Menu

Alpha Stories

A Long Decade’s Journey

A Long Decade’s Journey
Friday, March 16, 2012
Some of life’s most auspicious journeys begin with a single, faltering step, and Gordon Snider, MD, began such a journey in a New York City taxicab on a rainy night in 1995. The eminent pulmonologist and researcher shared a cab to LaGuardia with two other doctors—Mark Brantly from the National Heart, Lung and Blood Institute and James Stoller from the Cleveland The two younger...
Divider

Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”

Black Alpha family wonders “if there are blacks that are not diagnosed because they are black — or even people of other races”
Friday, March 16, 2012
Mary Rogers, with skin the color of rich dark chocolate, was recovering from the operation when the surgeon came in, checked and found out she had Alpha-1. “He said ‘Alpha-1 is normally associated with Europeans,’” Rogers recalled. “So some of the doctors didn’t think you have it because you’re African-American.”’ Several members of...
Divider

Two for the Road

Two for the Road
Friday, March 16, 2012
Hap and Diane Eaton enjoy each other’s company – a necessity, when you spend a full year in the daily close proximity of a two-seater bicycle – but it also helps that the Eaton’s see themselves as a team, sharing in the joy of making a difference. In May of 2007, Hap and Diane set out to ride 10,000 miles around the United States on a tandem bike. It was a longtime...
Divider

Isabel and the honeysuckle jungle

Isabel and the honeysuckle jungle
Friday, March 16, 2012
Isabel Baynes works every day with her husband Robert (Bud) in their family business, growing ornamental willow trees for sale to florists. It’s a business with some physical demands. It requires regularly cutting branches from the willows and cleaning up dead wood, among other things. Last year she painted the barn on her property – “Not a big one, one stall and a tack...
Divider

For Jack Davis, “Music is my happy place”

For Jack Davis, “Music is my happy place”
Friday, March 16, 2012
How to deal with a chronic condition like Alpha-1 lung disease? Jack Davis Jr, 61, does it by keeping a positive outlook on life – and singing and playing in his country rock band. Davis lives in Birmingham AL, but was born in the small town of Salem, VA. He spent most of his first 10 years playing in or near the Roanoke River that bordered his parents’ farm, and to this day...
Divider

Jaidan’s second chance

Jaidan’s second chance
Friday, March 16, 2012
Her mother calls it her lifeline – the 10 inch scar across her 21-month-old daughter’s tiny belly that marks the moment when she received the gift of life. “It to me defines a part of her life. It definitely shows that she’s been through something- a struggle,” her mother, Jaime said, “even if she doesn’t remember it when she’s older.” At...
Divider

An Information Web Site Run By and For Pulmonary Patients

An Information Web Site Run By and For Pulmonary Patients
Friday, March 16, 2012
Jane Martin, BA, CRT is a respiratory therapist who is making great strides for pulmonary patients with her web site titled “Breathing Better, Living Well” (or BBLW, as Martin and frequent viewers like to call it). Martin started the site in 2001 as an extension of her two books: Inspirations: Stories of Breathing Better and Living Well; and second edition Breathe Better,...
Divider

Breathless Journey

Breathless Journey
Friday, March 16, 2012
Jim Danley grew up in Niles, Michigan, and eventually moved to Florida, where he studied hospitality management. He then married Nancy, and began a family. He worked in hotels for 15 years, and then one day decided he’d had enough. “I realized they never close!” he says. He shifted his career to human resources and payroll. Then in 1999, Danley began to feel breathless...
Divider
First891011121314151617Last