Menu

Alpha Stories

Celebrating Women: Alpha-1 Mom shares son's transplant journey

Celebrating Women: Alpha-1 Mom shares son's transplant journey
Friday, March 2, 2018
During Women's History Month, we are featuring the stories of women who help make the Alpha-1 community great. Jude’s journey began at 4 weeks of age when, following seizures and emergency brain surgery, he was diagnosed with a vitamin K deficiency and began receiving treatment for this at his home in Coral Springs, Fla. Later, when he began to have liver issues, his physicians...
Divider

Lancaster woman celebrates anniversary of double lung transplant

Lancaster woman celebrates anniversary of double lung transplant
Wednesday, February 14, 2018
As the anniversary of her double lung transplant passed, Crystal Chilcote spent the day with her daughter getting lunch and shopping. While these may seem like normal, everyday tasks for the average person, simply walking to her mailbox was not an option for Chilcote, a 53-year-old Lancaster (Pennsylvania) resident who was diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and developed...
Divider

A life-changing e-mail leads to a personal health breakthrough

A life-changing e-mail leads to a personal health breakthrough
Monday, February 5, 2018
Staying up later than usual, high school math teacher Heather Toepfer decided to turn on news, without knowing that a single evening newscast in September 2016 would ignite a series of events and medical insights that she now believes have saved her life. As the news of the Healthy Nevada Project seeking community participants for a groundbreaking new population health and genetics project...
Divider

Telling the Alpha-1 story

Telling the Alpha-1 story
Friday, October 20, 2017
The Fall 2017 issue of Alpha-1-To-One magazine has been mailed to well over 20,000 people with free subscriptions, and will soon be available online.  In 1997, a hard-boiled newspaper editor from Prince Edward Island, Canada, Bob Campbell had been getting sick more often than usual. At the time, he was working at the St. Petersburg Times in Tampa, Fla. Campbell had been a sickly...
Divider

Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis

Nicotine addict finds hope after Alpha-1 Antitrypsin Deficiency diagnosis
Wednesday, July 19, 2017
Diagnosed with the lungs of a 126-year-old man from years of smoking and a rare genetic lung disorder, Ryan Taylor moved home from Alberta this past Christmas to die. But a news report his father saw on Memorial’s School of Pharmacy’s Smoking Cessation Program became Mr. Taylor’s springboard for newfound hope, at home in Newfoundland and Labrador. Ryan Taylor (Photo...
Divider

5-year old Alpha becomes the face of Australia’s DonateLife Week

5-year old Alpha becomes the face of Australia’s DonateLife Week
Monday, July 17, 2017
If you still aren't sure about whether or not to become an organ donor, look into the eyes of Archer Irwin. The five-year-old from Wodonga has become the face of DonateLife Week, the federal government's push to have more people sign on to the national organ donor registry. Archer Irwin, 5, with his mom, Nikki. (Photo Credit: James Wiltshire) Archer's face is on...
Divider

Alphas are a close-knit family, former support group leader says

Alphas are a close-knit family, former support group leader says
Monday, January 9, 2017
Bobbie Stafford served as the Northern California Alpha-1 Support Group leader from 1992 to 2010, then again from 2012 to 2014. She shared the following personal story with the Alpha-1 community. Bobbie Stafford I’ve never quite bought the declaration, made by some, that Alpha-1 was “not a rare disease, only rarely diagnosed.” After all, the disorder is included in the...
Divider

Celebrating Women's History Month - Miriam O’Day

Celebrating Women's History Month - Miriam O’Day
Wednesday, March 23, 2016
This story first appeared in the Fall 2015 issue of Alpha-1-To-One Magazine. Miriam O’Day and John Walsh first met in the late 1990s, when O’Day was vice president of the Immune Deficiency Foundation (IDF). They worked together for years on blood safety issues that were critical to both of them, since the immune deficiency and Alpha-1 communities both depended on...
Divider
12345678910Last