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Alpha Stories

For Sue Binnall, volunteering became a way of life

For Sue Binnall, volunteering became a way of life
Tuesday, March 20, 2012
Susan Binnall is a wife, a mother and a grandmother at home, but in the Alpha-1 community she’s nothing short of a hero. Binnall, of Newton, MA, was a maintenance worker for United Parcel Service, monitoring the perimeter of the building and fixing anything that was broken. But her job became more difficult when she started having a hard time catching her breath. After struggling with...
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Angel without Wings

Angel without Wings
Tuesday, March 20, 2012
Skylar Haynes simply loves to fish – she likes it better than playing with Barbies, better than painting pictures, better than dancing – and if you get to know her even a little bit, and you begin to see why. Fishing requires patience, determination, and above all unbridled optimism—qualities that Skylar shows way more than a typical six-year-old. After all, when you’re...
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Standing strong with Building Friends for a Cure

Standing strong with Building Friends for a Cure
Tuesday, March 20, 2012
Rose McClellan always tried to remain active in the Alpha-1 community after learning that her husband Billy suffered from Alpha-1 Antitrypsin Deficiency. The two became aware of Billy’s condition following his liver transplant in 1994. McClellan was a member of the Alpha internet email support list (rather new in those days), and was awarded the Claude Baril Communication Award for her...
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BP employees take company challenge to donate $500 -- and they choose the Alpha-1 Foundation

BP employees take company challenge to donate $500 -- and they choose the Alpha-1 Foundation
Tuesday, March 20, 2012
If you had the opportunity to help enrich the lives of those living in your community, and the company you worked for gave you $500 to spend on a charity, organization or fundraising group, would you do it?? BP of America makes just such an offer: employees can donate up to $500 through the company’s “Fabric of America Fund.” BP workers can donate either one $500 check to...
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My Precious Breath

My Precious Breath
Monday, March 19, 2012
Even as he waited on a lung transplant list, Jim Danley could sing – in fact, he made two CDs of himself performing classic popular songs as part of a fundraising effort to help cover transplant costs. He received a lung at Shands Hospital in Gainesville, FL, Feb. 13, 2003. (Then he made another CD.) Life has been a roller coaster since then. He’s needed both hips replaced due to...
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Confessions of an oxygen user

Confessions of an oxygen user
Monday, March 19, 2012
I was diagnosed with Alpha-1 and moderate emphysema in January, 1993 – for the next five years, I didn’t use oxygen – and after testing my oxygen saturation levels, my doctor prescribed oxygen for me to use during exercise. Shortly thereafter, he also prescribed it for sleep and for airline travel. For the next 10 years, I was pretty careful to use oxygen when I slept,...
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Alex Harrah’s Art Cars Help Him Cope with Alpha-1

Alex Harrah’s Art Cars Help Him Cope with Alpha-1
Friday, March 16, 2012
Alex Harrah is a lover of art and cars, but he is particularly a fan of fixing up old cars and adding flare, turning them into works of art. You can hear it in Harrah’s voice when he talks about building his most recent “Art Car,” an extremely detailed piece that took him seven years. Using the body of a 1951 Nash Statesman and the frame of a 1978 Lincoln Mark V, Harrah...
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It’s all about attitude

It’s all about attitude
Friday, March 16, 2012
Andrea says that keeping a positive attitude is the key to dealing with chronic illness Growing up, Andrea Maechtle was hardly ever sick. She never went to the doctor when she got a cold. She didn’t even stay home from school, or call in to work. She went about her day as if she weren’t sick at all. But then came a nasty cold. She was in her 40s. The cold lingered for weeks. She...
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