Message from the Chair
Our Foundation’s Strategic Plan is two-fold: 1) to find a cure for Alpha–1, and 2) to improve the lives of people affected by Alpha–1 worldwide.
To accomplish this, we have identified eight strategic goals: Research and Development, Detection and Healthcare, Public Policy and Advocacy, Community Engagement, Global Network, Communication, Funding and Fundraising and Human Resources.
Gordon E. Cadwgan, PhD, Chairman of the Alpha-1 Foundation Board of Directors
Each one of these goals is important but research and development to find a cure is, and always has been, our “reason for being.” To that end, we continue to invest more than $2 million every year in basic research and now more than $3 million total in “translational research” through the Alpha–1 Project (TAP).
Our research focus, especially in TAP, has shifted from the lung to the liver for two reasons:
- With better care and therapy we are living longer and are more likely to develop liver disease due to entrapped Alpha–1
- The liver is a prime target for gene therapy, a method which shows great promise to “shut down” production of mal-formed Alpha–1 and “turn on” production of good Alpha–1.
I see the seven remaining goals as pillars supporting our main goal and ask everyone—staff, fellow alphas, family, friends, associates, to ask themselves each day “What am I doing now that will lead us to the cure?”
- Find more alphas, increase the strength of our organization, apply our proven healthcare programs to extend and improve their lives.
- Engage these people in our community, encourage them to participate in their community or directly in the Foundation to achieve our goals.
- Communicate amongst ourselves and outside our community to spread the word of Alpha–1 worldwide.
- Ensure that we work closely with our local, state and country governments to advocate for our health priorities and participate directly in research available through government agencies.
- Raise the money necessary to accomplish our goals; easily said but not an easy task.
- And finally, develop each and everyone of us, alphas and those working with us, to their full potential.
- People are our most important resource. Their voice, their ideas, their energy, their participation, their commitment will get us to the final goal of finding a cure.