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Roadtrip encounter signals more know about Alpha-1

Roadtrip encounter signals more know about Alpha-1
Friday, March 4, 2011
Pierre Villeneuve, a Florida resident, was diagnosed with Alpha-1 at the age of 39. Since then, Villeneuve and his wife Alex attend Alpha-1 support groups, conferences and education days, and do what they can to raise awareness about Alpha-1. This past June, the Villeneuve’s drove all the way to Canada, and made an unexpected friend along the way. By Alex Villeneuve On the...
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COPD patients who socialize live longer; study finds loneliness is as harmful as alcoholism and smoking

Thursday, July 29, 2010
Medical News Today A new study suggests that social interaction should be considered an important factor for extending lifespan, on a par with other health and lifestyle factors. In fact, low social interaction harms longevity as much as alcoholism and smoking, has more impact than lack of exercise, and is twice as harmful as obesity. Researchers at Brigham Young University (BYU) in Provo,...
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New US website on Disabilities and Health

Monday, July 26, 2010
The US Centers for Disease Control (CDC) has a new Disabilities and Health website. Some of the new features of the site include: Easy-to-read information on healthy living, secondary conditions, accessibility, and emergency preparedness. A video called, “Mark’s Story.” This video tells the story of Mark and his role as a person helping future health care...
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"Bad Blood" film documents tragedy of tainted US blood supply in 1970s-1990s

Monday, July 26, 2010
New York, NY – The documentary film “Bad Blood: A Cautionary Tale,” will premiere Wednesday in New York City as the launch of a theatrical screening series co-hosted by a coalition of national gay rights and hemophilia advocacy groups. The film documents the tragic history surrounding the discovery of HIV and hepatitis in the US blood supply in the early days of the AIDS...
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Dr. Donohue suggests more Alpha-1 testing

Friday, July 23, 2010
A question today from the syndicated “Dr. Donahue” column DEAR DR. DONOHUE: My wife of 55 years died last year from the complications of an illness known as alpha-1 antitrypsin deficiency. In her late 40s, she would become unduly winded doing the polka. After many internist and a few pulmonary specialist visits, all of whom prescribed asthma medicines for her, she persisted with...
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Patient advocacy group applauds new regulations to strengthen patients' right to appeal health insurance denials

Friday, July 23, 2010
Washington, DC—The National Health Council (NHC) today released a statement in support of today’s White House announcement of new federal regulations to strengthen patients’ rights to appeal health insurance denials. The Alpha-1 Foundation is a member of NHC. Made up of more than 100 national health-related organizations and businesses, NHC’s core membership includes...
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Charles Leonard Geiger, MD, dies; father of well-known Alpha

Friday, July 16, 2010
GAINESVILLE, GA—Charles Leonard Geiger, MD, died Wednesday, July 14. A retired pathologist, he had formerly been an officer in the US Air Force Medical Service and professor of clinical pathology at Emory Medical School. He was the father of well-known Alpha Leonard Geiger, Jr., whose life was saved by a lung transplant for his Alpha-1-related lung disease. Len Geiger met the family of...
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Alpha-1 patient in Canada doing well after getting lung transplant despite infection with H1N1 (swine flu) virus

Wednesday, July 14, 2010
CBC News EDMONTON, Alberta—A 50-year-old Canadian with Alpha-1 Antitrypsin Deficiency underwent a successful double lung transplant last year in Edmonton even though he was infected with the H1N1 virus at the time of the surgery, doctors reported this month. The man was short of breath with end-stage lung disease at the time that he was admitted for a double lung...
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