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In memory of Gavin

In memory of Gavin
Friday, March 16, 2012
Alpha-1 liver disease cost Gavin his life, and now, his mother is doing whatever it takes to raise awareness so that she may one day save another child's life. In just 11 months of life, Gavin was hospitalized seven times. He went through three surgeries and had five different scars on his small body. He went on the transplant list for a new liver, and faced complications that prevented him...
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A Golf Ball in the Woods

A Golf Ball in the Woods
Friday, March 16, 2012
Gordon Cadwgan as diagnosed in 1992, when the first national meeting of the new Alpha-1 Association took place - he and his wife, Ruth, traveled from their home in Wilmington, Delaware, to the conference in Minnesota. Gordon had been running short of breath since the late ’80s, but hadn’t given it much thought. Then one day while snorkeling with Ruth, he got so breathless he...
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A Long Decade’s Journey

A Long Decade’s Journey
Friday, March 16, 2012
Some of life’s most auspicious journeys begin with a single, faltering step, and Gordon Snider, MD, began such a journey in a New York City taxicab on a rainy night in 1995. The eminent pulmonologist and researcher shared a cab to LaGuardia with two other doctors—Mark Brantly from the National Heart, Lung and Blood Institute and James Stoller from the Cleveland The two younger...
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Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”

Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”
Friday, March 16, 2012
Mary Rogers, with skin the color of rich dark chocolate, was recovering from the operation when the surgeon came in, checked and found out she had Alpha-1. “He said ‘Alpha-1 is normally associated with Europeans,’” Rogers recalled. “So some of the doctors didn’t think you have it because you’re African-American.”’ Several members of...
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Two for the Road

Two for the Road
Friday, March 16, 2012
Hap and Diane Eaton enjoy each other’s company – a necessity, when you spend a full year in the daily close proximity of a two-seater bicycle – but it also helps that the Eaton’s see themselves as a team, sharing in the joy of making a difference. In May of 2007, Hap and Diane set out to ride 10,000 miles around the United States on a tandem bike. It was a longtime...
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Isabel and the honeysuckle jungle

Isabel and the honeysuckle jungle
Friday, March 16, 2012
Isabel Baynes works every day with her husband Robert (Bud) in their family business, growing ornamental willow trees for sale to florists. It’s a business with some physical demands. It requires regularly cutting branches from the willows and cleaning up dead wood, among other things. Last year she painted the barn on her property – “Not a big one, one stall and a tack...
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For Jack Davis, “Music is my happy place”

For Jack Davis, “Music is my happy place”
Friday, March 16, 2012
How to deal with a chronic condition like Alpha-1 lung disease? Jack Davis Jr, 61, does it by keeping a positive outlook on life – and singing and playing in his country rock band. Davis lives in Birmingham AL, but was born in the small town of Salem, VA. He spent most of his first 10 years playing in or near the Roanoke River that bordered his parents’ farm, and to this day...
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Jaidan’s second chance

Jaidan’s second chance
Friday, March 16, 2012
Her mother calls it her lifeline – the 10 inch scar across her 21-month-old daughter’s tiny belly that marks the moment when she received the gift of life. “It to me defines a part of her life. It definitely shows that she’s been through something- a struggle,” her mother, Jaime said, “even if she doesn’t remember it when she’s older.” At...
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