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Celebrating Women's History Month - Sandy Lindsey and Susan Stanley

Celebrating Women's History Month - Sandy Lindsey and Susan Stanley
Wednesday, March 9, 2016
This story first appeared in the Spring 2004 issue of Alpha-1-To-One Magazine. When Alexandra “Sandy” Lindsey, Susan Stanley, and John Walsh met one another in the early 1990s, they quickly became fast friends, despite their disparate personalities. Stanley was a diminutive dynamo, energetic and gregarious. Lindsey was an elegant woman with a strong social conscience, a knack for...
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Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana

Alpha-1 Foundation Board Member organizes Rare Disease Day event in Indiana
Wednesday, February 24, 2016
Tom Corron noticed that his breathing was becoming more difficult. He was suffering from respiratory infections that lingered for a long time, and it was getting harder for him to climb stairs. Tom Corron He visited his doctor, who advised him in 2005 that his lung capacity was at 42 percent, that he had lung damage, and that he would need a lung transplant in five years. He was tested and...
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Alpha-1 support group leader educates about the condition

Alpha-1 support group leader educates about the condition
Monday, February 22, 2016
It’s not what’s there. It’s what isn’t there. Carol Logan displays some of the information she has compiled on Alpha-1. Some people in the United States have a hereditary condition called Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 occurs when there is a lack of a protein in the blood called alpha-1 antitrypsin, or the alpha-1 protein....
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Alpha fights lung disease with long-distance cycling

Alpha fights lung disease with long-distance cycling
Tuesday, February 16, 2016
During the wee hours of Jan. 26, in the deep woods of northern Minnesota a few miles from the Canadian border, Erwin Reitsma pedaled through the night. Erwin Reitsma Riding his fatbike along snowy trails in the dark, he passed a circle of bloody snow — sure sign of a recent wolf kill. Two bikers passed him coming the other direction, retreating to civilization. Tracks of cyclists...
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Bodybuilder fights Alpha-1 breathing problems with exercise

Bodybuilder fights Alpha-1 breathing problems with exercise
Thursday, February 4, 2016
Nobody has to tell Bob Thornsberry the importance of exercise. He first began lifting weights regularly when he was a fullback on the high school football team in Memphis, Michigan. Bob Thornsberry “When I got into the Air Force shortly after high school in 1969, I got back into weightlifting right after basic training,” says Thornsberry, now 65, of Land O’ Lakes, Florida....
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Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges

Alphas need fitness program to improve breathing, says fitness trainer dealing with her own breathing challenges
Wednesday, January 20, 2016
Jodi Fillmore was in the best shape of her life more than four years ago when she entered a bodybuilding competition. When the event was over, she had beaten all of her competitors except one, and had designs on a professional bodybuilding career. There, she could compete full-time and earn prize money. Jodi Fillmore But soon after that brief moment of glory in September 2011, she noticed...
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Health tips for Alphas

Health tips for Alphas
Monday, January 11, 2016
For Alphas, the most important way to prevent disease or slow disease progression is avoiding risk factors. The biggest risk factor for lung disease is cigarette smoking. Any Alpha who smokes must stop! It is also important to avoid second-hand smoke and avoid inhaling irritants at work. While augmentation therapy is available for Alphas with lung disease, this is only one part of...
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Ask the Alpha Doc: Doctor answers questions about Alpha-1

Ask the Alpha Doc: Doctor answers questions about Alpha-1
Wednesday, December 9, 2015
The Winter 2015 issue of Alpha-1-To-One magazine is in the mail to some 27,000 people with free subscriptions and is now available online. Q: How close are we to an inhaled augmentation therapy for Alpha-1? Will I be able to carry a little inhaler in my pocket, the way I carry my albuterol now? That would be so great.  A: For sure, a convenient, effective, inhaled form of augmentation...
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