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At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure
Tuesday, July 29, 2014
Mary Anne Ferguson comes from a family that is no stranger to longevity. At 72, Ferguson was diagnosed with Alpha-1 and as she turns 96, she continues to enjoy life despite some obstacles. In Pittsburgh, PA, she was first diagnosed with chronic obstructive pulmonary disease (COPD)  and Alpha-1 by a pulmonary specialist who found she had scar tissue from childhood tuberculosis. “I...
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Over the mountains, through the streets, Alphas make great strides

Over the mountains, through the streets, Alphas make great strides
Wednesday, March 12, 2014
This week, two Alphas covered a lot of distance in both raising awareness and personal accomplishment — 110 miles and 26.2 miles, respectively. Jonathan Maidment celebrated his 19th birthday March 10 on the Appalachian Trail in North Carolina, the second of 14 states he and hiking partner Brian Fearon will traverse on a 2,200-mile journey. “Met amazing people,” he wrote on...
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Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike
Monday, March 3, 2014
On Feb. 27, Jonathan Maidment took the first step in a 2,200-mile journey. Jonathan, 18, plans to hike the full Appalachian Trail, starting at Springer Mountain, GA, and ending at Mount Katahdin, ME. He’ll be carrying a flag that says, “Hiking For A Cure — Remembering Our Alpha Angels.” He’s walking for his maternal grandmother, Alyce McArdle, who died of Alpha-1...
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At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad
Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1 Antitrypsin Deficiency when he was just 3 months old, but only after a long battle with a team of pediatric surgeons who refused to believe it could be...
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A beautiful piece of liver

A beautiful piece of liver
Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1 Antitrypsin Deficiency when he was just 3 months old, but only after a long battle with a team of pediatric surgeons who refused to believe it could be...
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In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance

In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance
Friday, August 23, 2013
“I’ll be challenging myself this year, running the Leadville 100,” Matt Dulin wrote on his fundraising page. On Aug. 17, Dulin, 25, a runner who has done marathons, set out on the two-day, 100-mile “Race Across The Sky” in the Colorado mountains that started in Leadville, CO. He ran it in memory of his father, Rick Dulin, an Alpha who suffered from...
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For Trent Walling, Alpha-1 is no limitation

For Trent Walling,  Alpha-1 is no limitation
Monday, July 22, 2013
  Trent Walling may be the third of six children but he surely knows how to stand out. Born in 2002 to Sheri and David Walling of Kingwood, Texas, Trent went home a healthy baby. At three months old, however, his skin and eyes turned yellow. After running several inconclusive blood tests, he was hospitalized. The doctors were not optimistic. Sheri Walling says, “I was expecting a...
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Lisa Kosak: Down to earth

Lisa Kosak: Down to earth
Monday, May 6, 2013
  For 12 years, Lisa Kosak lived the high life: 7,000 feet above sea level in in the mountains of Eagle, Colorado. But in 2007, she began facing major health issues that no one seemed able to diagnose. The owner of two businesses, Kosak first attributed her shortness of breath and swollen ankles and feet to long days at work. She had to stop pitching for her softball team. But the...
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