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Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike
Monday, March 3, 2014
On Feb. 27, Jonathan Maidment took the first step in a 2,200-mile journey. Jonathan, 18, plans to hike the full Appalachian Trail, starting at Springer Mountain, GA, and ending at Mount Katahdin, ME. He’ll be carrying a flag that says, “Hiking For A Cure — Remembering Our Alpha Angels.” He’s walking for his maternal grandmother, Alyce McArdle, who died of Alpha-1...
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At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad
Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1 Antitrypsin Deficiency when he was just 3 months old, but only after a long battle with a team of pediatric surgeons who refused to believe it could be...
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A beautiful piece of liver

A beautiful piece of liver
Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1 Antitrypsin Deficiency when he was just 3 months old, but only after a long battle with a team of pediatric surgeons who refused to believe it could be...
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In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance

In 100-mile race, Matt Dulin inspired by memory of dad’s strength and endurance
Friday, August 23, 2013
“I’ll be challenging myself this year, running the Leadville 100,” Matt Dulin wrote on his fundraising page. On Aug. 17, Dulin, 25, a runner who has done marathons, set out on the two-day, 100-mile “Race Across The Sky” in the Colorado mountains that started in Leadville, CO. He ran it in memory of his father, Rick Dulin, an Alpha who suffered from...
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For Trent Walling, Alpha-1 is no limitation

For Trent Walling,  Alpha-1 is no limitation
Monday, July 22, 2013
  Trent Walling may be the third of six children but he surely knows how to stand out. Born in 2002 to Sheri and David Walling of Kingwood, Texas, Trent went home a healthy baby. At three months old, however, his skin and eyes turned yellow. After running several inconclusive blood tests, he was hospitalized. The doctors were not optimistic. Sheri Walling says, “I was expecting a...
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Lisa Kosak: Down to earth

Lisa Kosak: Down to earth
Monday, May 6, 2013
  For 12 years, Lisa Kosak lived the high life: 7,000 feet above sea level in in the mountains of Eagle, Colorado. But in 2007, she began facing major health issues that no one seemed able to diagnose. The owner of two businesses, Kosak first attributed her shortness of breath and swollen ankles and feet to long days at work. She had to stop pitching for her softball team. But the...
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Alpha Don Davis overcomes COPD, lives a full life

Alpha Don Davis overcomes COPD, lives a full life
Tuesday, November 20, 2012
Don Davis grew up having asthma. A trip to the doctor’s office when he was 40 years old may have saved his life. “I noticed that I was getting out of breath much quicker than usual,” Davis remembered. “I told the doctor I thought my asthma was changing. She realized there was more to it than that.” In fact, his doctor discovered that Davis suffered from Alpha-1...
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Angela Town – She never met an Alpha she didn’t like

Angela Town – She never met an Alpha she didn’t like
Monday, November 12, 2012
“I have never met an Alpha I didn’t like.” The words leap off the screen on Angela Town’s AlphaNet coordinator “welcome” page. Long before Town knew anything about Alpha-1, she was an advocate for children with disabilities. In 1989, her daughter was diagnosed as a special needs child. After her initial shock, she learned all she could about her...
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