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Singing lifts Margery’s spirits

Singing lifts Margery’s spirits
Tuesday, March 20, 2012
Margery Eriksson of Berkeley, California won’t let Alpha-1 lung disease stop her from doing what she loves most – singing. The retired elementary school teacher has been singing for the past 21 years with the Oakland Symphony Chorus. The chorus rehearses classical music weekly and performs several times a year for an audience of 3,000 at the Oakland Paramount Theatre, accompanied by...
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Live life to the fullest: Advice from Mary, who does it every day!

Live life to the fullest: Advice from Mary, who does it every day!
Tuesday, March 20, 2012
Mary Pierce is the definition of an athlete: she’s a kayaker and a bicyclist, she lifts weights regularly, she rides her motorcycle and she works full time. And yes, in her spare time, she’s learning to fly a powered paraglider. For the less adventurous among us, powered paragliding amounts to hanging from a harness in mid-air with a big parachute over your head and a motor...
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Former Baywatch star, mother, fashion designer and Alpha

Former Baywatch star, mother, fashion designer and Alpha
Tuesday, March 20, 2012
Melissa Biggs looks like a model – tall, blonde and athletic – or, at least looking at her, you might think she’s somebody you saw in a movie or on television. In fact, she’s all of those things. She plays in a tennis league two or three times a week, runs her own business, cares for her daughter Macy, 12, and is “always, always busy.” She’s not,...
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The life of Vicki Joseph remembered: Memorial booklets are still available celebrating her life "in her own words"

The life of Vicki Joseph remembered: Memorial booklets are still available celebrating her life "in her own words"
Tuesday, March 20, 2012
  Victoria “Vicki” Joseph’s budding career as a playwright and novelist was cut short when she died of chronic rejection of her transplanted lungs on Aug. 2, 2009. Joseph had been a librarian, a criminal defense attorney and a college professor at Elms College in Chicopee, MA, before taking a leave of absence early in 2009 to concentrate on her writing. The year...
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Trine: Who says you need 14 pills a day after transplant?

Trine: Who says you need 14 pills a day after transplant?
Tuesday, March 20, 2012
Trine Engebretsen was being treated in the twelfth hospital to admit her in her short life – she was dying of Alpha- 1 liver disease, and she was only two years old. Her pediatrician told her parents that she was failing quickly. The hospital staff offered to make her as comfortable as possible until her death. Her parents refused to accept that advice. They got a liver transplant...
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Colorado Eagle Scout project encourages Alpha-1 awareness

Colorado Eagle Scout project encourages Alpha-1 awareness
Tuesday, March 20, 2012
Taylor Fittje wants to become an Eagle Scout, and so to reach that rank, he designed a community service project around Alpha-1 awareness. Fittje, of Parker, Colorado, was inspired by his grandfather, Bob Fittje, 63, an Alpha who lives in the same city. “My grandfather was told in 1994 that he possibly had only months to live, but he is still with us today. If he had been...
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For Sue Binnall, volunteering became a way of life

For Sue Binnall, volunteering became a way of life
Tuesday, March 20, 2012
Susan Binnall is a wife, a mother and a grandmother at home, but in the Alpha-1 community she’s nothing short of a hero. Binnall, of Newton, MA, was a maintenance worker for United Parcel Service, monitoring the perimeter of the building and fixing anything that was broken. But her job became more difficult when she started having a hard time catching her breath. After struggling with...
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Angel without Wings

Angel without Wings
Tuesday, March 20, 2012
Skylar Haynes simply loves to fish – she likes it better than playing with Barbies, better than painting pictures, better than dancing – and if you get to know her even a little bit, and you begin to see why. Fishing requires patience, determination, and above all unbridled optimism—qualities that Skylar shows way more than a typical six-year-old. After all, when you’re...
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