Alpha-1 Education Days
The Alpha-1 National Education Day Series provides access to current medical information and resources for Alphas and their families and are held in a variety of regions in the US. All Education Days are free for patients and attendees.
2021 Alpha-1 Education Days
Click on the date below for more information and to register to attend.
At a Glance
The first Alpha-1 Education Day of the year will feature Alpha-1 experts from the Northwest region of the country. The morning coffee social will highlight local Alpha-1 Support Groups and introduce attendees to the local Support Group Leaders and AlphaNet Coordinators.
The day will include topics of interest to the entire Alpha-1 community and feature a special focus on Rare Disease Day, which takes place on Sunday, February 28th this year.
Registration
Click here to register for the Virtual Alpha-1 Education Day
Agenda
Saturday, February 27th
9:00 – 10:00 am PT
ZOOM Coffee Meet & Greet
10:00 – 10:30 am PT
Vist the Exhibit Hall, Networking Lounge & Resource Center
10:30 – 10:45 am PT
2021 Alpha-1 Foundation Plans
Miriam O’Day, President & CEO, Alpha-1 Foundation
10:45 am – 11:00 am PT
Alpha-1 Research Registry Update
Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation
11:00 – 11:30 am PT
Lung & Liver Exacerbations
Alan Barker, MD, Professor of Medicine, Division of Pulmonary and Critical Care Medicine, School of Medicine
11:30 – 12:00 pm PT
Alpha-1 Pediatric Liver Disease
Philip Rosenthal, MD, Professor of Pediatrics and Surgery, Director of Pediatric Hepatology Research, University of California, San Francisco
12:00 – 12:30 pm PT
Visit the Exhibit Hall, Networking Lounge & Resource Center
12:30 – 1:00 pm PT
Rare Disease Presentation
1:00 – 1:10 pm PT
Patient Perspective
Judy Simon
1:10 – 1:25 pm PT
COVID-19 & Vaccine Update: Recommendations for Alphas
Robert A. Sandhaus, MD, PhD, FCCP, Clinical Director, Alpha-1 Foundation
1:25 – 1:40 pm PT
Advocacy & Political Updates
Miriam O’Day, President & CEO, Alpha-1 Foundation
1:40 – 2:00 pm PT
Vaccine Development – What is Happening Now?
Gregory M. Holt, MD, PhD, Critical Care Medicine, Pulmonology, University of Miami
2:00 – 2:15 pm PT
Question and Answer
2:15 – 2:30 pm PT
Chat with an Alpha Doc!
Jeanine D’Armiento, MD, PhD, Chair of the Board of Directors, Alpha-1 Foundation
Location
VIRTUAL ONLINE EVENT
Registration
Stay tuned for the registration!
Agenda
Saturday, March 20, 2021
Stay tuned for the agenda!
Location
VIRTUAL ONLINE EVENT
Registration
Stay tuned for the registration!
Agenda
Saturday, April 17, 2021
Stay tuned for the agenda!
Location
VIRTUAL ONLINE EVENT
These Alpha-1 Education Day learning activities have been approved by the American Association for Respiratory Care (AARC) for 6 hours of Continuing Respiratory Care Education (CRCE).
The Alpha-1 Foundation’s Oxygen Travel Fund provides oxygen and equipment for Alphas in financial need to travel to Alpha-1 educational events. To apply, call 877-228-7321 ext 251 with at least 30 days notice.
Please visit our E-Education section to view videos of past Education Days and National Conferences.
