Menu

Alpha Stories

In honor of Bruce Parker

In honor of Bruce Parker
Friday, March 30, 2018
The Alpha–1 community, including AlphaNet and the Alpha–1 Foundation, is grieving the loss of our friend, and AlphaNet REACH program coordinator Bruce Parker, from Chattanooga, TN. Bruce, who was also an Alpha, parted on March 28, 2018 after some health complications overwhelmed him. He is survived by his wife of 47 years, Marcia. “We don’t have any kids, but lots of...
Divider

Celebrating women: Caregiver Dawn Bailey

Celebrating women:  Caregiver Dawn Bailey
Wednesday, March 28, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Dawn Bailey was overwhelmed with the new responsibilities of caring for Rob when he was released from an extended hospital stay. “I asked the nurse if they had any type of information to help me learn how to care for him at home, but she suggested I take a nursing...
Divider

Celebrating women: Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick

Celebrating women:  Alpha-1 Mom Kate Mullen & Donor Sarah McKitterick
Wednesday, March 14, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Finn O’Sullivan of New York is known to many now as “Finn the Mighty Warrior." At 8 weeks of age, following a liver biopsy and a trip to Boston Children’s Hospital, Finn was diagnosed with the rare liver disease, biliary atresia. Within 24 hours,...
Divider

Celebrating women: Caregiver Donna Thornton

Celebrating women:  Caregiver Donna Thornton
Friday, March 9, 2018
During Women’s History Month, we are featuring the stories of women who help make the Alpha–1 community great. Donna and Kreg Thornton could not convince their primary care physician that Kreg’s breathing issues were not being caused by what their doctor called chronic asthma. Donna and Kreg Thornton It was not until a family vacation in 2009, when Kreg had great...
Divider

Celebrating Women: Alpha-1 Mom shares son's transplant journey

Celebrating Women: Alpha-1 Mom shares son's transplant journey
Friday, March 2, 2018
During Women's History Month, we are featuring the stories of women who help make the Alpha-1 community great. Jude’s journey began at 4 weeks of age when, following seizures and emergency brain surgery, he was diagnosed with a vitamin K deficiency and began receiving treatment for this at his home in Coral Springs, Fla. Later, when he began to have liver issues, his physicians...
Divider

Lancaster woman celebrates anniversary of double lung transplant

Lancaster woman celebrates anniversary of double lung transplant
Wednesday, February 14, 2018
As the anniversary of her double lung transplant passed, Crystal Chilcote spent the day with her daughter getting lunch and shopping. While these may seem like normal, everyday tasks for the average person, simply walking to her mailbox was not an option for Chilcote, a 53-year-old Lancaster (Pennsylvania) resident who was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and developed...
Divider

A life-changing e-mail leads to a personal health breakthrough

A life-changing e-mail leads to a personal health breakthrough
Monday, February 5, 2018
Staying up later than usual, high school math teacher Heather Toepfer decided to turn on news, without knowing that a single evening newscast in September 2016 would ignite a series of events and medical insights that she now believes have saved her life. As the news of the Healthy Nevada Project seeking community participants for a groundbreaking new population health and genetics project...
Divider

Telling the Alpha-1 story

Telling the Alpha-1 story
Friday, October 20, 2017
The Fall 2017 issue of Alpha-1-To-One magazine has been mailed to well over 20,000 people with free subscriptions, and will soon be available online.  In 1997, a hard-boiled newspaper editor from Prince Edward Island, Canada, Bob Campbell had been getting sick more often than usual. At the time, he was working at the St. Petersburg Times in Tampa, Fla. Campbell had been a sickly...
Divider
12345678910Last