Special Issues

The Alpha-1 Association has aligned with a number of special initiatives along with strategic partners to accomplish its public objectives and to provide timely information on issues of importance to the Alpha-1 Community. Those special initiatives are below.

 

Issues and Information Relating to Organ Allocation

The Alpha-1 Foundation with the support of the Alpha-1 Association has petitioned UNOS to establish a separate LAS grouping for Alphas based upon our unique genetic clinical factors, but we need your help. We cannot fight this with abstract statistics alone; we need your personal stories, we need to communicate your frustrations. We need to go back to those in Washington who oversee transplant policy with real life experiences to right this wrong.

 

 

Issues and Information Relating to the Genetic Information Non-Discrimination Act

The Genetic Information Nondiscrimination Act prohibits group health plans and health insurers from denying coverage to a healthy individual or charging that person higher premiums based solely on a genetic predisposition to developing a disease in the future. The legislation also bars employers from using individuals' genetic information when making hiring, firing, job placement, or promotion decisions.

 

 

Issues and Information Relating to Home Oxygen

Home oxygen is much more than a piece of oxygen equipment; it is a healthcare service that provides life-supporting oxygen, which enables patients to breathe. This section contains information regarding Medicare's Competitive Bidding Program for Home Medical Equipment and Services, improved oxygen delivery technology, traveling with oxygen and more.