 Lung 101
Monica Goldklang, MD, Assistant Professor of Medicine, Pulmonary Disease Medicine, Columbia University Medical Center
11:30 – 11:50 am ET
Alpha-1 Pediatrics
Dana Goldner, MD, Assistant Professor of Pediatrics, Pediatric Hepatology, Columbia University Medical Center
11:50 – 12:00 pm ET
Visit the Exhibit Hall, Networking Lounge & Resource Center
12:00 – 12:30 pm ET
Q&A Session With the Speaker
Jeanine D’Armiento, MD, PhD, Monica Goldklang, MD, Dana Goldner, MD, Miriam O’Day
12:30 – 12:50 pm ET
Visit the Exhibit Hall, Networking Lounge & Resource Center
12:50 – 1:00 pm ET
Transplant Patient Perspective
Jon Hagstrom
1:00 – 1:15 pm ET
Surgical and Non-Surgical Options for Alphas
Byron Thomashow, MD, Professor of Medicine, Medical Director, Jo-Ann LeBuhn Center for Chest Disease, Columbia University Medical Center
1:15 – 1:30 pm ET
Transplantation and Alphas
Luke Benvenuto, MD, Assistant Professor of Medicine, Columbia University Medical Center
1:30 – 2:00 pm ET
Visit the Exhibit Hall, Networking Lounge & Resource Center
2:00 – 2:20 pm ET
COVID-19 Update
Jeanine D’Armiento, MD, PhD, Chair, Board of Directors, Alpha-1 Foundation
2:20 – 3:00 pm ET
Live Q&A with the Speakers
Jeanine D’Armiento, MD, PhD, Jon Hagstrom, Byron Thomashow, MD, Luke Benvenuto, MD
Location
VIRTUAL ONLINE EVENT
Registration
Click here to register for the Virtual Alpha-1 Education Day.
Agenda
Saturday, April 17, 2021
9:00 – 9:50 am CT
ZOOM Coffee Meet & Greet
9:50 – 10:30 am CT
Visit the Exhibit Hall, Networking Lounge & Resource Center
10:30 – 10:50 am CT
Welcome & Alpha-1 Foundation Update
Miriam O’Day, President & CEO, Alpha-1 Foundation
10:50 – 11:10 am CT
Alpha-1 Research Registry Update
Jeanine D’Armiento, MD, PhD, Chair of the Alpha-1 Foundation Board of Directors
11:10 am – 11:25 am CT
Alpha-1Coded Testing (ACT) Study & Genetic Counseling
Jesse West, RN, CCRC, Certified Clinical Research Nurse, Pulmonary Division, Department of Medicine, University of Florida
11:30 – 11:50 am CT
Q&A with the Speakers
Miriam O’Day, Jeanine D’Armiento, MD, PhD, Jesse West, RN, CCRC
11:50 – 12:30 pm CT
Visit the Exhibit Hall, Networking Lounge & Resource Center
12:30 – 12:40 pm CT
Patient & Alpha-1 Parent Perspective
Nora Kemmerer
12:40 – 1:05 pm CT
Alpha-1 Liver Disease in Children
Jeff Teckman, MD, Professor of Pediatrics and Biochemistry, Associate Chair of Pediatrics for Research, Director of Pediatric Gastroenterology and Hepatology, St. Louis University School of Medicine, Cardinal Glennon Children’s Medical Center
1:05 – 1:30 pm CT
Alpha-1 Liver Disease
Virginia Clark, MD, MS, Associate Professor of Medicine, Division of Gastroenterology, Hepatology and Nutrition, University of Florida
1:35 – 2:00 pm CT
COVID-19 and Vaccine Update
Mark Brantly, MD, Scientific Director, Alpha-1 Foundation
2:00 – 2:30 pm CT
Q&A with the Speakers
2:30 – 3:00 pm CT
Chat with an Alpha Doc!
Jeanine D’Armiento, MD, PhD, Chair of the Alpha-1 Foundation Board of Directors
Location
VIRTUAL ONLINE EVENT
These Alpha-1 Education Day learning activities have been approved by the American Association for Respiratory Care (AARC) for 6 hours of Continuing Respiratory Care Education (CRCE).
The Alpha-1 Foundation’s Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, call 877-228-7321 ext 251 with at least 30 days notice.
Please visit our E-Education section to view videos of past Education Days and National Conferences.
