Menu

Alpha Stories

Michelle’s photos tell all — Alpha-1 doesn’t get in her way!

Michelle’s photos tell all — Alpha-1 doesn’t get in her way!
Tuesday, March 20, 2012
Birds, reptiles and insects can be tough to photograph – great skill and patience is needed to capture their movements in nature, and you have to be pretty mobile to get close-up and aerial shots, right? Not if you’re Michelle Wisniewski. Wisniewski has been taking photos most of her adult life. For years now, they’ve all been taken from a motorized scooter....
Divider

Joe is Not My Son

Joe is Not My Son
Tuesday, March 20, 2012
Meet Joe, a brash, intelligent — and fictional — teen who is the main character of the novel, My Name is Joe, by Richard Holloway, PhD, professor and Associate Dean of Student Affairs, Medical College of Wisconsin. Joe is cocky, funny and in trouble at school. And Joe provides Holloway with a way to express his feelings about his son, Evan. Evan, an Alpha, had symptoms of liver...
Divider

Betting on a Cure

Betting on a Cure
Tuesday, March 20, 2012
By Rob Williams Part of being an Alpha has to do with information and determination – you do what you can to learn about the state of the cure and about treatment options, you do your own research and then you determine what you can live with and what you can live without. You make the best of a difficult situation and focus on the things in life that you can do, and don’t waste...
Divider

Roger and what’s “just out of reach”

Roger and what’s “just out of reach”
Tuesday, March 20, 2012
What would you like to be able to do, that you can’t quite do now? What’s just out of your reach? If it’s something that requires breathing a little better, or being slightly stronger than you are right now, Roger Bray has some suggestions. When Bray was diagnosed with Alpha-1, he knew his life was going to be different. For a start, he’d have to quit smoking. One...
Divider

Pilot back in the skies after losing license due to Alpha-1

Pilot back in the skies after losing license due to Alpha-1
Tuesday, March 20, 2012
Steve Wolbrink loves to fly in fact, he loves it enough to fight for the right to do it. His passion and determination to remain “in flight” is what got his license back after the FAA took it when he failed his physical exam due to Apha-1. Wolbrink, of Mitchell, South Dakota, became a licensed private pilot in 1982, years before any Alpha-1 symptoms appeared. When he began to get...
Divider

Every Breath

Every Breath
Tuesday, March 20, 2012
A poem for Nancy Danley 2/14/09 I close my eyes, lowering my head to take a bow in prayer A smile appears across my face, because I know you’re there. So many times through any day, I could easily slip into fear,  Instead I pause, taking your hand, at ease to know you’re near. You give me strength, at times embarrassing as I blush amidst the crowd, As soon as I regain my...
Divider

Hostess with the Mostest

Hostess with the Mostest
Tuesday, March 20, 2012
If you know anything about Liz Veronda, you know she throws a great party – like, for instance, there was that retro- ’70s birthday bash she put together for her husband a few years back, complete with a mirror ball, sand art, Farrah Fawcett posters, and other disco relics galore. And don’t forget those spontaneous late-night socials during the Alpha-1 Association’s...
Divider

“Life: A Breath Away”

“Life: A Breath Away”
Tuesday, March 20, 2012
Helen “Cathy” Gould was diagnosed with Alpha-1 in 1999 after her health declined so rapidly that she was forced to retire.  As she began weekly IV injections, Gould decided to become an Alpha-1 Support Group leader, hoping to inspire others. Then Gould stumbled upon the Silver Sneakers Fitness Program; it completely changed her life. She began biking three to five times a week...
Divider
First3456789101112Last