Menu

Alpha Stories

Pilot back in the skies after losing license due to Alpha-1

Pilot back in the skies after losing license due to Alpha-1
Tuesday, March 20, 2012
Steve Wolbrink loves to fly in fact, he loves it enough to fight for the right to do it. His passion and determination to remain “in flight” is what got his license back after the FAA took it when he failed his physical exam due to Apha-1. Wolbrink, of Mitchell, South Dakota, became a licensed private pilot in 1982, years before any Alpha-1 symptoms appeared. When he began to get...
Divider

Every Breath

Every Breath
Tuesday, March 20, 2012
A poem for Nancy Danley 2/14/09 I close my eyes, lowering my head to take a bow in prayer A smile appears across my face, because I know you’re there. So many times through any day, I could easily slip into fear,  Instead I pause, taking your hand, at ease to know you’re near. You give me strength, at times embarrassing as I blush amidst the crowd, As soon as I regain my...
Divider

Hostess with the Mostest

Hostess with the Mostest
Tuesday, March 20, 2012
If you know anything about Liz Veronda, you know she throws a great party – like, for instance, there was that retro- ’70s birthday bash she put together for her husband a few years back, complete with a mirror ball, sand art, Farrah Fawcett posters, and other disco relics galore. And don’t forget those spontaneous late-night socials during the Alpha-1 Association’s...
Divider

“Life: A Breath Away”

“Life: A Breath Away”
Tuesday, March 20, 2012
Helen “Cathy” Gould was diagnosed with Alpha-1 in 1999 after her health declined so rapidly that she was forced to retire.  As she began weekly IV injections, Gould decided to become an Alpha-1 Support Group leader, hoping to inspire others. Then Gould stumbled upon the Silver Sneakers Fitness Program; it completely changed her life. She began biking three to five times a week...
Divider

Feathers by the Million

Feathers by the Million
Tuesday, March 20, 2012
The poet Emily Dickinson called hope “the thing with feathers that perches on the soul,” and Leopoldo Fernández Pujals and his wife, Marilina, know all about “the thing” with feathers. Their son Andres was diagnosed with Alpha-1 as an infant and underwent a liver transplant before the age of two. He’s now an active eight-year-old, but the genetic disorder...
Divider

The Day that Alpha 1

The Day that Alpha 1
Tuesday, March 20, 2012
A poem written by Lila M Thomason, in memory of her brother, Leon. When they made my brother Leon, they threw away the mold Too short a life he lived Too short our story told About an eight year race That ended at 42 years old.  He worked hard and he played hard And God that man could run At 34 he was challenged,  By a disease called Alpha 1.  With eyes wide open,...
Divider

Singing lifts Margery’s spirits

Singing lifts Margery’s spirits
Tuesday, March 20, 2012
Margery Eriksson of Berkeley, California won’t let Alpha-1 lung disease stop her from doing what she loves most – singing. The retired elementary school teacher has been singing for the past 21 years with the Oakland Symphony Chorus. The chorus rehearses classical music weekly and performs several times a year for an audience of 3,000 at the Oakland Paramount Theatre, accompanied by...
Divider

Live life to the fullest: Advice from Mary, who does it every day!

Live life to the fullest: Advice from Mary, who does it every day!
Tuesday, March 20, 2012
Mary Pierce is the definition of an athlete: she’s a kayaker and a bicyclist, she lifts weights regularly, she rides her motorcycle and she works full time. And yes, in her spare time, she’s learning to fly a powered paraglider. For the less adventurous among us, powered paragliding amounts to hanging from a harness in mid-air with a big parachute over your head and a motor...
Divider
First3456789101112Last