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Standing strong with Building Friends for a Cure

Standing strong with Building Friends for a Cure
Tuesday, March 20, 2012
Rose McClellan always tried to remain active in the Alpha-1 community after learning that her husband Billy suffered from Alpha-1 Antitrypsin Deficiency. The two became aware of Billy’s condition following his liver transplant in 1994. McClellan was a member of the Alpha internet email support list (rather new in those days), and was awarded the Claude Baril Communication Award for her...
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BP employees take company challenge to donate $500 -- and they choose the Alpha-1 Foundation

BP employees take company challenge to donate $500 -- and they choose the Alpha-1 Foundation
Tuesday, March 20, 2012
If you had the opportunity to help enrich the lives of those living in your community, and the company you worked for gave you $500 to spend on a charity, organization or fundraising group, would you do it?? BP of America makes just such an offer: employees can donate up to $500 through the company’s “Fabric of America Fund.” BP workers can donate either one $500 check to...
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My Precious Breath

My Precious Breath
Monday, March 19, 2012
Even as he waited on a lung transplant list, Jim Danley could sing – in fact, he made two CDs of himself performing classic popular songs as part of a fundraising effort to help cover transplant costs. He received a lung at Shands Hospital in Gainesville, FL, Feb. 13, 2003. (Then he made another CD.) Life has been a roller coaster since then. He’s needed both hips replaced due to...
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Confessions of an oxygen user

Confessions of an oxygen user
Monday, March 19, 2012
I was diagnosed with Alpha-1 and moderate emphysema in January, 1993 – for the next five years, I didn’t use oxygen – and after testing my oxygen saturation levels, my doctor prescribed oxygen for me to use during exercise. Shortly thereafter, he also prescribed it for sleep and for airline travel. For the next 10 years, I was pretty careful to use oxygen when I slept,...
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Alex Harrah’s Art Cars Help Him Cope with Alpha-1

Alex Harrah’s Art Cars Help Him Cope with Alpha-1
Friday, March 16, 2012
Alex Harrah is a lover of art and cars, but he is particularly a fan of fixing up old cars and adding flare, turning them into works of art. You can hear it in Harrah’s voice when he talks about building his most recent “Art Car,” an extremely detailed piece that took him seven years. Using the body of a 1951 Nash Statesman and the frame of a 1978 Lincoln Mark V, Harrah...
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It’s all about attitude

It’s all about attitude
Friday, March 16, 2012
Andrea says that keeping a positive attitude is the key to dealing with chronic illness Growing up, Andrea Maechtle was hardly ever sick. She never went to the doctor when she got a cold. She didn’t even stay home from school, or call in to work. She went about her day as if she weren’t sick at all. But then came a nasty cold. She was in her 40s. The cold lingered for weeks. She...
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The grim diagnosis…

The grim diagnosis…
Friday, March 16, 2012
Alpha-1 hasn’t kept these liver kids from living full, satisfying lives In the summer of 1986, Mike and Julia Berger had their first child, Jake. Jake had yellow skin and eyes, and his bilirubin count was very high. Family and friends in their home town of LaGrange, IL, encouraged Mike and Julia, saying things like, “Jaundice is very common in infants,” and...
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A One-Minute Alpha

A One-Minute Alpha
Friday, March 16, 2012
As chairman and chief executive officer of Clear Channel Entertainment — the almost $2 billion subsidiary of media giant Clear Channel Worldwide — Brian Becker doesn’t waste a minute: actually, he has his days scheduled almost down to the split-second. And when he talks, he makes every word count. His sentences seem to come in right to- the-point bursts. He speaks in the...
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