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Alpha-1-To-One Magazine Archive

  
Vol 16, No. 1 (Spring 2018)
Vol 16, No. 1 (Spring 2018)

In this issue you can read about the scope of the endeavor that 23-year-old Jonathan Maidment has assumed for the last 4 years, to raise funds for Alpha-1 Antitrypsin Deficiency (Alpha-1) research. His inspiration knows no boundaries and his determination has turned every obstacle into a triumph. Also, the Alpha-1 Foundation celebrates the first granting of the John W. Walsh Translational Research Award in Alpha-1, an honorable award named after John W. Walsh, co-founder of the Foundation, a visionary man who dedicated his life’s work to finding a cure for Alpha-1 and helping those affected by it.

Vol 15, No. 3 (Winter 2017)
Vol 15, No. 3 (Winter 2017)

This issue of Alpha-1-To-One features Gerard M. Turino, MD. Known as a “tireless master clinician,” Turino paved the way for thousands of pulmonologists. From published papers in medical journals to many scientific achievements, the renowned researcher plans to continue his career and leave a lasting legacy with his latest scientific venture.

Vol 15, No. 2 (Fall 2017)
Vol 15, No. 2 (Fall 2017)

Cover Story: John W. Walsh, co-founder of the Alpha-1 Foundation, passed away March 2017. He tirelessly forged a patient-centered movement that not only changed the Alpha-1 landscape, but also the way patients are seen and respected in the health sector.

Vol. 15, No. 1 (Spring 2017)
Vol. 15, No. 1 (Spring 2017)

Cover Story: The Alpha-1 Foundation expresses their gratitude for AlphaNet's milstone $50 million contribution, and point out to the $65 million on spending on the Foundation's research program that AlphaNet helped make possible. 

Vol 14, No. 3 (Winter 2016)
Vol 14, No. 3 (Winter 2016)

Cover Story: Researchers from the University of Massachussetts and Boston University collaborate in unprecedented ways in the search for a cure. 

Vol 14, No. 2 (Fall 2016)
Vol 14, No. 2 (Fall 2016)

Cover: New Alpha-1 Foundation CEO Henry Mohering talks about his first months and the vision for  the future. Robert Sandhaus, MD, PhD, gives an overview of updated clinical guidelines for diagnosis and treatment of Alpha-1. Alpha Julie MacNeil's diagnosis sparks a journey to find her birth mother.

Vol 14, No. 1 (Spring 2016)
Vol 14, No. 1 (Spring 2016)
  • Cover: Mark Brantly, MD, talks about his career and hopes for new therapies. "I promised everybody that I was going to develop new therapies for this community. That is my mission in life."
  • Perfusion systems continue to save lungs once considered not transplantable Martin Zamora, MD, and Michael Weyant, MD, began working on the NOVEL trial of ex vivo lung perfusion system. 
  • Jim Keith talks about how pulmonary rehab changed his life and provided him with education and support for all aspects of living with Alpha-1 lung disease. 
Vol 13, No. 3 (Winter 2015)
Vol 13, No. 3 (Winter 2015)
  • Frank Willersinn, MD, is one of the newest Alpha-1 Foundation board members. He tells the inspiring story of his near-death experience and struggle to expand access to augmentation therapy in Europe.
  • The Alpha-1 community banded together to speak with the FDA in September. Doctors, patients, family and friends tell their stories.
  • 20 years of riding in the Escape to the Cape Autumn Bike Trek, a unique chance for patients, family and friends, doctors, researchers and industry partners to ride together for a cure.
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