Advocacy Toolkit

Grassroots advocacy personalizes the issues that matter most to you, empowering you to inform legislators that may not be familiar with Alpha-1 Antitrypsin Deficiency and help to move forward our public policy agenda. We encourage you to become an active Advocate on behalf of the Alpha-1 Association and Alpha-1 Foundation. Alpha-1 Advocates can be a powerful force when members are united in advancing public policy that is relevant to issues that affect individuals living with Alpha-1. You can help influence the outcome of legislation and make a difference for yourself, your loved ones and for the Alpha-1 Community.


Watch the Advocacy Training Video

The key to effective advocacy is knowing about the process, the issue, goals, facts, strategy, allies, opposition and the people, who will make a difference in the success or failure of the campaign. The battle goes to the prepared, and the familiar adage of "knowledge is power" provides significant advantage in this process. This Advocacy Training video that was developed by Alpha-1 Association staff, Board Members, Grassroots Advocates and other community partners to help you in that battle. It will not only help you hold effective legislative meetings and become skilled on how to tell your unique Alpha-1 story, but it will also help you campaign on specific federal and state issues that may arise in your district.



Become an Alpha-1 Advocate

Join the Alpha-1 Grassroots Advocacy Network and become an Alpha-1 Advocate. You will:


  • Receive special advocacy briefings by email and telecall
  • Be asked to take action on issues and inform us of your activities so we can track the effectiveness of our grassroots network
  • Have the opportunity to participate in other advocacy activities as they develop in your state or at the national level.
  • Have the opportunity to receive advocacy training materials and attend advocacy training's.


Aimee Bulthuis, with the COPD Foundation is charged with maintaining both the Alpha-1 and COPD Grassroots Advocacy Network. Please reach out to Aimee if you would like to become involved in grassroots advocacy by contacting her at