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Alpha-1 Winter 2016 Cover

Alpha-1-To-One magazine

Alpha-1-To-One magazine is filled with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency.

In the Winter 2016 issue:

On the cover: Researchers from the University of Massachussetts and Boston University collaborate in unprecedented ways in the search for a cure. The Foundation and FDA leaders discuss the ethics of placebos in clincal trials. Two families illustrate that most Alpha-1 kids grow up lead active, happy lives with few complications. Support group leaders use their training to raise awareness of Alpha-1.

 

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Life Choices

Life Choices is a toolkit that addresses the needs of Alpha-1 patients and family members related to end of life decisions. It focuses on the legal, clinical and emotional needs in a constructive, supportive and positive manner. It promotes dialogue among family members regarding sensitive issues and moves a person to a new understanding regarding end of life wishes. We gratefully acknowledge CSL Behring and Grifols for sponsoring this program.

Life Choices includes a Five Wishes Living Will which "helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It deals with all of a person's needs: medical, personal, emotional and spiritual."

The resources found in Life Choices can be downloaded below as PDFs: