Menu

Alpha Stories

‘This is for every Alpha out there,’ Virginia woman says of Awareness Month proclamation

‘This is for every Alpha out there,’ Virginia woman says of Awareness Month proclamation
Friday, November 14, 2014
Sherry Gochenour, of Rockingham County, VA, was once a runner. Diagnosed with Alpha-1 three years ago, “now I can’t even walk to the mailbox,” she said in an interview broadcast Thursday on WHSV TV-3. In the interview, Gochenour and her husband spoke about the experience of living with Alpha-1, but also showed it, allowing the news crew to film her weekly...
Divider

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment

Heleen Groen, of Amsterdam, tells about her long, life-threatening route to treatment
Friday, August 15, 2014
Heleen Groen, 40, of Amsterdam, Netherlands, is an Alpha who has severe necrotizing panniculitis, a painful skin infection often accompanied by a rash, inflammation and skin ulcers. She shares her experience of growing up with Alpha-1 and the long road to treatment here. I was an energetic child, but when I was 6, my parents received a call from my school, telling them I couldn’t...
Divider

Florida police officer carries Alpha flag on climb up Mount Rainier

Florida police officer carries Alpha flag on climb up Mount Rainier
Friday, August 15, 2014
Dorothea “Dee” Meisner is a police officer in Cocoa, Florida. At age 55, she’s been working in law enforcement for 20 years. Till very recently she was a street cop, patrolling her city beat alone in a squad car. Meisner has lung disease due to Alpha-1 Antitrypsin Deficiency. Meisner, who never smoked in her life, was diagnosed 10 years ago with chronic obstructive pulmonary...
Divider

Doctors surprised to find Alpha-1 in siblings of mixed-race family

Doctors surprised to find Alpha-1 in siblings of mixed-race family
Tuesday, August 5, 2014
Doctors have been surprised to find Alpha-1 in Kathleen Griffin’s family. Griffin is African-American — although her family history, like that of many, proves it’s much more complicated. When her sister, Mary Rogers, was diagnosed with Alpha-1 after receiving a liver transplant in 2008, the shocked doctor “said ‘Alpha-1 is normally associated with...
Divider

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure

At 96, Alpha Mary Anne Ferguson sees every day as full of possibility, pleasure
Tuesday, July 29, 2014
Mary Anne Ferguson comes from a family that is no stranger to longevity. At 72, Ferguson was diagnosed with Alpha-1 and as she turns 96, she continues to enjoy life despite some obstacles. In Pittsburgh, PA, she was first diagnosed with chronic obstructive pulmonary disease (COPD)  and Alpha-1 by a pulmonary specialist who found she had scar tissue from childhood tuberculosis. “I...
Divider

Over the mountains, through the streets, Alphas make great strides

Over the mountains, through the streets, Alphas make great strides
Wednesday, March 12, 2014
This week, two Alphas covered a lot of distance in both raising awareness and personal accomplishment — 110 miles and 26.2 miles, respectively. Jonathan Maidment celebrated his 19th birthday March 10 on the Appalachian Trail in North Carolina, the second of 14 states he and hiking partner Brian Fearon will traverse on a 2,200-mile journey. “Met amazing people,” he wrote on...
Divider

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike

Connecticut Alpha ‘will be carrying the Alpha Angels’ on Appalachian Trail hike
Monday, March 3, 2014
On Feb. 27, Jonathan Maidment took the first step in a 2,200-mile journey. Jonathan, 18, plans to hike the full Appalachian Trail, starting at Springer Mountain, GA, and ending at Mount Katahdin, ME. He’ll be carrying a flag that says, “Hiking For A Cure — Remembering Our Alpha Angels.” He’s walking for his maternal grandmother, Alyce McArdle, who died of Alpha-1...
Divider

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad

At age 2, Martim Margaça receives ‘a beautiful piece of liver’ from dad
Thursday, October 17, 2013
On the blog Martim Margaça’s mother created to record his life, there is a ticker showing how many days, hours, minutes and seconds it has been since his liver transplant on Oct. 24, 2009. Martim was diagnosed with Alpha-1 Antitrypsin Deficiency when he was just 3 months old, but only after a long battle with a team of pediatric surgeons who refused to believe it could be...
Divider
12345678910Last