Testing for Alpha-1
The Alpha-1 Foundation supports testing for those at risk for Alpha-1. In response to concerns surrounding testing, privacy and the benefit of an early diagnosis, the Alpha-1 Foundation developed a free and confidential opportunity for testing. This is a research study called the Alpha-1 Coded Testing (ACT) Study.
The Foundation also established the Alpha-1 Research Registry to encourage research, the development of new treatments and a cure for Alpha-1. The Registry is a confidential database made up of both Alphas and Alpha-1 carriers.
Also, genetic counselor services are available at the Alpha-1 Foundation to provide support and information to patients, caregivers and healthcare professionals.